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French Registry of Atypical Hemolytic Uremic Syndrome (aHUS) in Children
- Type of data/biobank : Patient registries/Databases
- Geographic coverage : National
- Recruiting : Yes
- Website
- Manager of registry :
- Dr Véronique FREMEAUX-BACCHI
- Laboratoire d'Immunologie biologique
- CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou
- 20 rue Leblanc
- 75015 PARIS
- FRANCE
- More information
- Phone : 33 (0)1 56 09 39 41
- Fax : 33 (0)1 56 09 20 80
- Website
- Contact secretary :
email
- Private non-profit funding body :
- AIRG-FRANCE
- Association pour l'Information et la Recherche sur les maladies Rénales Génétiques-France
- AIRG-France
- BP 78
- 75261 PARIS CEDEX 6
- FRANCE
- More information
- Phone : 33 (0)1 53 10 89 98
- Fax : 33 (0)1 45 48 07 57
- Website
- Contact secretary :
email
Last update: July 2013
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