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261 Result(s)
Funded by an IRDiRC member = 
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Registries and Biobanks
AUSTRIA
WIEN
WIEN
Austrian cancer registry - contributes to the RARECARE project
Österreichisches Krebsregister
ESTONIA
Tallinn
TALLINN
Estonian cancer registry - contributes to the RARECARENet project
National Institute for Health Development
Estonian Cancer Registry
FINLAND
Finland
HELSINKI
Finnish cancer registry - contributes to the RARECARE project
Syöpätautien tilastollinen ja epidemiologinen tutkimuslaitos
Finnish Cancer Registry
GERMANY
Baden-Württemberg
HEIDELBERG
Epidemiological cancer registry Baden-Württemberg
Epidemiologisches Krebsregister am DKFZ Heidelberg
Epidemiologisches Krebsregister Baden-Württemberg
GERMANY
Bayern
MÜNCHEN
MCR - Munich Cancer Registry - contributes to ENCR (European Network of Cancer Registries) and IACR (International Association of Cancer Registries)
LMU Klinikum der Universität München - Campus Großhadern
Tumorregister München
GERMANY
Bayern
NÜRNBERG
Bavarian Cancer Registy - contributes to ENCR (European Network of Cancer Registries) and IACR (International Association of Cancer Registries)
Registerstelle des Krebsregisters Bayern
GERMANY
Berlin
BERLIN
Common cancer registry of Berlin, Brandenburg, Mecklenburg-Western Pomerania, Saxony-Anhalt and the free states Saxony and Thuringia
Gemeinsames Krebsregister (GKR)
Registerstelle des Gemeinsamen Krebsregisters (GKR)
GERMANY
Bremen
BREMEN
Bremen cancer registry
Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS)
Registerstelle des Bremer Krebsregisters
GERMANY
Hamburg
HAMBURG
Hamburg cancer registry - contributes to ECIS (European Cancer Information System) and GCO (Global Cancer Observatory)
Behörde für Wissenschaft, Forschung, Gleichstellung und Bezirke
Hamburgisches Krebsregister
GERMANY
Rheinland-Pfalz
MAINZ
German childhood cancer registry (Partner of ACCIS: Automated Childhood Cancer Information System, Member of IACR and ENCR)
Institut für Medizinische Biometrie, Epidemiologie und Informatik (IMBEI)
Deutsches Kinderkrebsregister am IMBEI
GERMANY
Saarland
SAARBRÜCKEN
Saarland Cancer Registry - contributes to ECIS (European Cancer Information System), IARC (International Agency for Research on Cancer) and RARECARE
Ministerium für Arbeit, Soziales, Frauen und Gesundheit
Krebsregister Saarland
GERMANY
Schleswig-Holstein
KIEL
German central children tumor registry
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel
GERMANY
Schleswig-Holstein
LÜBECK
Schleswig-Holstein cancer registry
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein
NORWAY
Østlandet
OSLO
Norwegian cancer registry - contributes to the RARECARE project
Institute of Population-Based Cancer Research
Cancer Registry of Norway
POLAND
Kielce
KIELCE
Kielce cancer registry - contributes to the RARECARE project
Holycross Cancer Centre
Department of Cancer Control & Epidemiology
POLAND
Kraków
KRAKOW
Cracow cancer registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie, Oddzial w Krakowie
Department of Epidemiology
POLAND
Warszawa
WARSZAWA
Mazovian Cancer Registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie
Cancer Center and Institute of Oncology
PORTUGAL
NORTE
PORTO
Tumour bank
Centro Hospitalar Universitário de S. João, EPE
Serviço de Anatomia Patológica
PORTUGAL
SUL
LISBOA
Registo Oncológico Regional Sul - contribui para o projeto RARECARE
Instituto Português de Oncologia de Lisboa Francisco Gentil, EPE
Registo Oncológico Regional Sul
SLOVENIA
SLOVENIA
LJUBLJANA
Slovenian cancer registry - contributes to the RARECARE project
Institute of Oncology Ljubljana
Cancer Registry of Slovenia
SPAIN
Cataluña
ESPLUGUES DE LLOBREGAT
Pediatric Biobank for Research
Fundació Sant Joan de Déu - Institut de Recerca Sant Joan de Déu
Biobanco Pediátrico para la Investigación
SWEDEN
Region Stockholm
SOLNA
SBCR: Swedish Childhood Cancer Registry
Astrid Lindgrens Barnsjukhus
Astrid Lindgren Children's Hospital
AUSTRIA
STEIERMARK
GRAZ
Bone and soft tissue tumor registry Graz
Medizinische Universität Graz
Universitätsklinik für Orthopädie und Traumatologie
AUSTRIA
WIEN
WIEN
Austrian brain tumor registry
Allgemeines Krankenhaus der Stadt Wien
Abteilung für Neuropathologie und Neurochemie
BELGIUM
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EuRRECa: European Registries for Rare Endocrine Conditions - Belgian contribution (HUDERF)
Hôpital Universitaire des Enfants Reine Fabiola - HUDERF
Unité d'endocrinologie - HUDERF
BELGIUM
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
CRRD: Central Registry of Rare Diseases
Sciensano
Health Services Research - Rare Diseases
FRANCE
AUVERGNE-RHONE-ALPES
PIERRE-BENITE
French national patients registry on rare peritoneal tumor RENAPE
CHU de Lyon HCL - GH Sud
Service de chirurgie digestive et endocrinienne
FRANCE
BOURGOGNE-FRANCHE-COMTE
DIJON
Breast and other gynecological cancers registry of Côte-d'Or
CLCC Georges François Leclerc
Centre de Recherche Clinique (CRC)
FRANCE
BOURGOGNE-FRANCHE-COMTE
DIJON
RBCD - Registry for digestive cancers in Burgundy
Centre de Recherche Inserm UMR866 Lipides, Nutrition, Cancer - LNC
Epidémiologie et recherche clinique en oncologie digestive
FRANCE
BOURGOGNE-FRANCHE-COMTE
DIJON
RHEMCO - Côte d'Or registry of hematological malignancies
Université de Bourgogne
Faculté de Médecine
FRANCE
BRETAGNE
BREST
Digestive Tumor Registry of Finistère
CHU de Brest - Hôpital de la Cavale Blanche
Service d'Hépatologie Gastro-Entérologie
FRANCE
NORMANDIE
CAEN
Basse Normandie registry of hematological malignancies
CHU de Caen - Hôpital de la Côte de Nacre
Laboratoire d'hématologie biologique
FRANCE
NORMANDIE
CAEN
