Orphanet: Registries & biobanks
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National registry for Blackfan-Diamond disease

  • Type of data/biobank : Patient registries/Databases
  • Geographic coverage : National
  • Recruiting : Yes
  • Website
  • Manager of registry :
  • Pr Charlotte NIEMEYER
  • Klinik für Pädiatrische Hämatologie und Onkologie
  • Zentrum für Kinder- und Jugendmedizin Freiburg
  • Mathildenstr. 1
  • 79106 FREIBURG
  • GERMANY
  • More information
  • Phone  : 49 (0)761 270 45060
  • Fax  : 49 (0)761 270 45180
  • Website
  • Contact secretary  :
Last update: July 2013

Additional information

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.