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Funded by an IRDiRC member =

Expert centre networks

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

ILE-DE-FRANCE
PARIS

EuroBloodNet: European Reference Network on Rare Hematological Diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

ITALY

EMILIA ROMAGNA
BOLOGNA

ERN-BOND: European Reference Network on Rare Bone Disorders
Istituto Ortopedico Rizzoli - Ospedale

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

NORWAY

Østlandet
OSLO

UNITED KINGDOM

Greater Manchester
MANCHESTER

GERMANY

Hessen
WIESBADEN

Multicentric Research projects

SPAIN

Madrid
ADDRESS: NOT PROVIDED - ES

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

FRANCE

PAYS DE LA LOIRE
ANGERS

GERMANY

Bayern
MÜNCHEN

Funded by an IRDiRC membermitoNET: german Network for mitochondrial diseases
Deutsches MITONET e.V. c/o Dr. Bert Obermaier-Kusser

NETHERLANDS

Limburg
MAASTRICHT

UNITED KINGDOM

Greater Manchester
MANCHESTER

ESDN: European Skeletal Dysplasia Network
Faculty of of Life Sciences - University of Manchester

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

GERMANY

Sachsen-Anhalt
MAGDEBURG

CANADA

Ontario
OTTAWA, ONTARIO

FRANCE

OCCITANIE
TOULOUSE

UNITED KINGDOM

South Yorkshire
SHEFFIELD

MetBioNet - National Metabolic Biochemistry Network
The Sheffield Children's Hospital

Networks of patient registries

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION

CANADA

Québec
MONTREAL

Network of Rare Blood Disorder Organizations
Network of Rare Blood Disorder Organizations