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Funded by an IRDiRC member =

Expert centre networks

UNITED KINGDOM

Strathclyde
GLASGOW

The Scottish Muscle Network
Yorkhill Hospitals

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

UNITED KINGDOM

Greater London
LONDON

North Start Clinical Network for paediatric neuromuscular disease
UCL Institute of Child Health, University College London

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

Multicentric Research projects

CANADA

Ontario
OTTAWA

Funded by an IRDiRC memberSIRD: Stimulating Intrinsic Repair for DMD
Ottawa Hospital Research Institute

GERMANY

Baden-Württemberg
FREIBURG

Funded by an IRDiRC memberCARE-NMD : Improving care for Duchenne muscular dystrophy
Zentrum für Kinder- und Jugendmedizin Freiburg

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Funded by an IRDiRC memberBIOIMAGE-Neuromuscular Diseases
Newcastle upon Tyne Hospitals NHS Trust

GERMANY

Bayern
MÜNCHEN

Funded by an IRDiRC memberMD-Net: Muskeldystrophie-Netzwerk
Friedrich-Baur-Institut

GERMANY

Baden-Württemberg
TÜBINGEN

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

MYORES: European Muscle Development Network (FINISHED)
Faculté de médecine de Clermont-Ferrand

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Berlin
BERLIN

EUROMUSCLENET: Europäisches Informations-Netzwerk über muskuläre Erkrankungen
Charité / Max-Delbrück-Centrum für Molekulare Medizin

NETHERLANDS

Utrecht
BAARN

ENMC: European NeuroMuscular Centre
European NeuroMuscular Centre

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

CANADA

Colombie-Britannique
VANCOUVER

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

Multinational clinical trials

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

UNITED STATES

Washington
ADDRESS: NOT PROVIDED - US

Networks of patient registries

SPAIN

Cataluña
BARCELONA

NMD-ES: Spanish Registry of Neuromuscular Diseases
Hospital de la Santa Creu i Sant Pau

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico