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Funded by an IRDiRC member =

Registries and Biobanks

FRANCE

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

French cohort for auto-inflammatory diseases
CHU Paris-Sud - Hôpital de Bicêtre
Service de Rhumatologie pédiatrique

FRANCE

OCCITANIE
MONTPELLIER

Infevers : The registry of Hereditary Auto-inflammatory Disorders Mutations
CHRU de Montpellier - Hôpital Arnaud de Villeneuve
Laboratoire de génétique des maladies rares et autoinflammatoires

GERMANY

Nordrhein-Westfalen
KREFELD

Funded by an IRDiRC memberGerman AID (Autoinflammatory disorders) registry - subproject AID-NET
HELIOS Klinikum Krefeld
Zentrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
MÜNSTER

Funded by an IRDiRC memberAID-NET : Biobank (DNA/RNA/serum) for autoinflammatory syndromes
Universitätsklinikum Münster
Klinik für Kinder- und Jugendmedizin - Pädiatrische Rheumatologie und Immunologie

ITALY

LIGURIA
GENOVA

EUROFEVER: European registry for autoinflammatory diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie

FRANCE

ILE-DE-FRANCE
PARIS

Funded by an IRDiRC memberNational cohort for the evaluation of individual burden in the course of rare skin diseases
CHU Paris - Hôpital Necker-Enfants Malades
Centre MAGEC (MAladies rares Génétiques à Expression Cutanée)

GERMANY

Berlin
BERLIN

Core documentation of children and adolescens with rheumatic diseases
Deutsches Rheuma-Forschungszentrum Berlin
Forschungsbereich Epidemiologie