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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
PARIS

RespiFIL - French rare diseases Healthcare Network : rare respiratory diseases
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

UNITED KINGDOM

Greater London
LONDON

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

GERMANY

Hessen
FRANKFURT AM MAIN

ERN LUNG: European Reference Network on respiratory diseases
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt

Multicentric Research projects

GERMANY

Baden-Württemberg
TÜBINGEN

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

GM: Genodermatosis and Mediterranean
Hôpital Necker-Enfants Malades

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

GERMANY

Hessen
GIEßEN

Funded by an IRDiRC memberGOLDnet: German Network for diffuse parenchymatic lung diseases -terminated
Med. Klinik und Poliklinik II des UKGM am Standort Gießen

ITALY

LAZIO
ROMA

GENESKIN: European network on rare genetic skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

AUSTRIA

STEIERMARK
GRAZ

FRANCE

AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR

FRANCE

AUVERGNE-RHONE-ALPES
BRON

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

MYORES: European Muscle Development Network (FINISHED)
Faculté de médecine de Clermont-Ferrand

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Berlin
BERLIN

EUROMUSCLENET: Europäisches Informations-Netzwerk über muskuläre Erkrankungen
Charité / Max-Delbrück-Centrum für Molekulare Medizin

NETHERLANDS

Utrecht
BAARN

ENMC: European NeuroMuscular Centre
European NeuroMuscular Centre

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

GERMANY

Hessen
GIEßEN

ECCPS: The Excellence Cluster Cardio-Pulmonary System
Med. Klinik und Poliklinik II des UKGM am Standort Gießen

GERMANY

Hessen
GIEßEN

UGLC : University of Giessen Lung Center
Med. Klinik und Poliklinik II des UKGM am Standort Gießen

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

Multinational clinical trials

Networks of patient registries

SPAIN

Cataluña
BARCELONA

NMD-ES: Spanish Registry of Neuromuscular Diseases
Hospital de la Santa Creu i Sant Pau

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

Alliances and umbrella organisations