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Dutch patient registry for Fabry disease

  • Type of data/biobank : Patient registries/Databases
  • Geographic coverage : National
  • Recruiting : Yes
  • Manager of registry :
  • Pr C.E.M. HOLLAK
  • Afdeling Erfelijke Stofwisselingsziekten
  • Afdeling Inwendige Geneeskunde
  • Amsterdam UMC, locatie AMC
  • Meibergdreef 9
  • 1105 AZ AMSTERDAM
  • NETHERLANDS
  • More information
  • Phone  : +31 (0)20 566 6791
  • Fax  : +31 (0)20 691 7682
  • Website
  • Contact secretary  :
  • Contact person of registry :
  • Ms M.C. [Mary] DUIJNKER
  • Afdeling Erfelijke Stofwisselingsziekten
  • Afdeling Inwendige Geneeskunde
  • Amsterdam UMC, locatie AMC
  • Meibergdreef 9
  • 1105 AZ AMSTERDAM
  • NETHERLANDS
  • More information
  • Phone  : +31 (0)20 566 6791
  • Fax  : +31 (0)20 691 7682
  • Website
  • Contact secretary  :
Last update: May 2012

Additional information

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The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.