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National cohort for the evaluation of individual burden in the course of rare skin diseases

  • Type of data/biobank : Patient registries/Databases
  • Geographic coverage : National
  • Recruiting : Yes
  • Funded by an IRDiRC member
  • Manager of registry :
  • Pr Christine BODEMER
  • Centre MAGEC (MAladies rares Génétiques à Expression Cutanée)
  • Service de dermatologie
  • CHU Paris - Hôpital Necker-Enfants Malades
  • 149 rue de Sèvres
  • 75743 PARIS
  • FRANCE
  • More information
  • Phone  : 33 (0)1 44 49 43 37
  • Fax  : 33 (0)1 44 49 44 71
  • Website
  • Contact secretary  :
Last update: January 2017

Additional information

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.