Suche Register/Biobank
Weitere Suchoptionen
125 Ergebnis(se)
Förderung durch ein IRDiRC-Mitglied = 
ERN-Mitglied = 
Register und Biobanken
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Belgian registry of primary immunodeficiencies - contribution to the ESID registry
Cliniques Universitaires de Bruxelles - Hôpital Erasme
Unité de Traitment des Immunodéficiences
BELGIEN
OOST-VLAANDEREN
GENT
Belgian registry of primary immunodeficiencies - contribution to the ESID registry
Ghent University Hospital - UZ Gent
Centrum voor primaire immuunstoornissen - UZ Gent (CPIG)
BELGIEN
OOST-VLAANDEREN
GENT
A biobank of patients with Primary Immune Deficiencies (PID)
PID research lab (PIRL), UZ Gent - MRBII - Entrance 38
Center for Primary Immunodeficiencies Ghent, Jeffrey Modell Foundation diagnostic and research center
BELGIEN
VLAAMS BRABANT
LEUVEN
Belgian registry of primary immunodeficiencies - contribution to the ESID registry
UZ Leuven - Campus Gasthuisberg
Centre for Rare Immune Deficiency, Autoimmune and Autoinflammatory Diseases - UZ Leuven
BULGARIEN
South-West region
SOFIA
National registry of patients with primary immunodeficiencies (PID) - BG
Alexandrovska University Hospital
DEUTSCHLAND
Baden-Württemberg
FREIBURG
PID-NET: Deutsches Nationales Patientenregister für primäre Immundefekte
CCI am Universitätsklinikum Freiburg
Centrum für Chronische Immundefizienz
DEUTSCHLAND
Baden-Württemberg
FREIBURG
PID-NET: Deutsches Nationales Patientenregister für primäre Immundefekte
CCI am Universitätsklinikum Freiburg
ESID-Registry
DEUTSCHLAND
Bayern
MÜNCHEN
PID-NET: Dezentrale nationale Biobank für primäre Immundefekt-Syndrome
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital
Care-for-Rare Center (CRCHauner)
FRANKREICH
ILE-DE-FRANCE
PARIS
SCETIDE - Stem CEll Transplant for primary Immune Deficiencies in Europe
Hôpital Necker-Enfants Malades
Registre européen des greffes de moelle osseuse pour immunodéficience primaire
IRLAND
County Dublin
DUBLIN
National Severe Immunodeficiency Registry - contributes to ESID registry
St James's Hospital
Department of Immunology
ITALIEN
LIGURIA
GENOVA
ERN [RITA] - MERITA: A METADATA REGISTRY FOR THE ERN RITA
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O. Pediatria II
POLEN
Warszawa
WARSAW
Polish registry of primary immunodeficiencies - contributes to the ESID European registry
Instytut "Pomnik-Centrum Zdrowia Dziecka"
Klinika Immunologii
PORTUGAL
NORTE
PORTO
Portuguese registry of primary immunodeficiency diseases (REPORID)
Centro Hospitalar Universitário de Santo António, EPE - Hospital Santo António
Centro Coordenador do REPORID
SCHWEDEN
Region Stockholm
ADDRESS: NOT PROVIDED - SE
PIDcare: National registry of Primary immunodeficiencies
Institution: Information not provided - SE
Regional Registry Centre, South East Sweden
SPANIEN
Baleares
PALMA DE MALLORCA
REDIP: Spanish registry of primary immunodeficiencies - contributes to the ESID European registry
Hospital Universitari Son Espases
Servicio de Inmunología
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
CRRD: Central Registry of Rare Diseases
Sciensano
Health Services Research - Rare Diseases
DEUTSCHLAND
Niedersachsen
HANNOVER
German severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
Medizinische Hochschule Hannover
SCNIR - Europazentrale
FRANKREICH
ILE-DE-FRANCE
PARIS
French National Registry for Rare Diseases (BNDMR)
AP-HP Campus Picpus - Département WIND (Web Innovation Données)
Banque Nationale de Données Maladies Rares (BNDMR)
ITALIEN
LAZIO
ROMA
FMF: Italian registry for familial mediterranean fever in the young
Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Centro delle Febbri Periodiche - Istituto di Medicina Interna
ITALIEN
LAZIO
ROMA
Italian Registry of adult patients affected by familial mediterranean fever
Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Centro delle Febbri Periodiche - Istituto di Medicina Interna
ITALIEN
LAZIO
ROMA
RNMR: Italian National Rare Diseases Registry
ISS - Istituto Superiore di Sanità
Centro Nazionale Malattie Rare
ITALIEN
LAZIO
ROMA
INMI Biobank
Istituto Nazionale per le Malattie Infettive "Lazzaro Spallanzani"
U.O.C. Microbiologia e Banca Biologica
ITALIEN
TOSCANA
PISA
Tuscan Registry of Rare Diseases
Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR
Fondazione Toscana Gabriele Monasterio
ITALIEN
VENETO
PADOVA
Rare Diseases Registry - Veneto Region
Azienda Ospedaliera di Padova
Coordinamento Malattie Rare Regione del Veneto
NIEDERLANDE
Utrecht
NIEUWEGEIN
Biobank of Interstitial Lung Diseases (DNA/serum/plasma/BAL fluid)
St. Antonius Ziekenhuis, locatie Nieuwegein
Longcentrum
OSTERREICH
STEIERMARK
GRAZ
Hautkrebssyndrom-Register Graz
Medizinische Universität Graz
Universitätsklinik für Dermatologie und Venerologie
SCHWEDEN
Region Skåne
LUND
CXCR4base: Mutation registry for WHIM syndrome (warts, hypogammaglobulinemia, immunodeficiency, and myelokathexis)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
IFNGR1base: Mutation registry for IFN gamma 1-receptor deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
IFNGR2base: Mutation registry for IFN gamma 2-receptor deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
IL12Bbase: Mutation registry for Interleukin-12 (IL-12) p40 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
IL12RB1base: Mutation registry for Interleukin-12 receptor á1 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
IRAK4base: Mutation registry for IRAK4 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
STAT1base: Mutation registry for STAT1 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
TMC6base: Mutation registry for Epidermodysplasia verruciformis (previously known as EVER1base)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
TMC8base: Mutation registry for Epidermodysplasia verruciformis (previously known as EVER2base)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
TLR3base: Mutation registry for Influenza-associated encephalopathy
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
UNC93B1base: Mutation registry for UNC93B deficiency (Herpes simplex encephalitis)
Lunds Universitet
Department of Experimental Medical Science
SCHWEIZ
Suisse Alémanique
BASEL
IRASPEN Registry - International Rare and Severe Psoriasis Expert Network
Universitätsspital Basel
IRASPEN Registry
SCHWEIZ
Suisse Alémanique
BERN
Schweizer Register für seltene Krankheiten (SRSK)
Institute of Social and Preventive Medicine (ISPM)
SCHWEIZ
Suisse Alémanique
ZÜRICH
Schweizer Register für seltene Krankheiten (SRSK)
Universitäts - Kinderspital Zürich - Eleonorenstiftung
Abteilung für Stoffwechselkrankheiten
SPANIEN
Andalucía
SEVILLA
Registry for rare diseases in Andalusia (Spain)
Junta de Andalucía. Consejería de Salud y Bienestar Social
Subdirección Técnica Asesora de Gestión de la Información
SPANIEN
Aragón
ZARAGOZA
Rare disease registry of Aragon (Spain)
Gobierno de Aragón. Departamento de Sanidad
Servicio de Evaluación y Acreditación Sanitaria
SPANIEN
Cantabria
SANTANDER
Population registry of rare diseases and congenital anomalies of Cantabria (Spain)
Gobierno de Cantabria. Consejería de Sanidad y Servicios Sociales
Servicio de Atención Sanitaria
SPANIEN
Comunidad Valenciana
VALENCIA
SIER-CV: Information System on rare diseases in Valencian Community (Spain)
Generalitat Valenciana. Conselleria de Sanitat Universal i Salut Pública
Servicio de Estudios Epidemiológicos y Vigilancia de Enfermedades No Transmisibles
SPANIEN
Extremadura
MÉRIDA
Registry for rare diseases in Extremadura (Spain)
Junta de Extremadura. Servicio Extremeño de Salud
Subdirector de Epidemiología
SPANIEN
Galicia
LUGO
REPA: Spanish registry of alveolar proteinosis integrated in the Rare Diseases Patient Registry ISCIII (RePER)
Hospital Universitario Lucus Augusti
Servicio de Neumología
SPANIEN
Galicia
SANTIAGO DE COMPOSTELA
RERGA: Registry for rare diseases in Galicia (Spain)
Servicio Gallego de Salud
Servicio de Atención Hospitalaria
SPANIEN
Madrid
MADRID
RePER: Rare Diseases Patient Registry
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
SPANIEN
Madrid
MADRID
REPA: Spanish registry of alveolar proteinosis integrated in the Rare Diseases Patient Registry ISCIII (RePER)
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
SPANIEN
Murcia
MURCIA
SIERrm: Information System on rare diseases in the Region of Murcia (Spain)
Región de Murcia. Consejería de Sanidad y Política Social
Servicio de Planificación y Financiación Sanitaria
SPANIEN
Navarra
PAMPLONA
RERNA: Population-based Rare Disease Registry of Navarre (Spain)
Instituto de Salud Pública y Laboral de Navarra
Observatorio de la Salud Comunitaria
SPANIEN
País Vasco
BARAKALDO
Basque Biobank
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco
SPANIEN
País Vasco
VITORIA-GASTEIZ
Rare Diseases Registry of the Basque Country
Gobierno Vasco. Departamento de Salud
Registro de Enfermedades Raras de la Comunidad Autónoma de Euskadi
VEREINIGTE STAATEN
South Dakota
SIOUX FALLS
CORDS Registry: Coordination of Rare Diseases at Sanford Registry
Sanford Research
Standford Research
VEREINIGTE STAATEN
Washington
BETHESDA
The NIH/NCATS GRDR® Program
NCATS National Institute of Health
BELGIEN
OOST-VLAANDEREN
GENT
Belgian severe chronic neutropenia patient registry - contributes to the Severe Chronic Neutropenia International Registry (SCNIR)
Kinderziekenhuis Prinses Elisabeth - UZ Gent
Pediatric Hematology-Oncology and Stem Cell Transplantation/Afdeling Hemato-oncologie en stamceltransplantatie kinderen
DEUTSCHLAND
Niedersachsen
HANNOVER
SCNIR - Neutropenie Zellbank
Medizinische Hochschule Hannover
SCNIR - Europazentrale
ESTLAND
Tartu
TARTU
Biobank of the Estonian Genome Centre
Institute of Genomics of University of Tartu
The Estonian Genome Centre
FRANKREICH
ILE-DE-FRANCE
PARIS
French severe chronic neutropenia certified patient registry - contributes to the SCN international registry (SCNIR)
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau
Service d'Hématologie - Oncologie pédiatrique
GRIECHENLAND
ATTIKI
ATHENS
Greek severe chronic neutropenia patient registry - contributes to the SCN international registry (SCNIR)
"Aghia Sophia" Children's Hospital
First department of paediatrics
IRLAND
County Dublin
DUBLIN
Irish severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
Children's Health Ireland @ Temple Street
Department of Haematology
ISRAEL
ISRAEL
PETAH TIKVA
Israelian severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
Schneider Children's Medical Center of Israel
Pediatric Hematology Unit
ITALIEN
LIGURIA
GENOVA
Telethon Network of Genetic Biobanks
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Centro di diagnostica genetica e biochimica delle malattie metaboliche
ITALIEN
LIGURIA
GENOVA
Genetic Biobank of the Human Genetics Laboratory (BGU-IGG)
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O.C. Laboratorio di Genetica Umana
ITALIEN
SICILIA
PALERMO
SCNIR: Italian severe chronic neutropenia registry - contributes to the SCN international registry
A.O. Civico - Di Cristina - Benfratelli
Oncoematologia Pediatrica
ITALIEN
VENETO
VERONA
RI-SDS: Italian Registry of Shwachman Diamond Syndrome
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento
Centro Fibrosi Cistica
MAROKKO
Rabat
RABAT
Moroccan National Genetic Database
Institut National d'Hygiène
Département de génétique médicale
NIEDERLANDE
Utrecht
UTRECHT
Dutch severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
UMC Utrecht - Universitair Medisch Centrum Utrecht
Polikliniek Hematologie
NORWEGEN
Østlandet
OSLO
Norwegian severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
Oslo University Hospital, Rikshospitalet
Barne- og ungdomsklinikken
NORWEGEN
Østlandet
OSLO
Norwegian registry on rare disorders
Oslo University Hospital, Ullevaal
Norsk register for sjeldne diagnoser
OSTERREICH
OBERÖSTERREICH
LINZ
Austrian severe chronic neutropenia patient registry - contributes to the SCN international registry (SCNIR)
Kepler Universitätsklinikum - Med Campus IV.
Zentrum für Medizinische Genetik
OSTERREICH
TIROL
INNSBRUCK
Austrian Country Node of the Human Variome Project (HVP)
Medizinische Universität Innsbruck
Zentrum Medizinische Genetik Innsbruck
POLEN
Wroclaw
WROCLAW
Polish severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
Ponadregionalne Centrum Onkologii Dzieciecej PRZYLADEK NADZIEI
Klinika Transplantacji Szpiku, Onkologii i Hematologii Dzieciecej
PORTUGAL
CENTRO
COIMBRA
Portuguese Severe Chronic Neutropenia Patient Registry - contributes to the SCN international registry (SCNIR)
Centro Hospitalar e Universitário de Coimbra, EPE - H. Pediátrico e H. Covões
Serviço de Hematologia Clínica
REPUBLIK KOREA
KOREA, REPUBLIC OF
SEOUL
Korean Mutation Database for Rare Diseases
Seoul National University Hospital
Molecular Diagnostics Laboratory
SCHWEDEN
Region Skåne
LUND
C2base: Mutation registry for C2 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
C5base: Mutation registry for C5 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
C6base: Mutation registry for C6 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
C7base: Mutation registry for C7 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
C8Bbase: Mutation registry for C8B deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
C9base: Mutation registry for C9 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
CEBPEbase: Mutation registry for Neutrophil-specific granule deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
CFHbase: Mutation registry for Factor H deficiency (previously known as HF1base)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
CFIbase: Mutation registry for Factor I deficiency (previously known as IFbase)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
CTSCbase: Mutation registry for Papillon-Lefevre syndrome
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
CYBAbase: Mutation registry for autosomal recessive chronic granulomatous disease (CGD), deficiency of p22phox
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
CYBBbase: Mutation registry for X-linked chronic granulomatous disease (previously known as X-CDGbase)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
ELA2base: Mutation registry for Cyclic and congenital neutropenia
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
LYSTbase: Mutation registry for Chediak-Higashi syndrome (previously known as CHS1base)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
MPObase: Mutation registry for Myeloperoxidase deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
NCF1base: Mutation registry for autosomal recessive chronic granulomatous disease (CGD), deficiency of p47phox
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
NCF2base: Mutation registry for autosomal recessive chronic granulomatous disease (CGD), deficiency of p67phox
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
RAC2base: Mutation registry for Neutrophil immunodeficiency syndrome
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
SBDSbase: Mutation registry for Shwachman-Diamond syndrome
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
C1QAbase: Mutation registry for C1QA polypeptide deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
C1QBbase: Mutation registry for C1QB polypeptide deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
C1QCbase: Mutation registry for C1QC polypeptide deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
C1Sbase: Mutation registry for C1s deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
CD59base: Mutation registry for CD59 deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
CFDbase: Mutation registry for Factor D deficiency
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Stockholm
HUDDINGE
Swedish severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
Karolinska Institutet
Department of Medicine, (MedH)
SERBIA
Serbia
BELGRADE
Serbian severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
Clinical Center of Serbia
Institute of Haematology
SPANIEN
Comunidad Valenciana
VALENCIA
CIBERER Biobank (Biobank of rare diseases)
IIS La Fe - Instituto de Investigación Sanitaria La Fe
Grupo de investigación en biomedicina molecular, celular y genómica
SPANIEN
Comunidad Valenciana
VALENCIA
CIBERER Biobank (Biobank of rare diseases)
INCLIVA - Facultad de Medicina de la Universidad de Valencia
Grupo de investigación en fisiopatología celular y orgánica del estrés oxidativo
SPANIEN
Madrid
MADRID
Spanish Severe Chronic Neutropenia Registry - contributes to the SCN international registry (SCNIR)
Hospital Universitario La Paz
Servicio de Hemato-Oncología pediátrica
SPANIEN
Madrid
MADRID
BioNER: Biobank of the Institute of Rare Diseases Research/Institute of Health Carlos III
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
TSCHECHISCHE REPUBLIK
Hradec Kralove
HRADEC KRÁLOVÉ
Czech severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
Fakultní nemocnice Hradec Králové - CHU Hradec Králové
Oddeleni klinicke hematolgie - Department of clinical hematology
TURKEI
TURKEY
ANKARA
Turkish severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
Ankara University - Faculty of medicine
Department of Pediatric Immunology-Allergy
VEREINIGTES KONIGREICH
Cambridgeshire
CAMBRIDGE
National Congenital Anomaly and Rare Disease Registration Service (NCARDRS)
Public Health England (PHE)
NCARDRS
VEREINIGTES KONIGREICH
Greater London
LONDON
English severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
University College London Hospitals, NHS Foundation Trust
Haematology and oncology department
VEREINIGTES KONIGREICH
West Yorkshire
LEEDS
English severe chronic neutropenia registry - contributes to the SCN international registry (SCNIR)
St James's University Hospital
Paediatric Day Hospital
DEUTSCHLAND
Nordrhein-Westfalen
MÜNSTER
Neuro-Herz-Register: Register für Patienten mit Herzbeteiligungen bei neuromuskulären Erkrankungen
Universitätsklinikum Münster
Herz-MRT-Zentrum
PORTUGAL
NORTE
PORTO
MitoBreak: The mitochondrial DNA breakpoints database.
CIIMAR - Interdisciplinary Centre of Marine and Environmental Research
SCHWEDEN
Region Skåne
LUND
AP3B1base: Mutation registry for Hermansky-Pudlak syndrome 2
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
GFI1base: Mutation registry for SCN and NI-CINA
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
ITGB2base: Mutation registry for Leukocyte adhesion deficiency I (LAD-I)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
RAB27Abase: Mutation registry for Griscelli syndrome, type 2 (GS2)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
SLC35C1base: Mutation registry for Leucocyte adhesion deficiency I I (LAD-II) (previously known as FUCT1base)
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
TAZbase: Mutation registry for Barth syndrome
Lunds Universitet
Department of Experimental Medical Science
SCHWEDEN
Region Skåne
LUND
MAPBPIPbase: Mutation registry for Endosomal adaptor protein p14 deficiency
Lunds Universitet
Department of Experimental Medical Science
DEUTSCHLAND
Rheinland-Pfalz
MAINZ
Deutsches Kinderkrebsregister (Eingebunden in das ACCIS-Projekt: Automated Childhood Cancer Information System, Mitglied von IACR und ENCR)
Institut für Medizinische Biometrie, Epidemiologie und Informatik (IMBEI)
Deutsches Kinderkrebsregister am IMBEI
SCHWEDEN
Region Skåne
LUND
HAX1base: Mutation registry for Severe congenital neutropenia (Kostmann disease)
Lunds Universitet
Department of Experimental Medical Science
Netzwerke für Register und Biobanken
DEUTSCHLAND
Baden-Württemberg
FREIBURG
ESID: Europäisches Patientenregister für primäre Immundefekte
CCI am Universitätsklinikum Freiburg
ESID-Registry
ITALIEN
LIGURIA
GENOVA
EUROFEVER: PReS European network of registries for autoinflammatory diseases in childhood
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie
DEUTSCHLAND
Niedersachsen
HANNOVER