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Funded by an IRDiRC member =

Expert centre networks

GERMANY

Hessen
WIESBADEN

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

GERMANY

Hamburg
HAMBURG

RARE-LIVER: European Reference Network on Rare Hepatological Diseases
UKE - Universitätsklinikum Hamburg-Eppendorf

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

FRANCE

ILE-DE-FRANCE
PARIS

FIRENDO - French rare diseases Healthcare Network : rare endocrine diseases
CHU Paris Centre - Hôpital Cochin, Site Cochin

NORWAY

Østlandet
OSLO

NETHERLANDS

Zuid-Holland
LEIDEN

Endo-ERN: European Reference Network on Rare Endocrine Conditions
LUMC - Leids Universitair Medisch Centrum

Multicentric Research projects

CANADA

Québec
MONTRÉAL

Funded by an IRDiRC memberPERescue: Overcoming plasmalogen deficiency in peroxisomal disorders
Montreal Children's Hospital Research Institute - McGill University

AUSTRIA

WIEN
WIEN

MYELINET: Myelin orphan diseases in health
Medizinische Universität Wien

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

GERMANY

Hessen
WIESBADEN

GERMANY

Nordrhein-Westfalen
BONN

Funded by an IRDiRC memberLEUKONET: German Leukodystrophy Network
Medizinische Fakultät der Universität Bonn

CANADA

Ontario
OTTAWA, ONTARIO

FRANCE

OCCITANIE
TOULOUSE

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

UNITED KINGDOM

South Yorkshire
SHEFFIELD

MetBioNet - National Metabolic Biochemistry Network
The Sheffield Children's Hospital

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

Multinational clinical trials

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

LUXEMBOURG

LUXEMBOURG
LUXEMBOURG

ELA international
ELA international

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION