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Paroxysmal Nocturnal Hemoglobinuria Registry
- Type of data/biobank : Patient registries/Databases
- Geographic coverage : National
- Recruiting : Yes
- Funded by an IRDiRC member
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- Manager of registry :
- Dr Claudio FRANK
- Dipartimento del Farmaco
- National Centre for Rare Diseases
- ISS - Istituto Superiore di Sanità
- Viale Regina Elena 299
- 00161 ROMA
- ITALY
- More information
- Phone : 39 06 49903067
- Fax : 39 06 49904370
- Website
- Public funding body :
- ISTITUTO SUPERIORE DI SANITÀ
- ISTITUTO SUPERIORE DI SANITA'
- ISS - Istituto Superiore di Sanità
- Viale Regina Elena 299
- 00161 ROMA
- ITALY
- More information
- Phone : 39 06 49902087
- Fax : 39 06 4957821
- Website
Last update: February 2023
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The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.