Registry of digestive tumors in Calvados
Centre François Baclesse
Unité Anticipe (Inserm U1086): Unité de Recherche Interdisciplinaire pour la Prévention et le Traitement des Cancers
FRANCE
NOUVELLE AQUITAINE
BORDEAUX
Gironde registry of hematological malignancies
CLCC Institut Bergonié
Service d'information médicale et de surveillance épidémiologique
GERMANY
Baden-Württemberg
STUTTGART
CWS-SoTiSaR: A registry for soft tissue sarcoma and other soft tissue tumours in children, adolescents, and young adults
Klinikum Stuttgart - Standort Olgahospital
Pädiatrie 5 - Onkologie, Hämatologie und Immunologie
GERMANY
Baden-Württemberg
TÜBINGEN
STEP Registry: Registry for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen
Abteilung für allgemeine Pädiatrie, Hämatologie/Onkologie
GERMANY
Nordrhein-Westfalen
BONN
Brain-Net - brain tissue bank Bonn (epilepsy, brain tumor)
Universitätsklinikum Bonn (AöR)
Hirntumor-Referenzzentrum der DGNN
GERMANY
Nordrhein-Westfalen
DORTMUND
STEP Registry: Registry for rare tumors in children and adolescents
Klinikum Dortmund gGmbH - Klinikzentrum Mitte
Klinik für Kinder- und Jugendmedizin
GERMANY
Nordrhein-Westfalen
DÜSSELDORF
CNS-TuBa Düsseldorf: Interdisciplinary Tumor Tissue Bank of the Institute of Neuropathology and the Department of Neurosurgery of the University Hospital Düsseldorf
Universitätsklinikum Düsseldorf
Hirntumor-Referenzzentrum der DGNN
GERMANY
Nordrhein-Westfalen
KÖLN
Tumor bank for embryonal tumors
Universitätsklinikum Köln
Pädiatrische Onkologie und Hämatologie
ITALY
LAZIO
ROMA
RNMR: Italian National Rare Diseases Registry
ISS - Istituto Superiore di Sanità
Centro Nazionale Malattie Rare
ITALY
TOSCANA
PISA
Tuscan Registry of Rare Diseases
Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR
Fondazione Toscana Gabriele Monasterio
ITALY
VENETO
PADOVA
Rare Diseases Registry - Veneto Region
Azienda Ospedaliera di Padova
Coordinamento Malattie Rare Regione del Veneto
NETHERLANDS
Gelderland
NIJMEGEN
AGORA: biobank (DNA) for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum
Afdeling Kinderurologie
NETHERLANDS
Gelderland
NIJMEGEN
AGORA: biobank (DNA) for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum
Afdeling Health Evidence
NETHERLANDS
Noord-Holland
AMSTERDAM
Biobank Head and Neck Cancer (tumor biopsies, plasma and blood cells)
Amsterdam UMC, locatie VUmc
Afdeling KNO Hoofd-Halschirurgie
SPAIN
Andalucía
SEVILLA
Registry for rare diseases in Andalusia (Spain)
Junta de Andalucía. Consejería de Salud y Bienestar Social
Subdirección Técnica Asesora de Gestión de la Información
SPAIN
Aragón
ZARAGOZA
Rare disease registry of Aragon (Spain)
Gobierno de Aragón. Departamento de Sanidad
Servicio de Evaluación y Acreditación Sanitaria
SPAIN
Cantabria
SANTANDER
Population registry of rare diseases and congenital anomalies of Cantabria (Spain)
Gobierno de Cantabria. Consejería de Sanidad y Servicios Sociales
Servicio de Atención Sanitaria
SPAIN
Comunidad Valenciana
VALENCIA
SIER-CV: Information System on rare diseases in Valencian Community (Spain)
Generalitat Valenciana. Conselleria de Sanitat Universal i Salut Pública
Servicio de Estudios Epidemiológicos y Vigilancia de Enfermedades No Transmisibles
SPAIN
Extremadura
MÉRIDA
Registry for rare diseases in Extremadura (Spain)
Junta de Extremadura. Servicio Extremeño de Salud
Subdirector de Epidemiología
SPAIN
Galicia
SANTIAGO DE COMPOSTELA
RERGA: Registry for rare diseases in Galicia (Spain)
Servicio Gallego de Salud
Servicio de Atención Hospitalaria
SPAIN
Madrid
MADRID
RePER: Rare Diseases Patient Registry
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
SPAIN
Murcia
MURCIA
SIERrm: Information System on rare diseases in the Region of Murcia (Spain)
Región de Murcia. Consejería de Sanidad y Política Social
Servicio de Planificación y Financiación Sanitaria
SPAIN
Navarra
PAMPLONA
RERNA: Population-based Rare Disease Registry of Navarre (Spain)
Instituto de Salud Pública y Laboral de Navarra
Observatorio de la Salud Comunitaria
SPAIN
País Vasco
BARAKALDO
Basque Biobank
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco
SPAIN
País Vasco
VITORIA-GASTEIZ
Rare Diseases Registry of the Basque Country
Gobierno Vasco. Departamento de Salud
Registro de Enfermedades Raras de la Comunidad Autónoma de Euskadi
UNITED KINGDOM
West Midlands
BIRMINGHAM
CEHRB - Central England Haemato-Oncology Research Biobank
Birmingham Women's NHS Foundation Trust
Birmingham Women's and Children's
UNITED KINGDOM
West Midlands
BIRMINGHAM
CEHRB - Central England Haemato-Oncology Research Biobank
Birmingham Women's NHS Foundation Trust
West Midlands Regional Genetics Laboratory (part of the West Midlands Regional Genetics Service)
UNITED STATES
Massachusetts
BOSTON
Rare Cancer Genetics Registry (RCGR)
Massachusetts General Hospital
UNITED STATES
South Dakota
SIOUX FALLS
CORDS Registry: Coordination of Rare Diseases at Sanford Registry
Sanford Research
Standford Research
AUSTRALIA
Victoria
PARKVILLE
ENSAT registry: European Network for the Study of Adrenal Tumours
The University of Melbourne
Melbourne eResearch Group (MEG)
AUSTRIA
SALZBURG
SALZBURG
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): Head and neck tumor registry Austria
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität
Universitätsklinik für Innere Medizin III
AUSTRIA
WIEN
WIEN
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): ALL-Registry and Biobank
Allgemeines Krankenhaus der Stadt Wien
Klinische Abteilung für Hämatologie und Hämostaseologie
AUSTRIA
WIEN
WIEN
Central data registry of the European Competence Network on Mastocytosis (ECMN)
Allgemeines Krankenhaus der Stadt Wien
Klinische Abteilung für Hämatologie und Hämostaseologie
AUSTRIA
WIEN
WIEN
Austrian Bone Marrow Donor Registry
Österreichische Knochenmarkspendezentrale
Fonds Österreichisches Stammzellregister
DENMARK
Hovedstaden
COPENHAGEN
Nordic Database for Rare Diseases
Rigshospitalet
Department of Clinical Genetics and Paediatrics
FRANCE
AUVERGNE-RHONE-ALPES
BRON
Regional registry of thyroid cancers in Rhône-Alpes
CHU de Lyon HCL - GH Est-Hôpital Neurologique P. Wertheimer
Service de médecine nucléaire
FRANCE
CENTRE-VAL DE LOIRE
TOURS
NF-France: genotype/phenotype database on neurofibromatosis 1
CHRU de Tours - Hôpital Clocheville
Pôle Enfants - Neuropédiatrie et handicaps
FRANCE
GRAND-EST
REIMS
Marne-Ardennes thyroid cancer registry
CLCC Institut Jean Godinot
Consultation Thyroïde / Médecine nucléaire
FRANCE
GRAND-EST
VANDOEUVRE-LÈS-NANCY
RNTSE - National registry of children solid tumors
Faculté de médecine de Nancy
Registre national des tumeurs solides de l'enfant
FRANCE
ILE-DE-FRANCE
CRÉTEIL
NF-France: genotype/phenotype database on neurofibromatosis 1
Hôpitaux Universitaires Henri Mondor
Service de dermatologie
FRANCE
ILE-DE-FRANCE
VILLEJUIF
RNHE - National registry of pediatric hematological malignancies
GHU Paris-Sud - Hôpital Paul Brousse
Epidémiologie environnementale des cancers
FRANCE
NOUVELLE AQUITAINE
BORDEAUX
GFELC registry: French primary cutaneous lymphoma registry
CHU de Bordeaux - Hôpital Saint André
Unité de Dermatologie Cancérologie
FRANCE
NOUVELLE AQUITAINE
BORDEAUX
Primary central nervous system tumors registry of Gironde
Université Bordeaux 2 - Victor Ségalen
Institut de Santé Publique, d'Épidémiologie et de Développement
FRANCE
PAYS DE LA LOIRE
ANGERS
GTE: French registry of endocrine tumors
CHU d'Angers
Département d'endocrinologie, diabétologie et nutrition
GERMANY
Baden-Württemberg
TÜBINGEN
ADOReg : Nationwide prospective registry for health services research in dermatologic oncology - sub registry malignant melanoma
Universitäts-Hautklinik
GERMANY
Baden-Württemberg
TÜBINGEN
ADOReg : Nationwide prospective registry for health services research in dermatologic oncology - sub registry Cutaneous Lymphoma
Universitäts-Hautklinik
GERMANY
Baden-Württemberg
TÜBINGEN
ADOReg : Nationwide prospective registry for health services research in dermatologic oncology - sub registry Merkel cell carcinoma
Universitäts-Hautklinik
GERMANY
Bayern
MÜNCHEN
Child liver tumor registry
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital
Kinderchirurgische Klinik und Poliklinik
GERMANY
Bayern
REGENSBURG
DÖSAK tumor registry for documentation of tumors of the face and jaws in germany, austria and switzerland
Universitätsklinikum Regensburg
Klinik und Poliklinik für Mund-, Kiefer- und Gesichtschirurgie
GERMANY
Hamburg
HAMBURG
NET-Registry: German Neuroendocrine Tumour Registry
Asklepios Kliniken Hamburg GmbH
Innere Medizin und Gastroenterologie
GERMANY
Hamburg
HAMBURG
German adrenal tumors registry
UKE - Universitätsklinikum Hamburg-Eppendorf
Praxis Prof. Dr. med. Wolfgang Saeger
GERMANY
Nordrhein-Westfalen
AACHEN
NPC-2016 - A multicenter registry for nasopharyngeal cancer in children, adolescents and young adults
Universitätsklinikum Aachen
Sektion für Pädiatrische Hämatologie, Onkologie und Stammzelltransplantation
GERMANY
Nordrhein-Westfalen
ESSEN
Retinoblastoma Genetics Website
Universitätsklinikum Essen
Institut für Humangenetik
GERMANY
Nordrhein-Westfalen
KÖLN
HerediCaRe - National register for the evaluation and improvement of risk-adapted prevention of hereditary breast and ovarian cancer
Zentrum für Familiären Brust- und Eierstockkrebs am Universitätsklinikum Köln
Deutsches Konsortium Familiärer Brust- und Eierstockkrebs - Koordination
GERMANY
Sachsen-Anhalt
MAGDEBURG
GPOH-MET Registry: Prospective, multicentre registry for the detection of malignant endocrine tumours in childhood and adolescence
Universitätsklinikum Magdeburg A.ö.R
Universitätskinderklinik
GERMANY
Schleswig-Holstein
KIEL
German Lymph Node Registry - tumor bank
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Sektion Hämatopathologie und Lymphknotenregister am Institut für Pathologie
HUNGARY
Dél-Dunántúl
PECS
Neurofibromatosis type 1 biobank
Clinical Center - University of Pécs
Department of Medical Genetics
IRELAND
County Dublin
DUBLIN
Irish ENS@T Biobank and Registry - contributes to ENS@T registry
Endocrinology Department, Beaumont Hospital
Adrenal Service
ITALY
EMILIA ROMAGNA
ADDRESS: NOT PROVIDED - IT
Registry of Neurofibromatosis
Institution: Information not provided - IT
ITALY
EMILIA ROMAGNA
BOLOGNA
Multiple Osteochondromas Registry - REM
Istituto Ortopedico Rizzoli - Centro di Ricerca e Poliambulatorio
Laboratorio di Genetica Molecolare - S.S.D. di Genetica Medica e Malattie Rare Ortopediche
ITALY
EMILIA ROMAGNA
BOLOGNA
Biorepsitory of tissue and blood samples, lymphocytes and DNA from patients affected by solitary/multiple osteochondroma and peripheral chondrosarcoma
Istituto Ortopedico Rizzoli - Centro di Ricerca e Poliambulatorio
Laboratorio di Genetica Molecolare - S.S.D. di Genetica Medica e Malattie Rare Ortopediche
ITALY
EMILIA ROMAGNA
BOLOGNA
BIOGEN: Diagnostic and research genetic Biobank
Istituto Ortopedico Rizzoli - Centro di Ricerca e Poliambulatorio
Laboratorio di Genetica Molecolare - S.S.D. di Genetica Medica e Malattie Rare Ortopediche
ITALY
EMILIA ROMAGNA
BOLOGNA
Registry of Ollier disease and Maffucci syndrome - ROM
Istituto Ortopedico Rizzoli - Centro di Ricerca e Poliambulatorio
Laboratorio di Genetica Molecolare - S.S.D. di Genetica Medica e Malattie Rare Ortopediche
ITALY
PUGLIA
SAN GIOVANNI ROTONDO
Genetic Biobank from patients with Williams-Beuren syndrome and other genomic disorders
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II
U.O.C. Genetica Medica
ITALY
TOSCANA
SIENA
Genetic Biobank of Siena
