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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
PARIS

Fava-Multi - French rare diseases Healthcare Network : rare multisystemic vascular diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANCE

HAUTS-DE-FRANCE
LILLE

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

VASCERN: European Reference Network on Rare Multisystemic Vascular Diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

NETHERLANDS

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

SWITZERLAND

Suisse Alémanique
BERN

UNITED KINGDOM

Greater Manchester
MANCHESTER

Multicentric Research projects

FRANCE

AUVERGNE-RHONE-ALPES
LYON

RENAPOL: French network on rare digestive polyposis
CHU de Lyon HCL - GH Edouard Herriot

GERMANY

Bayern
ERLANGEN

Funded by an IRDiRC memberMRNET: German Mental Retardation Network -terminated
Humangenetisches Institut am Universitätsklinikum Erlangen

GERMANY

Nordrhein-Westfalen
ESSEN

NETHERLANDS

Gelderland
NIJMEGEN

SPAIN

Cataluña
BARCELONA

GERMANY

Baden-Württemberg
TÜBINGEN

Information network for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Sachsen-Anhalt
MAGDEBURG

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

CANADA

Colombie-Britannique
VANCOUVER

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico