Suche Register/Biobank
Weitere Suchoptionen
64 Ergebnis(se)
Förderung durch ein IRDiRC-Mitglied = 
ERN-Mitglied = 
Register und Biobanken
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
HAE-registry: European hereditary angioedema patient registry
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
English hereditary angioedema patient registry - part of the HAE European registry
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROSCA-R: Europäisches SCA Register für Spinozerebelläre Ataxien
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Infevers : The registry of Hereditary Auto-inflammatory Disorders Mutations
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
SYRENE: Rett syndrome network - French database of clinical and genetic aspects of Rett syndrome
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ENRAH: European alternating hemiplegia and rare epilepsies registry in childhood
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROPAC: the European registry of hereditary pancreatitis and familial pancreatic cancer
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUTOS: Europäisches Patienten-Register für chronisch-myeloische Leukämie (Kooperation von European LeukemiaNet und Novartis Europe)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
OVCAD: Charité Internationale Tumorbank für Ovarkarzinome (TOC)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EURADRENAL: European patient registry on autoimmune Addison's disease (sera, DNA and RNA)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ENRAH: Belgian contribution to European registry for alternating hemiplegia in childhood [Terminated]
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
eurIPFreg: Europäisches Register für idiopathische pulmonale Fibrose
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
eurIPFbank: Europäische Biobank für idiopathische pulmonoale Fibrose
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUNEFRON: registry of the European network for the study of orphan nephropathies
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EURODSD: European disorders of sexual development registry
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
MEFOPA-Register für Patienten mit seltenen vererbten Formen der Parkinson Krankheit -terminated-
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROFA - EFACT: Europäisches Register für Friedreich-Ataxie
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
eTumour: Web accessible MR decison support system for brain tumour diagnosis and pronosis, incorporating in vivo and ex vivo genomic and metabolomic data
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
MOLDIAG-PACA: biobank of pancreatic cancer
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EURADRENAL: European biobank on autoimmune Addison's disease (sera, DNA and RNA)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROSCA-R: Europäisches SCA Biobank für Spinozerebelläre Ataxien
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
HUE-MAN patient registry on alpha mannosidosis
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
HUE-MAN mutation registry on alpha mannosidosis
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
HUE-MAN biobank on alpha mannosidosis
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROFA - EFACT: Europäisches Biobank für Friedreich-Ataxie
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROGLYCANET - International patient registry and cohort for congenital disorders of glycosylation
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ENSAT: European Network for the Study of Adrenal Tumours
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
PHARMACHILD patient registry: Long-term pharmacovigilance for adverse effects in childhood arthritis, focusing on immune modulatory drugs (part of PRINTO network)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ChILD-EU Database and Observational Study; European Management Platform for Childhood Interstitial Lung Diseases
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EURO WILSON: Creating a European Clinical Database and designing randomised controlled clinical trials for Wilson disease - UK
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
TIRCON: Weltweites Patientenregister für Patienten mit NBIA
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Estonian Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes - contribuiting to EURO-WABB
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
French Disease Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes - contributes to EURO-WABB
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
International Niemann-Pick Disease Registry
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Biobank für Patienten mit NBIA - Teilprojekt TIRCON
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Gaucher disease registry model
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Leukofrance database and biobank
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Motor Function Measure database (Neuromuscular Diseases)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
European LeukoDataBase
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Membranous Nephropathy Registry
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
DMD / BMD Italy Patient Registry
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Biobank Sjögren Syndrome (DNA/whole blood/serum/tissue/saliva/tears) - Part of RESULT: REgistry of Sjögren syndrome in UMCG: a LongiTudinal study
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EuroMyositis registry
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERN [ERN-LUNG] : REGISTRY WAREHOUSE - RD Registry Data Warehouse
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERN [EuroBloodNet] - ENROL: European Rare Blood Disorders Platform
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
I-DSD: International Disorders of Sex Development registry - Flanders contribution (Ghent university hospital)
European Commission
DG Research - Directorate General for Research
Netzwerke für Register und Biobanken
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EURADRENAL: pathophysiology and natural course of autoimmune adrenal failure in Europe (registries)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
TREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (registries)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
BNE: BRAINNET EUROPE II (Network of European Brain and Tissue Banks for Clinical and Basic Neuroscience)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROCARE CF: European cystic fibrosis registry
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ECARUCA: European Cytogeneticists Association Register of Unbalanced Chromosome Aberrations
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
European Platform for Rare Disease Registries (EPIRARE): Building Consensus and Synergies for the EU Registration of Rare Disease Patients
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROWILSON: European network on Wilson disease (registries)
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROCRINE: European Surgical Registry for Rare Endocrine Tumours
European Commission
DG Research - Directorate General for Research
BELGIEN
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Internationales Register für Primäre Ziliendyskinesie
European Commission
DG Research - Directorate General for Research
DEUTSCHLAND
Bayern
MÜNCHEN
BNE: BRAINNET EUROPE II (Network of European Brain and Tissue Banks for Clinical and Basic Neuroscience)
Zentrum für Neuropathologie und Prionforschung (ZNP)
Zentrum für Neuropathologie und Prionforschung der LMU München
DEUTSCHLAND
Nordrhein-Westfalen
MÜNSTER
Internationales Register für Primäre Ziliendyskinesie
Universitätsklinikum Münster
Klinik für Kinder- und Jugendmedizin - Allgemeine Pädiatrie
ITALIEN
LAZIO
ROMA
European Platform for Rare Disease Registries (EPIRARE): Building Consensus and Synergies for the EU Registration of Rare Disease Patients
ISS - Istituto Superiore di Sanità
Centro Nazionale Malattie Rare
NORWEGEN
Vestlandet
BERGEN
EURADRENAL: pathophysiology and natural course of autoimmune adrenal failure in Europe (registries)
Haukeland University Hospital
SCHWEDEN
Region Skåne
LUND
EUROCRINE: European Surgical Registry for Rare Endocrine Tumours
Lunds Universitet
Institutionen för kliniska vetenskaper
VEREINIGTES KONIGREICH
South Yorkshire
SHEFFIELD
EUROWILSON: European network on Wilson disease (registries)
The Sheffield Children's Hospital
Sheffield Children's Hospital (Division of Child Health)
VEREINIGTES KONIGREICH
Tayside
DUNDEE
EUROCARE CF: European cystic fibrosis registry
Ninewells Hospital and Medical School
Division Of Cardiovascular & Diabetes Medicine
VEREINIGTES KONIGREICH
Tyne & Wear
NEWCASTLE UPON TYNE
TREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (registries)
Newcastle upon Tyne Hospitals NHS Trust
John Walton Muscular Dystrophy Research Centre, Institute of Genetic Medicine
VEREINIGTES KONIGREICH
Wiltshire
SALISBURY