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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
PARIS

RespiFIL - French rare diseases Healthcare Network : rare respiratory diseases
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NORWAY

Østlandet
OSLO

GERMANY

Hessen
FRANKFURT AM MAIN

ERN LUNG: European Reference Network on respiratory diseases
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt

ITALY

EMILIA ROMAGNA
BOLOGNA

ERN-BOND: European Reference Network on Rare Bone Disorders
Istituto Ortopedico Rizzoli - Ospedale

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

UNITED KINGDOM

Greater Manchester
MANCHESTER

Multicentric Research projects

GERMANY

Baden-Württemberg
FREIBURG

Funded by an IRDiRC memberFACE: Network for selected craniofacial developmental disorders
Zentrum für Kinder- und Jugendmedizin Freiburg

NETHERLANDS

Gelderland
NIJMEGEN

FRANCE

AUVERGNE-RHONE-ALPES
LYON

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

GM: Genodermatosis and Mediterranean
Hôpital Necker-Enfants Malades

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

ITALY

LAZIO
ROMA

GENESKIN: European network on rare genetic skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

GERMANY

Hessen
GIEßEN

ECCPS: The Excellence Cluster Cardio-Pulmonary System
Med. Klinik und Poliklinik II des UKGM am Standort Gießen

GERMANY

Hessen
GIEßEN

UGLC : University of Giessen Lung Center
Med. Klinik und Poliklinik II des UKGM am Standort Gießen

UNITED KINGDOM

Greater Manchester
MANCHESTER

ESDN: European Skeletal Dysplasia Network
Faculty of of Life Sciences - University of Manchester

GERMANY

Sachsen-Anhalt
MAGDEBURG

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION