Orphanet Reports Series / Procedures
Orphanet Reports Series
Orphanet reports are a serie of texts covering topics relevant to all rare diseases. New reports are regularly put online and some of these texts are periodically updated.
Rare diseases
- List of rare diseases and synonyms in alphabetical order January 2021
- This document has been translated into Czech (January 2021)
- Prevalence, incidence or reported number of published cases listed in alphabetical order of disease January 2022 - n°1
- This document has been translated into Russian January 2022 - n°1
- Diseases listed by decreasing prevalence, incidence or number of published cases January 2022 - n°2
- This document has been translated into Russian January 2022 - n°2
Rare Disease Registries April 2023
Orphan Drugs
Medicinal products for rare diseases in Europe February 2023
Activity reports
- 25 Years of Orphanet
- To mark 25 years of Orphanet, a leaflet has been produced collating the input received from Orphanet members and the wider rare disease community concerning the impact of Orphanet on the rare disease ecosystem since its creation.
- Orphanet Activity Report, 2022
- A leaflet presenting Orphanet's activities and latest developments has also been produced in English
- Orphanet Activity Report, 2021
- A leaflet presenting Orphanet's activities and latest developments has also been produced in English
- Orphanet Activity Report, 2020
- A leaflet presenting Orphanet's activities and latest developments has also been produced in English
- Orphanet Activity Report, 2019
- A leaflet presenting Orphanet's activities and latest developments has also been produced in English
- Orphanet Activity Report, 2018
- This document has been translated or adapted into Spanish .
- A leaflet presenting Orphanet's activities and latest developments has also been produced in English
- Orphanet Activity Report, 2017
- This document has been translated or adapted into French and Spanish .
- A leaflet presenting Orphanet's activities and latest developments has also been produced in English and in Italian
- Orphanet Activity Report, 2016
- This document has been translated or adapted into Polish and Spanish .
- A leaflet presenting Orphanet's activities and latest developments has also been produced in English
- Orphanet Activity Report, 2015
- This document has been translated or adapted into French, Italian, Spain and Polish.
- Partner countries Activity Reports: Italy
- Orphanet Activity Report, 2014
- This document has been translated or adapted into Italian and Spanish.
- Partner countries Activity Reports: Italy
- Orphanet Activity Report, 2013
- This document has been translated or adapted into French, Italian & spanish.
- Partner countries Activity Reports: Italy
- Orphanet Activity Report, 2012
- This document has been translated or adapted into French, Italian and Spanish.
- Partner countries Activity Reports: Spain
- Orphanet 2023 Users Satisfaction Survey
- Orphanet 2022 Users Satisfaction Survey
- Orphanet 2021 Users Satisfaction Survey
- Orphanet 2020 Users Satisfaction Survey
- Orphanet 2018 Users Satisfaction Survey
- Orphanet 2017 Users Satisfaction Survey
- Orphanet 2016 Users Satisfaction Survey
- Orphanet 2015 Users Satisfaction Survey
- Orphanet 2014 Users Satisfaction Survey
- Orphanet 2013 Users Satisfaction Survey
- Orphanews Italia satisfaction survey 2013
- Orphanet 2012 Users Satisfaction Survey
- Orphanet 2011 Users Satisfaction Survey
- Orphanet 2010 Users Satisfaction Survey
- List of experts contributing to Orphanet's scientific data validation 2022
- List of experts contributing to Orphanet's scientific data validation 2021
- List of experts contributing to Orphanet's scientific data validation 2020
- List of experts contributing to Orphanet's scientific data validation 2019
- List of experts contributing to Orphanet's scientific data validation 2018
- List of experts contributing to Orphanet's scientific data validation 2017
- List of experts contributing to Orphanet's scientific data validation 2016
- List of experts contributing to Orphanet's scientific data validation 2015