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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
PARIS

EuroBloodNet: European Reference Network on Rare Hematological Diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

GERMANY

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

Multicentric Research projects

SPAIN

Madrid
ADDRESS: NOT PROVIDED - ES

UNITED KINGDOM

West Midlands
BIRMINGHAM

Midlands Muscle Network
Birmingham Children's Hospital NHS Foundation Trust

Networks of patient registries

Alliances and umbrella organisations

CANADA

Québec
MONTREAL

Network of Rare Blood Disorder Organizations
Network of Rare Blood Disorder Organizations