Azienda Ospedaliero Universitaria Senese - Policlinico Santa Maria alle Scotte
U.O.C. di Genetica Medica
ITALY
TOSCANA
SIENA
Italian retinoblastoma registry
Università degli Studi di Siena
Dipartimento di Pediatria, Ostetricia e Medicina della Riproduzione
ITALY
VENETO
PADOVA
North-east Italy registry of neurofibromatosis
Azienda Ospedaliera di Padova
U.O.C. Genetica ed Epidemiologia Clinica
NETHERLANDS
Zuid-Holland
ROTTERDAM
ENCORE Biobank for Neurodevelopmental Disorders (blood/saliva/skin biopsies)
Erasmus MC - Erasmus Medisch Centrum
Afdeling Neurowetenschappen
PORTUGAL
CENTRO
COIMBRA
Adrenal tumor national registry
Centro Hospitalar e Universitário de Coimbra, EPE - H. Universidade de Coimbra
Serviço de endocrinologia diabetes e metabolismo
PORTUGAL
CENTRO
COIMBRA
Central regional cancer patient registry
Instituto Português de Oncologia de Coimbra Francisco Gentil, EPE
Registo Oncológico Regional - Zona Centro
PORTUGAL
ILHAS
AÇORES
Açores regional cancer patient registry (RORA)
Centro de Oncologia dos Açores Prof Doutor José Conde
Registo Oncológico Regional dos Açores
PORTUGAL
NORTE
PORTO
North regional cancer registry (RORENO)
Instituto Português de Oncologia do Porto Francisco Gentil, EPE
Registo Oncológico Regional do Norte
PORTUGAL
NORTE
VILA NOVA DE GAIA
Vila Nova de Gaia regional cancer registry (ROG)
Centro Hospitalar de Vila Nova de Gaia Espinho, EPE
Registo de Cancro (ROG)
SPAIN
Asturias
OVIEDO
REGMEN: Spanish registry of multiple endocrine neoplasia, pheochromocitomas/paragangliomas
Hospital Universitario Central de Asturias
Servicio de Endocrinología y Nutrición
SPAIN
Castilla - León
SALAMANCA
National DNA Bank: Rare diseases sample collection
Centro de Investigación del Cáncer (USAL-CSIC)
Banco Nacional de ADN
SPAIN
Cataluña
BARCELONA
DNA repair biobank
IIB Sant Pau - Institut de Recerca de l'Hospital de la Santa Creu i Sant Pau
Servicio de análisis de fragilidad cromosómica
SPAIN
Madrid
MADRID
Spanish Academy of Dermatology and Venereology (AEDV) Registry of primary cutaneous lymphoma
Academia Española de Dermatología y Venereología
Unidad de investigación de la Fundación Academia Española de Dermatología y Venereología
SWEDEN
Region Skåne
LUND
BLMbase: Mutation registry for Bloom Syndrome
Lunds Universitet
Department of Experimental Medical Science
SWITZERLAND
Suisse Alémanique
BERN
Swiss Paediatric Renal Registry
Institute of Social and Preventive Medicine (ISPM)
SWITZERLAND
Suisse Alémanique
BERN
SwissNET - Registry for Neuroendocrine Tumours in Switzerland
Universitätsspital Inselspital
SwissNET - Registry for Neuroendocrine Tumours in Switzerland
UNITED KINGDOM
Edinburgh
EDINBURGH
Existing Breast Cancer Research Tissue Bank & Database: Edinburgh Breast Unit and Edinburgh Cancer Research Centre Breast Cancer specimen collection and database established prior to September 2006
Breakthrough Research Unit
Edinburgh Edinburgh Breast Unit
UNITED KINGDOM
Greater Manchester
MANCHESTER
VORTEX BIOBANK: Prospective sample collection for the VORTEX randomised radiotherapy trial in adults with extremity soft tissue sarcoma
School of Cancer and Enabling Sciences
Translational Radiobiology
AUSTRALIA
Victoria
MEKBOURNE
Lymphoma and Related Diseases Registry (LaRDR)
Monash University
Department of Epidemiology & Preventive Medicine
AUSTRIA
SALZBURG
SALZBURG
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): Austrian Registry on Hypomethylating Agents in Myeloid Neoplasms
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität
Universitätsklinik für Innere Medizin III
AUSTRIA
SALZBURG
SALZBURG
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): MBC-Registry (Metastatic breast cancer in Austria)
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität
Universitätsklinik für Innere Medizin III
BELGIUM
VLAAMS BRABANT
ZAVENTEM
DNET Registry: the Belgian Digestive Neuroendocrine Tumor registry - Contribution to the European Neuroendocrine Tumour Society (ENETS) Registry
BGDO (Belgian Group of Digestive Oncology)_ENETS Registry
Neuroendocrine Tumours Working group
FRANCE
AUVERGNE-RHONE-ALPES
BRON
UMD MEN1 (multiple endocrine neoplasis I) mutations database
CHU de Lyon HCL - GH Est
Unité Médicale de Génétique des Cancers et des Maladies Multifactorielles
FRANCE
ILE-DE-FRANCE
PARIS
MYELODYSPLASIC SYNDROMES AND SECONDARY CHEMICAL AND RADIO-INDUCED LEUKEMIA OBSERVATORY FROM GFM CENTRES - MDS Registry
GHU AP-HP Nord. Université de Paris - Hôpital Saint-Louis
Groupe Francophone des Myélodysplasies (GFM)
FRANCE
ILE-DE-FRANCE
PARIS
PROGENE - Cohort of men with prostate cancer/genetic markers
Groupe hospitalier AP-HP.6 - Hôpital Tenon
Centre expert Oncologie urologique et prostatique
FRANCE
ILE-DE-FRANCE
SAINT-CLOUD
UMD BRCA1 (Breast cancer 1, early onset) mutations database
CLCC Hôpital René Huguenin - Institut Curie
Laboratoire d'oncogénétique
FRANCE
ILE-DE-FRANCE
VILLEJUIF
French registry of adult lymphomas
GHU Paris-Sud - Hôpital Paul Brousse
Epidémiologie environnementale des cancers
FRANCE
NORMANDIE
CAEN
MESONAT- Multicenter national registry of pleural mesothelioma (qualified register)
CHU de Caen - Hôpital de la Côte de Nacre
Laboratoire d'Anatomie Pathologique et neuropathologie
FRANCE
NOUVELLE AQUITAINE
BORDEAUX
Aquitaine registry of mesothelioma
Université Bordeaux 2 - Victor Ségalen
Institut de Santé Publique, d'Épidémiologie et de Développement
FRANCE
OCCITANIE
MONTPELLIER
UMD VHL (von Hippel-Lindau tumor suppressor) mutations database
IURC - Institut Universitaire de Recherche Clinique
Laboratoire de génétique moléculaire
FRANCE
PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
LEA - Multicentric prospective cohort of children and adolescents malignant hemopathies
CHU de Marseille - Hôpital de la Timone
