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OSTEOPETR: International registry of patients suffering from osteopetrosis

  • Type of data/biobank : Patient registries/Databases
  • Geographic coverage : Global
  • Recruiting : Yes
  • Website
  • Manager of registry :
  • Pr Ansgar S. SCHULZ
  • Sektion Knochenmark- und Stammzelltransplantation
  • Klinik für Kinder- und Jugendmedizin des Universitätsklinikums Ulm
  • Eythstr. 24
  • 89075 ULM
  • GERMANY
  • More information
  • Phone  : 49 (0)731 500 57154
  • Fax  : 49 (0)731 500 57102
  • Website
  • Public funding body :
  • E-RARE CONSORTIUM
  • ERA-Net for research programs on rare diseases - Germany
  • Projektträger im Deutschen Zentrum für Luft- und Raumfahrt
  • Heinrich-Konen-Str. 1
  • 53227 BONN
  • GERMANY
  • More information
  • Phone  : -
  • Fax  : -
  • Website
Last update: July 2013

Additional information

Further information on this research

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.