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Funded by an IRDiRC member =

Expert centre networks

GERMANY

Berlin
BERLIN

Network of Tuberous sclerosis expert centers
Vivantes Klinikum Neukölln

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

OCCITANIE
MONTPELLIER

ORKiD - French rare diseases Healthcare Network : rare renal diseases
CHRU de Montpellier - Hôpital Arnaud de Villeneuve

GERMANY

Baden-Württemberg
HEIDELBERG

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NETHERLANDS

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

SWITZERLAND

Suisse Alémanique
BERN

UNITED KINGDOM

Greater London
LONDON

EpiCARE: European Reference Network on Rare and Complex Epilepsies
Great Ormond Street Hospital for Children, NHS Foundation Trust

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

Multicentric Research projects

GERMANY

Bayern
MÜNCHEN

INOPSU - ESPED: German Paediatric Surveillance Unit (DE)
Institut für Soziale Pädiatrie und Jugendmedizin

GERMANY

Nordrhein-Westfalen
ESSEN

GERMANY

Nordrhein-Westfalen
MÜNSTER

Funded by an IRDiRC memberNEOCYST: Network of Early Onset Cystic Kidney Disease
KfH Kuratorium für Dialyse und Nierentransplantation e.V.

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

GERMANY

Baden-Württemberg
HEIDELBERG

Funded by an IRDiRC memberEURENOMICS: European Consortium for High-Throughput Research in Rare Kidney Diseases
Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik

GERMANY

Baden-Württemberg
TÜBINGEN

GERMANY

Bayern
ERLANGEN

Funded by an IRDiRC memberMRNET: German Mental Retardation Network -terminated
Humangenetisches Institut am Universitätsklinikum Erlangen

GERMANY

Berlin
BERLIN

Informationszentrum Epilepsie der Dt. Gesellschaft für Epileptologie e.V.
Informationszentrum Epilepsie der Dt. Gesellschaft für Epileptologie

NETHERLANDS

Gelderland
NIJMEGEN

SPAIN

Cataluña
BARCELONA

UNITED KINGDOM

Greater London
LONDON

Funded by an IRDiRC memberEpiPGX: Epilepsy Pharmacogenomics: delivering biomarkers for clinical use
The National Hospital For Neurology and Neurosurgery

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

GM: Genodermatosis and Mediterranean
CHU Paris - Hôpital Necker-Enfants Malades

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

GERMANY

Niedersachsen
GÖTTINGEN

ITALY

LAZIO
ROMA

GENESKIN: European network on rare genetic skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

Multinational clinical trials

Networks of biobanks

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations