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Funded by an IRDiRC member =

Expert centre networks

GERMANY

Hessen
WIESBADEN

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NORWAY

Østlandet
OSLO

FRANCE

ILE-DE-FRANCE
PARIS

EURO-NMD: European Reference Network for Rare Neuromuscular Diseases
Institut de Myologie - Hôpital Pitié-Salpêtrière

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

UNITED KINGDOM

Greater London
LONDON

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

Multicentric Research projects

UNITED KINGDOM

West Midlands
BIRMINGHAM

Midlands Muscle Network
Birmingham Children's Hospital NHS Foundation Trust

CANADA

Ontario
OTTAWA, ONTARIO

FRANCE

OCCITANIE
TOULOUSE

GERMANY

Baden-Württemberg
TÜBINGEN

UNITED KINGDOM

South Yorkshire
SHEFFIELD

MetBioNet - National Metabolic Biochemistry Network
The Sheffield Children's Hospital

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

FRANCE

AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

MYORES: European Muscle Development Network (FINISHED)
Faculté de médecine de Clermont-Ferrand

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Berlin
BERLIN

EUROMUSCLENET: Europäisches Informations-Netzwerk über muskuläre Erkrankungen
Charité / Max-Delbrück-Centrum für Molekulare Medizin

NETHERLANDS

Utrecht
BAARN

ENMC: European NeuroMuscular Centre
European NeuroMuscular Centre

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

Multinational clinical trials

Networks of patient registries

SPAIN

Cataluña
BARCELONA

NMD-ES: Spanish Registry of Neuromuscular Diseases
Hospital de la Santa Creu i Sant Pau

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION

SPAIN

Cataluña
BARCELONA

Federación ASEM - Federación Española de Enfermedades Neuromusculares
Federación Española de Enfermedades Neuromusculares

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

TREAT-NMD : Neuromuscular Network Associations
Newcastle upon Tyne Hospitals NHS Trust