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Funded by an IRDiRC member =

Expert centre networks

NETHERLANDS

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

SWITZERLAND

Suisse Alémanique
BERN

FRANCE

AUVERGNE-RHONE-ALPES
BRON

EpiCARE: European Reference Network on Rare and Complex Epilepsies
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCE

GRAND-EST
STRASBOURG

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NORWAY

Østlandet
OSLO

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

ITALY

EMILIA ROMAGNA
BOLOGNA

ERN-BOND: European Reference Network on Rare Bone Disorders
Istituto Ortopedico Rizzoli - Ospedale

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

UNITED KINGDOM

Greater Manchester
MANCHESTER

Multicentric Research projects

FRANCE

AUVERGNE-RHONE-ALPES
LYON

NF-France Network
CLCC Léon Bérard

FRANCE

ILE-DE-FRANCE
PARIS

Réseau sur les neurofibromatoses
Hôpital Necker-Enfants Malades

GERMANY

Baden-Württemberg
HEIDELBERG

GERMANY

Sachsen-Anhalt
MAGDEBURG

Funded by an IRDiRC memberGeNeRARe: German Network for RASopathies
Universitätsklinikum Magdeburg A.ö.R

UNITED KINGDOM

Greater London
LONDON

GERMANY

Nordrhein-Westfalen
ESSEN

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

GERMANY

Baden-Württemberg
TÜBINGEN

GERMANY

Baden-Württemberg
TÜBINGEN

Information network for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

GERMANY

Berlin
ADDRESS: NOT PROVIDED - DE

Funded by an IRDiRC memberTORPEDO: Targeting Of Resistance in PEDiatric Oncology
Institution: Information not provided - DE

GERMANY

Berlin
BERLIN

Informationszentrum Epilepsie der Dt. Gesellschaft für Epileptologie e.V.
Informationszentrum Epilepsie der Dt. Gesellschaft für Epileptologie

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALY

EMILIA ROMAGNA
ADDRESS: NOT PROVIDED - IT

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

UNITED KINGDOM

Greater London
LONDON

Funded by an IRDiRC memberEpiPGX: Epilepsy Pharmacogenomics: delivering biomarkers for clinical use
The National Hospital For Neurology and Neurosurgery

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

FRANCE

ILE-DE-FRANCE
PARIS

GM: Genodermatosis and Mediterranean
Hôpital Necker-Enfants Malades

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LAZIO
ROMA

GENESKIN: European network on rare genetic skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

UNITED KINGDOM

Greater Manchester
MANCHESTER

ESDN: European Skeletal Dysplasia Network
Faculty of of Life Sciences - University of Manchester

GERMANY

Sachsen-Anhalt
MAGDEBURG

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

Alliances and umbrella organisations

BELGIUM

OOST-VLAANDEREN
SINT-NIKLAAS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION

SPAIN

Madrid
MADRID

Federación Española de Padres de Niños con Cáncer
Federación Española de Padres de Niños con Cáncer