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Funded by an IRDiRC member =

Expert centre networks

FRANCE

HAUTS-DE-FRANCE
LILLE

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NETHERLANDS

Zuid-Holland
LEIDEN

Endo-ERN: European Reference Network on Rare Endocrine Conditions
LUMC - Leids Universitair Medisch Centrum

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

Multicentric Research projects

GERMANY

Hessen
MARBURG

Funded by an IRDiRC memberPMTR-pNET : Predictive models of therapy response in pancreatic neuroendocrine tumors
Universitätsklinikum Gießen und Marburg GmbH, Standort Marburg

FRANCE

GRAND-EST
REIMS

GERMANY

Berlin
BERLIN

ENETS: European Neuroendocrine Tumor Society
Charité - Universitätsmedizin Berlin (CVK)

GERMANY

Baden-Württemberg
TÜBINGEN

Information network for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

GERMANY

Berlin
ADDRESS: NOT PROVIDED - DE

Funded by an IRDiRC memberTORPEDO: Targeting Of Resistance in PEDiatric Oncology
Institution: Information not provided - DE

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALY

EMILIA ROMAGNA
ADDRESS: NOT PROVIDED - IT

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

Multinational clinical trials

GERMANY

Berlin
ADDRESS: NOT PROVIDED - DE

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.

Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION

SPAIN

Madrid
MADRID

Federación Española de Padres de Niños con Cáncer
Federación Española de Padres de Niños con Cáncer