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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
PARIS

MaRIH - French rare diseases Healthcare Network : rare immuno-hematologic diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

FRANCE

ILE-DE-FRANCE
PARIS

GERMANY

Baden-Württemberg
ULM

Working group on paediatric immunology (Expert centres)
Klinik für Kinder- und Jugendmedizin des Universitätsklinikums Ulm

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NETHERLANDS

Utrecht
UTRECHT

RITA: Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases Network
UMC Utrecht - Universitair Medisch Centrum Utrecht

FRANCE

GRAND-EST
STRASBOURG

NORWAY

Østlandet
OSLO

Multicentric Research projects

GERMANY

Baden-Württemberg
TÜBINGEN

BMFS: Network for Congenital Bone Marrow Failure Syndromes
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberPERSIST: Persisting transgenesis
Istituto San Raffaele Telethon per la Terapia Genica - TIGET

FRANCE

ILE-DE-FRANCE
PARIS

GM: Genodermatosis and Mediterranean
Hôpital Necker-Enfants Malades

GERMANY

Bayern
MÜNCHEN

Funded by an IRDiRC memberPID-NET: German Network on Primary Immunodeficiency Diseases
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

ITALY

LAZIO
ROMA

GENESKIN: European network on rare genetic skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

MOROCCO

Casablanca
CASABLANCA

SWEDEN

Skane
LUND

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

UK Primary Immunodeficiency Network
The Great North Children's Hospital, Royal Victoria Infirmary

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

Multinational clinical trials

Networks of patient registries

GERMANY

Niedersachsen
HANNOVER

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION