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Swiss Rare Disease Registry

  • Type of data/biobank : Patient registries/Databases
  • Geographic coverage : National
  • Recruiting : Yes
  • Website
  • Manager of registry :
  • Pr Matthias BAUMGARTNER
  • Abteilung für Stoffwechselkrankheiten
  • Universitäts - Kinderspital Zürich - Eleonorenstiftung
  • Steinwiesstrasse 75
  • 8032 ZÜRICH
  • SWITZERLAND
  • More information
  • Phone  : 0041 (0)44 266 73 10
  • Fax  : 0041 (0)44 266 71 67
  • Website
  • Contact secretary  :
  • Manager of registry :
  • Pr Claudia KUEHNI
  • Institute of Social and Preventive Medicine (ISPM)
  • University of Bern
  • Mittelstrasse 43
  • 3012 BERN
  • SWITZERLAND
  • More information
  • Phone  : 0041 (0)31 631 33 95
  • Fax  : -
  • Website
  • Contact secretary  :
  • Contact person of registry :
  • Pr Claudia KUEHNI
  • Institute of Social and Preventive Medicine (ISPM)
  • University of Bern
  • Mittelstrasse 43
  • 3012 BERN
  • SWITZERLAND
  • More information
  • Phone  : 0041 (0)31 631 33 95
  • Fax  : -
  • Website
  • Contact secretary  :
Last update: February 2020

Additional information

Further information on this research

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.