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Funded by an IRDiRC member =

Expert centre networks

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

UNITED KINGDOM

Greater London
LONDON

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

GERMANY

Hessen
WIESBADEN

Multicentric Research projects

UNITED KINGDOM

West Midlands
BIRMINGHAM

Midlands Muscle Network
Birmingham Children's Hospital NHS Foundation Trust

GERMANY

Baden-Württemberg
TÜBINGEN

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

FRANCE

PAYS DE LA LOIRE
ANGERS

GERMANY

Bayern
MÜNCHEN

Funded by an IRDiRC membermitoNET: german Network for mitochondrial diseases
Deutsches MITONET e.V. c/o Dr. Bert Obermaier-Kusser

NETHERLANDS

Limburg
MAASTRICHT

FRANCE

AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

MYORES: European Muscle Development Network (FINISHED)
Faculté de médecine de Clermont-Ferrand

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Berlin
BERLIN

EUROMUSCLENET: Europäisches Informations-Netzwerk über muskuläre Erkrankungen
Charité / Max-Delbrück-Centrum für Molekulare Medizin

NETHERLANDS

Utrecht
BAARN

ENMC: European NeuroMuscular Centre
European NeuroMuscular Centre

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

CANADA

Colombie-Britannique
VANCOUVER

CANADA

Ontario
OTTAWA, ONTARIO

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

OCCITANIE
TOULOUSE

Réseau Sud-Ouest des erreurs innées du métabolisme
CHU de Toulouse - Hôpital Purpan

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

SPAIN

Cataluńa
L'HOSPITALET DE LLOBREGAT

UNITED KINGDOM

South Yorkshire
SHEFFIELD

MetBioNet - National Metabolic Biochemistry Network
The Sheffield Children's Hospital

Multinational clinical trials

Networks of patient registries

SPAIN

Cataluńa
BARCELONA

NMD-ES: Spanish Registry of Neuromuscular Diseases
Hospital de la Santa Creu i Sant Pau

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

SPAIN

Cataluńa
BARCELONA

Federación ASEM - Federación Espańola de Enfermedades Neuromusculares
Federación Espańola de Enfermedades Neuromusculares