Evaluation des systèmes de soins et santé perçue
GERMANY
Baden-Württemberg
FREIBURG
Hilda biobank for children at the University Medical Center Freiburg - diagnostic and research on biomaterials of children and adolescents
Zentrum für Kinder- und Jugendmedizin Freiburg
Klinik für Pädiatrische Hämatologie und Onkologie
GERMANY
Baden-Württemberg
FREIBURG
Registry of the European Working Group (EWOG) of Myelodysplastic Syndromes (MDS) and Juvenile Myelomonocytic Leukemia (JMML) in childhood
Zentrum für Kinder- und Jugendmedizin Freiburg
Klinik für Pädiatrische Hämatologie und Onkologie
GERMANY
Baden-Württemberg
MANNHEIM
Register for rare myeloproliferative neoplasms
Universitätsmedizin Mannheim
III. Medizinische Klinik
GERMANY
Bayern
AUGSBURG
EU-RHAB: European Rhabdoid Tumor Registry
Universitätsklinikum Augsburg
Schwäbisches Kinderkrebszentrum
GERMANY
Bayern
WÜRZBURG
NKR: German adrenocortical carcinoma biobank
Zentrum Innere Medizin (ZIM)
Medizinische Klinik und Poliklinik I - Endokrinologie und Diabetologie
GERMANY
Bayern
WÜRZBURG
Registry for rare thyroid and parathyroid carcinoma
Zentrum Innere Medizin (ZIM)
Medizinische Klinik und Poliklinik I - Endokrinologie und Diabetologie
GERMANY
Berlin
BERLIN
OVCAD: Charité tumor bank ovarian cancer (TOC)
Charité - Universitätsmedizin Berlin (CVK)
Klinik für Gynäkologie mit Zentrum für onkologische Chirurgie (CVK)
GERMANY
Hamburg
HAMBURG
CPT-SIOP-Registry : International Registry for Choroid Plexus Tumors
UKE - Universitätsklinikum Hamburg-Eppendorf
Klinik und Poliklinik für Pädiatrische Hämatologie und Onkologie
GERMANY
Hamburg
HAMBURG
German pituitary tumors registry
UKE - Universitätsklinikum Hamburg-Eppendorf
Praxis Prof. Dr. med. Wolfgang Saeger
GERMANY
Mecklenburg-Vorpommern
ROSTOCK
National patient registry rare histiocytic disorders - contributes to the International Rare Histiocytic Disorders Registry (IRHDR)
Universitäts-Kinder- und Jugendklinik Rostock
Kinder- und Jugendklinik
GERMANY
Niedersachsen
HANNOVER
AML-BFM Register 2017: Registry for children and adolescents with acute myeloid leukemia
KPOH Geschäftsführung Hannover
Kompetenznetz Pädiatrische Onkologie und Hämatologie
GERMANY
Nordrhein-Westfalen
AACHEN
MPN Registry: German MPN Register and Biomaterial Bank for BCR-ABL1-negative myeloid neoplasias
Universitätsklinikum Aachen
Klinik für Onkologie, Hämatologie und Stammzelltransplantation (Med. Klinik IV)
GERMANY
Nordrhein-Westfalen
AACHEN
MPN Registry: German MPN Register and Biomaterial Bank for BCR-ABL1-negative myeloid neoplasias (biobank)
Universitätsklinikum Aachen
Klinik für Onkologie, Hämatologie und Stammzelltransplantation (Med. Klinik IV)
GERMANY
Nordrhein-Westfalen
DÜSSELDORF
MDS Registry: German myelodysplastic syndromes patient registry
Universitätsklinikum Düsseldorf
Klinik für Hämatologie, Onkologie und Klinische Immunologie
GERMANY
Nordrhein-Westfalen
ESSEN
AML-BFM Register 2017: Registry for children and adolescents with acute myeloid leukemia
Universitätsklinikum Essen
Klinik für Kinderheilkunde III
GERMANY
Rheinland-Pfalz
MAINZ
GLA Registry for Malignant Lymphoma of the German Lymphoma Alliance
Universitätsmedizin Mainz
III. Medizinische Klinik und Poliklinik
ITALY
LIGURIA
GENOVA
Galliera Genetic Bank
Ospedali Galliera
Dipartimento di Scienze genetiche, Perinatali e Ginecologiche
ITALY
LOMBARDIA
PAVIA
Italian myelodysplastic syndromes registry
Fondazione IRCCS Policlinico San Matteo
S.C. Ematologia
ITALY
LOMBARDIA
PAVIA
EUMDS: European Registry for Myelodysplastic Syndromes - IT
Fondazione IRCCS Policlinico San Matteo
S.C. Ematologia
ITALY
PIEMONTE
ALESSANDRIA
Mesothelioma Biobank
Azienda Ospedaliera Nazionale SS.Antonio e Biagio e Cesare Arrigo
Centro Raccolta Materiale Biologico - Infrastruttura Ricerca Formazione Innovazione
ITALY
TOSCANA
FIRENZE
FISiM Registry - Italian MDS Network
Azienda Ospedaliero Universitaria Careggi
MDS Unit
ITALY
TOSCANA
FIRENZE
Italian register multiple endocrine neoplasia type 1
FIRMO - Fondazione Italiana Ricerca sulle Malattie dell'Osso
NETHERLANDS
Gelderland
NIJMEGEN
Radboud Biobank - Collection Pheochromocytoma/Paraganglioma (frozen and paraffin embedded tissue)
Radboudumc - Radboud universitair medisch centrum
Polikliniek Endocriene Ziekten
NETHERLANDS
Noord-Brabant
EINDHOVEN
Adrenocortical Carcinoma Biobank - part of the ENS@T Registry
Máxima Medisch Centrum, locatie Eindhoven
Afdeling Interne Geneeskunde
NETHERLANDS
Zuid-Holland
LEIDEN
European Parathyroid Tumor Registry
LUMC - Leids Universitair Medisch Centrum
Afdeling Pathologie
PORTUGAL
SUL
LISBOA
Pituitary tumors national registry
Centro Hospitalar Lisboa Ocidental, EPE - Hospital Egas Moniz
Serviço de Endocrinologia
SPAIN
Castilla - León
SALAMANCA
Spanish patient registry of myelodysplasic syndromes
Complejo Asistencial Universitario de Salamanca
Servicio de Hematología
SPAIN
Cataluña
BARCELONA
Spanish patient registry of myelodysplasic syndromes
Hospital Universitari Vall d'Hebron
Servicio de Hematología y Hemoterapia
SPAIN
Cataluña
BARCELONA
R-GETNE: Spanish Registry of Neuroendocrine Tumors
Secretaria Técnica GETNE - TACTICS MD
Grupo Español de Tumores Neuroendocrinos
SPAIN
Comunidad Valenciana
VALENCIA
Epidemiologic Registry of Patients Diagnosed With Acute Myeloid Leukemia - ES
Hospital Universitario y Politécnico La Fe
Servicio de Hematología y Hemoterapia
SPAIN
Madrid
MADRID
Spanish Molecular Registry of Pituitary Adenomas (REMAH Nacional)
Sociedad Española de Endocrinología y Nutrición
Grupo de Neuroendocrinología de la SEEN
SWEDEN
Region Skåne
LUND
CASP10base: Mutation registry for Autoimmune lymphoproliferative syndrome, type II (ALPS2)
Lunds Universitet
Department of Experimental Medical Science
SWEDEN
Region Skåne
