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Funded by an IRDiRC member =

Registries and Biobanks

ITALY

UMBRIA
PERUGIA

Italian Biobanks patients Addison's Disease
Università degli Studi di Perugia
Dipartimento di Scienze Farmaceutiche

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EURADRENAL: European patient registry on autoimmune Addison's disease (sera, DNA and RNA)
Institute of Genetic Medicine - International Centre for Life
Endocrine and Renal Genetics

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

EURADRENAL: European biobank on autoimmune Addison's disease (sera, DNA and RNA)
Institute of Genetic Medicine - International Centre for Life
Endocrine and Renal Genetics

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Registre Central des Maladies Rares / Centraal Register Zeldzame Ziekten
Sciensano
Health Services Research - Rare Diseases

FRANCE

ILE-DE-FRANCE
PARIS

French National Registry for Rare Diseases (BNDMR)
AP-HP Campus Picpus - Département WIND (Web Innovation Données)
Banque Nationale de Données Maladies Rares (BNDMR)

FRANCE

ILE-DE-FRANCE
PARIS

Funded by an IRDiRC memberERN [Endo-ERN] - EuRRECa: European Registries for Rare Endocrine Conditions
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
Délégation à la Recherche Clinique et à l'Innovation de l'AP-HP

Networks of registries and biobanks