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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
PARIS

NETHERLANDS

Noord-Brabant
EINDHOVEN

Dutch Adrenal Network
Máxima Medisch Centrum, locatie Eindhoven

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

OCCITANIE
MONTPELLIER

ORKiD - French rare diseases Healthcare Network : rare renal diseases
CHRU de Montpellier - Hôpital Arnaud de Villeneuve

GERMANY

Baden-Württemberg
HEIDELBERG

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NETHERLANDS

Zuid-Holland
LEIDEN

Endo-ERN: European Reference Network on Rare Endocrine Conditions
LUMC - Leids Universitair Medisch Centrum

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

Multicentric Research projects

GERMANY

Bayern
WÜRZBURG

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

EUNEFRON: the European network for the study of orphan nephropathies
Cliniques Universitaires UCL de Saint Luc - UCLStLuc

FRANCE

ILE-DE-FRANCE
PARIS

GERMANY

Baden-Württemberg
HEIDELBERG

Funded by an IRDiRC memberEURENOMICS: European Consortium for High-Throughput Research in Rare Kidney Diseases
Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik

GERMANY

Baden-Württemberg
TÜBINGEN

Information network for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.