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Funded by an IRDiRC member =

Expert centre networks

NETHERLANDS

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

SWITZERLAND

Suisse Alémanique
BERN

NETHERLANDS

Zuid-Holland
LEIDEN

Endo-ERN: European Reference Network on Rare Endocrine Conditions
LUMC - Leids Universitair Medisch Centrum

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
BONN

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

Multicentric Research projects

ITALY

TOSCANA
FIRENZE

Multiple Endocrine Neoplasia Network
Azienda Ospedaliero Universitaria Careggi - NEUROFARBA

GERMANY

Baden-Württemberg
TÜBINGEN

Information network for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Research)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

ITALY

LOMBARDIA
MILANO

RARECARE: surveillance of rare cancers in Europe
Fondazione IRCCS Istituto Nazionale dei Tumori

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberRARECARENet: Network informativo sui tumori rari
Fondazione IRCCS Istituto Nazionale dei Tumori

UNITED KINGDOM

South Glamorgan
CARDIFF

South East Wales Cancer Network
University Hospital of Wales

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EPOC: European paediatric oncology off-patent medicines consortium
Northern Institute for Cancer Research, Medical School, Newcastle University

CANADA

Colombie-Britannique
VANCOUVER

Networks of patient registries

GERMANY

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

GERMANY

Niedersachsen
WUNSTORF

EMENA - European Multiple Endocrine Neoplasia (MEN) Alliance e.V.
EMENA - European Multiple Endocrine Neoplasia (MEN) Alliance e.V.