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31 Result(s)

Funded by an IRDiRC member =

Registries and Biobanks

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

ERCUSYN: European registry on Cushing's syndrome
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberEIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

European Porphyria Registry (EPR)
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberEIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberEIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberEUROMAC: Registry of patients affected by McArdle Disease
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberIrish Registry for homocystinurias and methylation defects - contributes to E-HOD
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

E-HOD - European network and registry for homocystinurias and methylation defects (contributes to U-IMD)
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberERN [PAEDCAN] - PARTNER: Paediatric Rare Tumours Networks - European Registry
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberERN [Endo-ERN] - EuRRECa: European Registries for Rare Endocrine Conditions
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberERN [EURACAN] - STARTER: STarting an Adult Rare Tumor European Registry
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberERN [RITA] - MERITA: A METADATA REGISTRY FOR THE ERN RITA
European Commission
DG SANCO - Directorate General for Health and Consumer Affairs

Networks of registries and biobanks

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Funded by an IRDiRC memberEUROCAT: European surveillance of congenital anomalies
  • European Commission
  • DG SANCO - Directorate General for Health and Consumer Affairs
  • BELGIUM

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
  • European Commission
  • DG SANCO - Directorate General for Health and Consumer Affairs
  • BELGIUM

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    EUROFEVER: PReS European network of registries for autoinflammatoy diseases in childhood
  • European Commission
  • DG SANCO - Directorate General for Health and Consumer Affairs
  • BELGIUM

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    SCNIR: Severe Chronic Neutropenia International Registry
  • European Commission
  • DG SANCO - Directorate General for Health and Consumer Affairs
  • BELGIUM

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Funded by an IRDiRC memberE-IMD : European registry and network for Intoxication type Metabolic Diseases
  • European Commission
  • DG SANCO - Directorate General for Health and Consumer Affairs
  • BELGIUM

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    BELGIUM

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Funded by an IRDiRC memberE-HOD - European network and registry for homocystinurias and methylation defects
  • European Commission
  • DG SANCO - Directorate General for Health and Consumer Affairs
  • GERMANY

    Baden-Württemberg
    HEIDELBERG

    Funded by an IRDiRC memberE-IMD : European registry and network for Intoxication type Metabolic Diseases
  • Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik
  • Klinik für Kinderheilkunde I - Sektion für Neuropädiatrie und Stoffwechselmedizin
  • GERMANY

    Niedersachsen
    HANNOVER

    SCNIR: Severe Chronic Neutropenia International Registry
  • Medizinische Hochschule Hannover
  • SCNIR - Europazentrale
  • ITALY

    LIGURIA
    GENOVA

    EUROFEVER: PReS European network of registries for autoinflammatoy diseases in childhood
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie
  • NETHERLANDS

    Noord-Holland
    AMSTERDAM

    Funded by an IRDiRC memberE-HOD - European network and registry for homocystinurias and methylation defects
  • Amsterdam UMC, locatie VUmc
  • Afdeling Interne Geneeskunde
  • NETHERLANDS

    Zuid-Holland
    LEIDEN

    PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
  • LUMC - Leids Universitair Medisch Centrum
  • Afdeling Longziekten
  • UNITED KINGDOM

    Antrim and Newtownabbey
    NEWTOWNABBEY

    UNITED KINGDOM

    West Midlands
    BIRMINGHAM