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Funded by an IRDiRC member =

Expert centre networks

GERMANY

Hessen
WIESBADEN

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

UNITED KINGDOM

Strathclyde
GLASGOW

The Scottish Muscle Network
Yorkhill Hospitals

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

UNITED KINGDOM

Greater London
LONDON

North Start Clinical Network for paediatric neuromuscular disease
UCL Institute of Child Health, University College London

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Multicentric Research projects

FRANCE

NOUVELLE AQUITAINE
HENDAYE

Réseau myopathies des ceintures
Hôpital marin - APHP

BELGIUM

VLAAMS BRABANT
LEUVEN

BELGIUM

VLAAMS BRABANT
LEUVEN

FRANCE

ILE-DE-FRANCE
PARIS

Research network on CDG syndrome (FINISHED)
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

GERMANY

Hessen
WIESBADEN

UNITED KINGDOM

West Midlands
BIRMINGHAM

Midlands Muscle Network
Birmingham Children's Hospital NHS Foundation Trust

CANADA

Ontario
OTTAWA, ONTARIO

FRANCE

OCCITANIE
TOULOUSE

Réseau Sud-Ouest des erreurs innées du métabolisme
CHU de Toulouse - Hôpital Purpan

GERMANY

Bayern
ERLANGEN

Funded by an IRDiRC memberMRNET: German Mental Retardation Network -terminated
Humangenetisches Institut am Universitätsklinikum Erlangen

GERMANY

Bayern
MÜNCHEN

Funded by an IRDiRC memberMD-Net: Muskeldystrophie-Netzwerk
Friedrich-Baur-Institut

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

NETHERLANDS

Gelderland
NIJMEGEN

SPAIN

Cataluña
BARCELONA

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

UNITED KINGDOM

South Yorkshire
SHEFFIELD

MetBioNet - National Metabolic Biochemistry Network
The Sheffield Children's Hospital

CANADA

Colombie-Britannique
VANCOUVER

GERMANY

Baden-Württemberg
TÜBINGEN

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

MYORES: European Muscle Development Network (FINISHED)
Faculté de médecine de Clermont-Ferrand

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Berlin
BERLIN

EUROMUSCLENET: Europäisches Informations-Netzwerk über muskuläre Erkrankungen
Charité / Max-Delbrück-Centrum für Molekulare Medizin

NETHERLANDS

Utrecht
BAARN

ENMC: European NeuroMuscular Centre
European NeuroMuscular Centre

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Multinational clinical trials

Networks of patient registries

SPAIN

Cataluña
BARCELONA

NMD-ES: Spanish Registry of Neuromuscular Diseases
Hospital de la Santa Creu i Sant Pau

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico