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International Pachyonychia Congenita Research Registry (IPCRR)

  • Type of data/biobank : Patient registries/Databases
  • Geographic coverage : Global
  • Recruiting : -
  • Website
  • Manager of registry :
  • Ms Mary SCHWARTZ
  • Pachyonychia Congenita Project
  • PC Project
  • 2386 East Heritage Way, Suite B
  • UT 84109 SALT LAKE CITY
  • UNITED STATES
  • More information
  • Phone  : 1 801 401 6300
  • Fax  : 1 877 628 7399
  • Website
  • Contact secretary  :
  • Private non-profit funding body :
  • PC PROJECT
  • Pachyonychia Congenita Project
  • PC Project
  • 2386 East Heritage Way, Suite B
  • UT 84109 SALT LAKE CITY
  • UNITED STATES
  • More information
  • Phone  : 1 801 401 6300
  • Fax  : 1 877 628 7399
  • Website
  • Contact secretary  :
Last update: July 2011

Additional information

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.