LUND
CASP8base: Mutation registry for Caspase 8 deficiency
Lunds Universitet
Department of Experimental Medical Science
SWEDEN
Region Skåne
LUND
FASLGbase: Mutation registry for Autoimmune lymphoproliferative syndrome, type 1B (ALPS1B) (previously known as TNFSF6base)
Lunds Universitet
Department of Experimental Medical Science
SWEDEN
Region Skåne
LUND
NRASbase: Mutation registry for Autoimmune lymphoproliferative syndrome type IV
Lunds Universitet
Department of Experimental Medical Science
SWEDEN
Region Skåne
LUND
Swedish Acute Myelogenous Leukemia Registry
Skånes Universitetssjukhus
Skåne University Hospital
UNITED KINGDOM
Greater London
LONDON
Global Familial Isolated Pituitary Adenoma (FIPA) Biobank
Barts and The London School of Medicine and Dentistry
Endocrinology
UNITED KINGDOM
Surrey
SUTTON
FCLL - A Genetic Study of Chronic Lymphocytic Leukaemia and Other Lymphoproliferative Disease
The Institute of Cancer Research
Section of Epidemiology
UNITED KINGDOM
West Yorkshire
LEEDS
EUMDS: European Registry for Myelodysplastic Syndromes - part of EuroLeukemiaNet (ELN)- UK
Leeds General Infirmary
Department of Haematology
UNITED STATES
New York
NEW YORK
Thymic Malignancy Interest Group International Database
Memorial Sloan-Kettering Cancer Center
AUSTRALIA
Victoria
MEKBOURNE
Myeloma and Related Diseases Registry (MRDR)
Monash University
Department of Epidemiology & Preventive Medicine
AUSTRIA
TIROL
INNSBRUCK
Austrian chronic myeloid leukemia registry
Medizinische Universität Innsbruck
Universitätsklinik für Innere Medizin V - Hämatologie und Onkologie
AUSTRIA
WIEN
ADDRESS: NOT PROVIDED - AT
Thromboreductin-Registry
Institution: Information not provided - AT
AUSTRIA
WIEN
WIEN
NF-10 - Prospective collection of potentially prognostically relevant data in patients with indolent non-follicular B-cell lymphoma
Allgemeines Krankenhaus der Stadt Wien
Klinische Abteilung für Onkologie
AUSTRIA
WIEN
WIEN
Austrian myeloma registry
OeGHO Geschäftsstelle
Österreichische Gesellschaft für Hämatologie & Medizinische Onkologie
AUSTRIA
WIEN
WIEN
Austrian chronic myeloid leukemia registry
OeGHO Geschäftsstelle
Österreichische Gesellschaft für Hämatologie & Medizinische Onkologie
AUSTRIA
WIEN
WIEN
Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin lymphoma in children and adolescents
St. Anna Kinderspital
Zentrum für Kinder- und Jugendheilkunde
BELGIUM
ANTWERPEN
ANTWERPEN
Antwerp registry of congenital anomalies - contributes to the EUROCAT network
Provinciaal Instituut voor Hygiëne (PIH)- Antwerpen
EUROCAT Belgium_Antwerpen
BELGIUM
HAINAUT
GOSSELIES
Hainaut and Namur registry of congenital anomalies - contribution to the EUROCAT network
Institut de Pathologie et de Génétique
Département de Génétique Clinique - Institut de Pathologie et de Génétique (IPG)
BULGARIA
South Central region
PLOVDIV
National registry of adult patients with chronic myeloid leukemia - BG
BAPES - Bulgarian Association for Promotion of Education and Science
Information Centre for Rare Diseases and Orphan Drugs
FINLAND
Finland
HELSINKI
Register of Congenital Malformations, Epämuodostumarekisteri
Terveyden ja hyvinvoinnin laitos (THL)
Finnish Institute for Health and Welfare (THL)
FRANCE
AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
CEMC-Auvergne - Center for the Study of Congenital Malformations in Auvergne - contributes to the EUROCAT network
CHU de Clermont-Ferrand - Hôpital d'Estaing
Service de génétique médicale
FRANCE
AUVERGNE-RHONE-ALPES
LYON
Rhône-Alpes registry of congenital anomalies - contributes to the EUROCAT network
Registre des Malformations en Rhône Alpes
Registre des Malformations en Rhône Alpes REMERA
FRANCE
BRETAGNE
RENNES
Brittany registry of congenital anomalies - contributes to the EUROCAT network
CHU de Rennes - Hôpital Pontchaillou
CHU Rennes
FRANCE
BRETAGNE
RENNES
ReMaBreizh: Registry of congenital malformations in Brittany
CHU de Rennes - Hôpital Pontchaillou
CHU Rennes
FRANCE
ILE-DE-FRANCE
PARIS
French register of the SDH-related hereditary paraglioma
AP-HP. Centre - Université de Paris - HEGP Hôpital Européen Georges Pompidou
Service de génétique
FRANCE
ILE-DE-FRANCE
PARIS
POLA: French patient registry of high level oligodendroglioma
AP-HP.Sorbonne Université - Hôpital de la Pitié-Salpêtrière
Service de Neurologie 2 : Unité d'Onco-Neurologie
FRANCE
ILE-DE-FRANCE
PARIS
REMAPAR- Paris registry of congenital anomalies - contributes to the EUROCAT network
APHP - HUPC - Site Cochin
Equipe EPOPé
FRANCE
ILE-DE-FRANCE
SAINT-CLOUD
UMD BRCA2 (Breast cancer 2, early onset) mutations database
CLCC Hôpital René Huguenin - Institut Curie
Laboratoire d'oncogénétique
FRANCE
ILE-DE-FRANCE
SAINT-CLOUD
GENEPSO: French BRCA1 and 2 carrier cohort study
CLCC Hôpital René Huguenin - Institut Curie
Service d'Epidémiologie Clinique et d'Information Médicale, Oncogénétique Clinique
FRANCE
OUTRE-MER
FORT DE FRANCE
French West Indies registry of congenital anomalies - contributes to the EUROCAT network
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant
Centre Pluridisciplinaire de Diagnostic Prénatal (CPDPN)
FRANCE
OUTRE-MER
SAINT-PIERRE
La Réunion Fench Island registry of congenital anomalies - contributes to the EUROCAT network
CHU de la Réunion - GH Sud Réunion - Saint-Pierre
Service de Génétique Médicale
GERMANY
Hessen
FRANKFURT AM MAIN
German Registry of Incidental Gallbladder Carcinoma (PERSUASION)- a Permanent Platform Including All Kind of Biliary Tract Cancers (BTC)
Krankenhaus Nordwest GmbH
Institut für Klinische Krebsforschung IKF GmbH
GERMANY
Hessen
FRANKFURT AM MAIN
GMALL-registry: registry for adult patients with acute lymphoblastic leukemia or related diseases
Universitätsklinikum Frankfurt
