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Search for a rare disease

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Funded by an IRDiRC member =

Expert centre networks

NETHERLANDS

Gelderland
NIJMEGEN

Radboudumc AGORA: network for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

UNITED KINGDOM

Greater Manchester
MANCHESTER

Multicentric Research projects

FRANCE

OCCITANIE
MONTPELLIER

GERMANY

Sachsen-Anhalt
MAGDEBURG

ITALY

LAZIO
ROMA

Italian Network Promotion Folic Acid
ISS - Istituto Superiore di Sanità

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

Networks of patient registries

UNITED KINGDOM

Antrim and Newtownabbey
NEWTOWNABBEY

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations