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UK and Ireland Spinal muscular atrophy (SMA) patient registry (part of the TREAT-NMD network)
- Type of data/biobank : Patient registries/Databases
- Geographic coverage : European
- Recruiting : Yes
- Website
- Manager of registry :
- Dr Chiara MARINI-BETTOLO
- John Walton Muscular Dystrophy Research Centre, Institute of Genetic Medicine
- Newcastle University
- Newcastle upon Tyne Hospitals NHS Trust
- Central Parkway
- NEWCASTLE UPON TYNE NE1 3BZ
- UNITED KINGDOM
- More information
- Phone : 44 (0)191 241 8640
- Fax : -
- Website
- Contact secretary :
email
Last update: May 2011
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The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.