Orphanet: Registries & biobanks
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ReeR: Spanish National Registry of Rare Diseases

  • Type of data/biobank : Patient registries/Databases
  • Geographic coverage : National
  • Recruiting : Yes
  • Website
  • Manager of registry :
  • Pr Manuel POSADA DE LA PAZ
  • Instituto de Investigación de Enfermedades Raras
  • ISCIII - Instituto de Salud Carlos III
  • Avenida Monforte de Lemos, 5
  • 28029 MADRID
  • SPAIN
  • More information
  • Phone  : 34 91 822 25 90
  • Fax  : 34 91 3877895
  • Website
  • Contact secretary  :
  • Contact person of registry :
  • Dr Ignacio ABAITUA
  • Instituto de Investigación de Enfermedades Raras
  • ISCIII - Instituto de Salud Carlos III
  • Avenida Monforte de Lemos, 5
  • 28029 MADRID
  • SPAIN
  • More information
  • Phone  : 34 91 822 25 90
  • Fax  : 34 91 3877895
  • Website
  • Contact secretary  :
Last update: April 2017

Additional information

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