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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
PARIS

FIRENDO - French rare diseases Healthcare Network : rare endocrine diseases
CHU Paris Centre - Hôpital Cochin, Site Cochin

NETHERLANDS

Gelderland
NIJMEGEN

Radboudumc AGORA: network for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NETHERLANDS

Zuid-Holland
LEIDEN

Endo-ERN: European Reference Network on Rare Endocrine Conditions
LUMC - Leids Universitair Medisch Centrum

NORWAY

Østlandet
OSLO

Multicentric Research projects

FRANCE

AUVERGNE-RHONE-ALPES
BRON

NEUROPED: European network of reference for rare paediatric neurological diseases
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

GERMANY

Sachsen-Anhalt
MAGDEBURG

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

Networks of patient registries

UNITED KINGDOM

Antrim and Newtownabbey
NEWTOWNABBEY

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION