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Funded by an IRDiRC member =

Expert centre networks

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

GRAND-EST
STRASBOURG

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

UNITED KINGDOM

Greater Manchester
MANCHESTER

NETHERLANDS

Zuid-Holland
LEIDEN

Endo-ERN: European Reference Network on Rare Endocrine Conditions
LUMC - Leids Universitair Medisch Centrum

NETHERLANDS

Zuid-Holland
ROTTERDAM

NORWAY

Østlandet
OSLO

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Hessen
WIESBADEN

Multicentric Research projects

GERMANY

Bayern
MÜNCHEN

INOPSU - ESPED: German Paediatric Surveillance Unit (DE)
Institut für Soziale Pädiatrie und Jugendmedizin

GERMANY

Sachsen-Anhalt
MAGDEBURG

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

FRANCE

PAYS DE LA LOIRE
ANGERS

GERMANY

Bayern
MÜNCHEN

Funded by an IRDiRC membermitoNET: german Network for mitochondrial diseases
Deutsches MITONET e.V. c/o Dr. Bert Obermaier-Kusser

NETHERLANDS

Limburg
MAASTRICHT

CANADA

Ontario
OTTAWA, ONTARIO

FRANCE

OCCITANIE
TOULOUSE

UNITED KINGDOM

South Yorkshire
SHEFFIELD

MetBioNet - National Metabolic Biochemistry Network
The Sheffield Children's Hospital

Networks of patient registries

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION

SPAIN

Madrid
MADRID

FIAPAS - Confederación Española de Familias de Personas Sordas
Confederación Española de Familias de Personas Sordas