Medizinische Klinik II - Hämatologie, Onkologie, Hämostaseologie, Rheumatologie, Infektiologie
GERMANY
Hessen
FRANKFURT AM MAIN
GMALL-registry: Biobank for adult patients with acute lymphoblastic leukemia or related diseases
Universitätsklinikum Frankfurt
Medizinische Klinik II - Hämatologie, Onkologie, Hämostaseologie, Rheumatologie, Infektiologie
GERMANY
Hessen
GIEßEN
NHL-BFM Registry 2012: Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin Lymphoma diagnosed in children and adolescents
Kinderklinik des UKGM am Standort Gießen
Abteilung für Pädiatrische Hämatologie und Onkologie
GERMANY
Hessen
MARBURG
German national case collection of familial pancreatic cancer
Universitätsklinikum Gießen und Marburg GmbH, Standort Marburg
Klinik für Visceral- Thorax- und Gefäßchirurgie
GERMANY
Nordrhein-Westfalen
MÜNSTER
NHL-BFM Registry 2012: Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin Lymphoma diagnosed in children and adolescents
Universitätsklinikum Münster
Klinik für Kinder- und Jugendmedizin - Pädiatrische Hämatologie und Onkologie
GERMANY
Rheinland-Pfalz
MAINZ
Mainz registry of congenital anomalies - contributes to the EUROCAT network
Universitätsmedizin Mainz
Geburtenregister Mainzer Modell
GERMANY
Sachsen-Anhalt
MAGDEBURG
Centre Saxony-Anhalt registry of congenital anomalies - contributes to the EUROCAT network
Universitätsklinikum Magdeburg A.ö.R
MONZ - Fehlbildungsmonitoring Sachsen-Anhalt
IRELAND
County Cork
CORK
South of Ireland registry of congenital anomalies - contributes to the EUROCAT network
St. Finbarr's Hospital
Department of Public Health
IRELAND
County Dublin
DUBLIN
Dublin registry of congenital anomalies - contributes to the EUROCAT network
Health Services Executive
HSE Registry of Congenital Anomalies (East)
IRELAND
County Kilkenny
KILKENNY
South East of Ireland registry of congenital anomalies - part of BINOCAR and EUROCAT network
Health Service Executive South SE
South East of Ireland registry of congenital anomalies
ITALY
CAMPANIA
BENEVENTO
Campania registry of congenital anomalies - contributes to the EUROCAT network
A.O.R.N. "San Pio" - P.O. "G. Rummo"
U.O.S.D. di Genetica Medica
ITALY
EMILIA ROMAGNA
BOLOGNA
Italian Thrombocythemia Registry (RIT)
IRCCS Policlinico Sant'Orsola
Università di Bologna
ITALY
SICILIA
CATANIA
ISMAC: Sicilian registry of congenital anomalies - contributes to the EUROCAT network
ASMAC
Associazione per la Prevenzione Sociale e per il Trattamento delle Malformazioni Congenite
ITALY
TOSCANA
PISA
Tuscan Registry of Congenital Anomalies
Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR
Unità di Ricerca Epidemiologia Ambientale e Registri di Patologia
NETHERLANDS
Groningen
GRONINGEN
EUROCAT Northern Netherlands - contributes to the international EUROCAT network
UMCG - Universitair Medisch Centrum Groningen
Afdeling Genetica
POLAND
Poznan
POZNAN
PRCM: Polish registry of congenital malformations - contributes to the EUROCAT network
Uniwersytet Medyczny im. Karola Marcinkowskiego w Poznaniu
Zaklad Genetyki Medycznej
PORTUGAL
SUL
LISBOA
RENAC - Registo Nacional de Anomalias Congénitas (contribui para a rede EUROCAT)
Instituto Nacional de Saúde Dr. Ricardo Jorge - Lisboa
Departamento de Epidemiologia
SPAIN
Madrid
MADRID
MOLDIAG-PACA: Biobanco de cáncer pancreático
Centro Nacional de Investigaciones Oncológicas (CNIO)
Grupo de Carcinogénesis Epitelial
SPAIN
Madrid
MADRID
MOLDIAG-PACA: Biobanco de cáncer pancreático
Centro Nacional de Investigaciones Oncológicas (CNIO)
Grupo de Epidemiología Genética y Molecular
SPAIN
País Vasco
VITORIA-GASTEIZ
RACAV: Registry of congenital anomalies of the Basque Country (Spain) - contributes to the EUROCAT network
Gobierno Vasco. Departamento de Salud
Registro de anomalías congénitas del País Vasco
SWEDEN
Region Skåne
LUND
Svenska myelomregistret
Regionalt cancercentrum syd
Regional Cancer Centre, South Sweden
SWEDEN
Region Uppsala
UPPSALA
Nationellt kvalitetsregister för KML
Akademiska Sjukhuset
Regional Cancer Centre, Mid Sweden
SWEDEN
Region Västerbotten
UMEÅ
Swedish National registry of anal cancer
Norrlands Universitetssjukhus
Regional Cancer Centre, North Sweden
SWITZERLAND
Suisse Romande
LAUSANNE
EUROCAT VAUD Switzerland - Registry of congenital malformations of canton Vaud
Centre Hospitalier Universitaire Vaudois CHUV
Département Femme-Mère-Enfant - Maternité
AUSTRIA
OBERÖSTERREICH
LINZ
Register für histiozytäre Erkrankungen
Ordensklinikum Linz GmbH Elisabethinen
Interne 1 - Hämatologie mit Stammzelltransplantation, Hämostaseologie und medizinische Onkologie
AUSTRIA
OBERÖSTERREICH
WELS
Austrian GIST registry
Akademie für Gesundheit und Bildung der Kreuzschwestern GesmbH
AUSTRIA
SALZBURG
SALZBURG
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): PTCL registry (T-cell lymphoma in Austria)
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität
Universitätsklinik für Innere Medizin III
AUSTRIA
WIEN
WIEN
Registry for Philadelphia chromosome-positive acute lymphoblastic leukemia in childhood and adolescence
St. Anna Kinderspital
Zentrum für Kinder- und Jugendheilkunde
AUSTRIA
WIEN
WIEN
Registry for relapsing acute lymphoblastic leukemia in childhood and adolescence
St. Anna Kinderspital
Zentrum für Kinder- und Jugendheilkunde
FRANCE
ILE-DE-FRANCE
PARIS
French certified patient registry for histiocytosis
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau
Service d'Hématologie - Oncologie pédiatrique
FRANCE
ILE-DE-FRANCE
PARIS
Biobank of the French certified patient registry for Langerhans cell histiocytosis
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau
Service d'Hématologie - Oncologie pédiatrique
FRANCE
ILE-DE-FRANCE
PARIS
MUTP53LOAD: Mutant p53 Loss Of Activity Database
CLCC Institut Curie
Laboratoire de Génotoxicologie des Tumeurs
FRANCE
