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Funded by an IRDiRC member =

Registries and Biobanks

AUSTRIA

TIROL
INNSBRUCK

Innsbruck registry for Adamantiades-Behcet disease: Retrospective and prospective data collection
Medizinische Universität Innsbruck
Universitätsklinik für Innere Medizin II

FRANCE

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

Establishment of children and adolescents cohort in Behcet disease in France
CHU Paris-Sud - Hôpital de Bicêtre
Service de Rhumatologie pédiatrique

FRANCE

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

DNA bank for child's Behcet disease in France
CHU Paris-Sud - Hôpital de Bicêtre
Service de Rhumatologie pédiatrique

GERMANY

Sachsen-Anhalt
DESSAU

German registry for Morbus Adamantiades-Behçet e.V.
Städtisches Klinikum Dessau
Deutsches Register Morbus Adamantiades-Behçet e.V.

TURKEY

TURKEY
ISTANBUL

FRANCE

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

French cohort for auto-inflammatory diseases
CHU Paris-Sud - Hôpital de Bicêtre
Service de Rhumatologie pédiatrique

FRANCE

ILE-DE-FRANCE
PARIS

French pediatric registry of rituximab treated patients affected by severe systemic diseases - contributes to the French AIR registry
CHU Paris - Hôpital Necker-Enfants Malades
Service d'Immuno-hématologie pédiatrique - Rhumatologie

FRANCE

ILE-DE-FRANCE
PARIS

French auto-immunity and Rituximab (AIR) registry: prospective study of patients treated with Rituximab
CHU Paris Centre - Hôpital Cochin, Site Cochin
Unité fonctionnelle de Médecine interne et centre de référence maladies rares

FRANCE

OCCITANIE
MONTPELLIER

Infevers : The registry of Hereditary Auto-inflammatory Disorders Mutations
CHRU de Montpellier - Hôpital Arnaud de Villeneuve
Laboratoire de génétique des maladies rares et autoinflammatoires

GERMANY

Nordrhein-Westfalen
KREFELD

Funded by an IRDiRC memberGerman AID (Autoinflammatory disorders) registry - subproject AID-NET
HELIOS Klinikum Krefeld
Zentrum für Kinder- und Jugendmedizin

GERMANY

Nordrhein-Westfalen
MÜNSTER

Funded by an IRDiRC memberAID-NET : Biobank (DNA/RNA/serum) for autoinflammatory syndromes
Universitätsklinikum Münster
Klinik für Kinder- und Jugendmedizin - Pädiatrische Rheumatologie und Immunologie

GERMANY

Schleswig-Holstein
LÜBECK

German vasculitis registry
Universitätsklinikum Schleswig-Holstein - Campus Lübeck
Klinik für Rheumatologie und Klinische Immunologie

IRELAND

County Dublin
DUBLIN

The Irish Rare Kidney Disease Registry and Biobank
St James's Hospital
Trinity Health Kidney Centre - Trinity College Dublin

ITALY

LIGURIA
GENOVA

EUROFEVER: European registry for autoinflammatory diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie

NETHERLANDS

Noord-Holland
AMSTERDAM

UNITED KINGDOM

Greater London
LONDON

UK and Ireland Vasculitis registry (UKIVAS)
Royal Free London Hospital
University College London, Centre for Nephrology

UNITED KINGDOM

Oxfordshire
OXFORD

UK and Ireland Vasculitis registry (UKIVAS)
Nuffield Orthopaedic Centre
Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences

GERMANY

Berlin
BERLIN

Core documentation of children and adolescens with rheumatic diseases
Deutsches Rheuma-Forschungszentrum Berlin
Forschungsbereich Epidemiologie

SPAIN

Cataluña
ESPLUGUES DE LLOBREGAT

Biobank of the Sant Joan de Déu Children's Hospital for Research (BHISJDI)
Fundació Sant Joan de Déu - Institut de Recerca Sant Joan de Déu
Biobanco del Hospital Infantil Sant Joan de Déu para la investigación

SWITZERLAND

Suisse Romande
ETOY

JIRcohorte
Fondation rhumatismes-enfants-suisse

SWITZERLAND

Suisse Romande
LAUSANNE

JIRcohorte
Centre Hospitalier Universitaire Vaudois CHUV
URIRP - Unité Romande d'Immuno-Rhumatologie Pédiatrique

Networks of registries and biobanks

ITALY

LIGURIA
GENOVA

EUROFEVER: PReS European network of registries for autoinflammatoy diseases in childhood
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie
  • IRELAND

    County Dublin
    DUBLIN

    UKIVAS - UK and Ireland registry of autoimmune vasculitides
  • St James's Hospital
  • Trinity Health Kidney Centre - Trinity College Dublin