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Paroxysmal Nocturnal Hemoglobinuria Registry

  • Type of data/biobank : Patient registries/Databases
  • Geographic coverage : National
  • Recruiting : Yes
  • Funded by an IRDiRC member
  • Manager of registry :
  • Dr Claudio FRANK
  • Dipartimento del Farmaco
  • National Centre for Rare Diseases
  • ISS - Istituto Superiore di SanitÓ
  • Viale Regina Elena 299
  • 00161 ROMA
  • ITALY
  • More information
  • Phone  : 39 06 49903067
  • Fax  : 39 06 49904370
  • Website
Last update: February 2023

Additional information

Further information on this research

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