ILE-DE-FRANCE
PARIS
French certified patient registry for histiocytosis
GHU AP-HP Nord. Université de Paris - Hôpital Saint-Louis
Service de pneumologie
GERMANY
Hessen
FRANKFURT AM MAIN
German registry for Langerhans Cell Histiocytosis in childhood (LCH-REG-DE 2013)
Universitätsklinikum Frankfurt
Schwerpunkt Onkologie, Hämatologie und Hämostaseologie
GERMANY
Nordrhein-Westfalen
KÖLN
German registry for neonates, infants, children, adolescents, and adults with newly diagnosed and/or relapsed neuroblastic tumors (NB Registry 2016) - contributes to the INRG Database
Universitätsklinikum Köln
Pädiatrische Onkologie und Hämatologie
GERMANY
Sachsen-Anhalt
HALLE (SAALE)
German T-cell lymphoma registry (T-NHL) of the German Lymphoma Alliance
Universitätsklinikum Halle (Saale)
Universitätsklinik und Poliklinik für Innere Medizin IV
ITALY
LIGURIA
GENOVA
Italian neuroblastoma registry
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O.C. Oncologia
ITALY
TOSCANA
FIRENZE
Italian LCH Registry - Langerhans cell histiocytosis
Azienda Ospedaliera Universitaria Anna Meyer
D.A.I. Oncologia, Ematologia, TCSE e Terapia Genica
SPAIN
Cataluña
BARCELONA
Spanish registry of pulmonary Langerhans cell histiocytosis integrated in the Rare Diseases Patient Registry ISCIII (RePER)
Hospital de la Santa Creu i Sant Pau
Servicio de Neumología
SPAIN
Madrid
MADRID
PanGen-FAM: Spanish registry of hereditary pancreatic cancer
IRYCIS - Instituto Ramón y Cajal de Investigación Sanitaria
Grupo de investigación en Epidemiología Molecular y Marcadores Predictivos del Cáncer
SPAIN
Madrid
MADRID
Spanish registry of pulmonary Langerhans cell histiocytosis integrated in the Rare Diseases Patient Registry ISCIII (RePER)
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
SWEDEN
Region Skåne
LUND
Swedish Acute Lymphoblastic Leukemia Registry
Skånes Universitetssjukhus
Skåne University Hospital
SWITZERLAND
Suisse Alémanique
ZÜRICH
Perihilar Cholangiocarcinoma International Registry
Universitätspital Zürich
Department of Hepato-Pancreato-Biliary & Transplantation Surgery
UNITED KINGDOM
Merseyside
LIVERPOOL
EUROPAC: the European registry of hereditary pancreatitis and familial pancreatic cancer
Royal Liverpool University Hospital NHS, UCD Building
Division of Surgery & Oncology, 5th Floor
BELGIUM
LIEGE
LIEGE
The Liège Acromegaly Survey (LAS) database
CHU de Liège - Domaine universitaire du Sart Tilman
Service d'endocrinologie clinique - CHU Liège
GERMANY
Nordrhein-Westfalen
KÖLN
DCLLSG registry of the German CLL Study Group - Long term observation of patients with CLL, B-PLL, T-PLL, SLL, T/ NK-LGL and Richter transformation
Universitätsklinikum Köln
Klinik I für Innere Medizin
GERMANY
Schleswig-Holstein
LÜBECK
German acromegaly registry
Universitätsklinikum Schleswig-Holstein - Campus Lübeck
Medizinische Klinik I
SPAIN
Cataluña
ESPLUGUES DE LLOBREGAT
SIOPE Diffuse Intrinsic Pontine Glioma (DIPG) Registry (Spanish contact point)
Hospital Sant Joan de Déu Barcelona
Servicio de Oncología y Hematología
UNITED KINGDOM
Greater Manchester
MANCHESTER
UK national Acromegaly patient register
Christie Hospital
Department of Endocrinology
UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
The international diffuse intrinsic pontine glioma registry
Institution: Information not provided - US
GERMANY
Baden-Württemberg
ULM
German marginal zone lymphoma registry of the German Lymphoma Alliance
Universitätsklinikum Ulm
Institut für Experimentelle Tumorforschung
GERMANY
Baden-Württemberg
ULM
German follicular lymphoma registry of the German Lymphoma Alliance
Universitätsklinikum Ulm
Institut für Experimentelle Tumorforschung
GERMANY
Rheinland-Pfalz
MAINZ
EMCL-REGISTRY: European Mantle cell lymphoma registry
Universitätsmedizin Mainz
III. Medizinische Klinik und Poliklinik
GERMANY
Rheinland-Pfalz
MAINZ
EMCL-REGISTRY: European Mantle cell lymphoma registry (biobank)
Universitätsmedizin Mainz
III. Medizinische Klinik und Poliklinik
Networks of registries and biobanks
ITALY
LOMBARDIA
MILANO
ERN [EURACAN] - STARTER: STarting an Adult Rare Tumor European Registry
Fondazione IRCCS Istituto Nazionale dei Tumori
Fondazione IRCCS - Istituto Nazionale dei Tumori
ITALY
LOMBARDIA
VARESE
ENCR: Network europeo dei registri sul cancro
European Commission's Joint Research Centre in Ispra
European Commission's Joint Research Centre
FRANCE
ILE-DE-FRANCE
VILLEJUIF
ENETS Registry: The European Neuro-Endocrine Tumors Registry
CLCC Institut Gustave Roussy
Cancers endocriniens - Surrénales et Tumeurs neuro-endocrines
NETHERLANDS
Gelderland
NIJMEGEN
ERN [GENTURIS] - GENTURIS registry: The Genetic Tumour Risk Syndromes Registry
Radboudumc - Radboud universitair medisch centrum
Sectie Klinische Genetica
NETHERLANDS
Gelderland
NIJMEGEN
ERN [eUROGEN] - ERN eUROGEN Registry for rare urogenital diseases
Radboudumc - Radboud universitair medisch centrum
Afdeling Health Evidence
SWEDEN
Region Skåne
LUND
EUROCRINE: European Surgical Registry for Rare Endocrine Tumours
Lunds Universitet
Department of Clinical Sciences (IKVL)
CANADA
Ontario
TORONTO
IRHDR Registry: International Rare Histiocytic Disorders Registry
The Hospital for Sick Children (SickKids)
Department of Paediatrics
UNITED KINGDOM
Greater London
LONDON
European Society for Blood and Marrow Transplant Society Registry (EBMT registry)
Guy's Hospital
European Society for Blood and Marrow Transplant Society
UNITED KINGDOM
West Yorkshire
LEEDS
EUMDS : European Myelodysplastic Syndromes Registry
Leeds General Infirmary
Department of Haematology
ITALY
LOMBARDIA
VARESE
EUROCAT: European surveillance of congenital anomalies
European Commission's Joint Research Centre in Ispra
European Commission's Joint Research Centre
UNITED STATES
Illinois
CHICAGO