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Financiado por un miembro del IRDiRC = 
Registos y biobancos
ALEMANIA
Baden-Württemberg
FREIBURG
Von Hippel-Lindau registry
Universitätsklinikum Freiburg
Klinik für Innere Medizin IV - Sektion für präventive Medizin
FRANCIA
OCCITANIE
MONTPELLIER
UMD VHL (von Hippel-Lindau tumor suppressor) mutations database
IURC - Institut Universitaire de Recherche Clinique
Laboratoire de génétique moléculaire
SUIZA
Suisse Alémanique
BERN
SwissNET - Registry for Neuroendocrine Tumours in Switzerland
Inselspital
SwissNET - Registry for Neuroendocrine Tumours in Switzerland
ALEMANIA
Baden-Württemberg
FREIBURG
International pheochromocytoma and paraganglioma registry
Universitätsklinikum Freiburg
Klinik für Innere Medizin IV - Sektion für präventive Medizin
ESPAÑA
Asturias
OVIEDO
Registro MEN: Registro de Neoplasias Endocrinas Múltiples, Feocromocitomas y Paragangliomas
Hospital Universitario Central de Asturias
Servicio de Endocrinología y Nutrición (HUCA)
FRANCIA
GRAND-EST
VANDOEUVRE-LÈS-NANCY
French registry of children solid tumors
Faculté de médecine de Nancy
Registre national des tumeurs solides de l'enfant
PORTUGAL
CENTRO
COIMBRA
Central regional cancer patient registry
Instituto Português de Oncologia de Coimbra de Francisco Gentil, EPE
Registo Oncológico Regional - Zona Centro
PORTUGAL
ILHAS
AÇORES
Açores regional cancer patient registry (RORA)
Centro de Oncologia dos Açores Prof Doutor José Conde
Registo Oncológico Regional dos Açores
PORTUGAL
NORTE
PORTO
North regional cancer registry (RORENO)
Instituto Português de Oncologia do Porto, EPE / IPOFG - CRO Porto
Registo Oncológico Regional do Norte
PORTUGAL
NORTE
VILA NOVA DE GAIA
Vila Nova de Gaia regional cancer registry (ROG)
Centro Hospitalar de Vila Nova de Gaia
Registo de Cancro (ROG)
ALEMANIA
Hamburg
HAMBURG
German adrenal tumors registry
UKE - Universitätsklinikum Hamburg-Eppendorf
Praxis Prof. Dr. med. Wolfgang Saeger
ALEMANIA
Nordrhein-Westfalen
KÖLN
Tumor bank for embryonal tumors
Universitätsklinikum Köln
Pädiatrische Onkologie und Hämatologie
ALEMANIA
Sachsen-Anhalt
MAGDEBURG
GPOH-MET Registry: Registry for children and adolescents with malignant endocrine tumour
Universitätsklinikum Magdeburg A.ö.R
Bereich Pädiatrische Hämatologie und Onkologie
AUSTRALIA
Victoria
PARKVILLE
ENSAT: European Network for the Study of Adrenal Tumours
The University of Melbourne
Melbourne eResearch Group (MEG)
IRLANDA
County Dublin
DUBLIN
Irish ENS@T Biobank and Registry - contributes to ENS@T registry
Endocrinology Department, Beaumont Hospital
Adrenal Service
PORTUGAL
CENTRO
COIMBRA
Adrenal tumor national registry
Hospitais da Universidade de Coimbra
Serviço de endocrinologia diabetes e metabolismo
ALEMANIA
Baden-Württemberg
HEIDELBERG
Epidemiological cancer registry Baden-Württemberg
Epidemiologisches Krebsregister am DKFZ Heidelberg
Epidemiologisches Krebsregister Baden-Württemberg
ALEMANIA
Bayern
MÜNCHEN
MCR - Munich Cancer Registry
LMU Klinikum der Universität München - Campus Großhadern
Tumorregister München
ALEMANIA
Bayern
NÜRNBERG
Bayern population based cancer registry
Registerstelle des Krebsregisters Bayern
ALEMANIA
Berlin
BERLIN
Common cancer registry of Berlin, Brandenburg, Mecklenburg-Western Pomerania, Saxony-Anhalt and the free states Saxony and Thuringia
Gemeinsames Krebsregister (GKR)
Registerstelle des Gemeinsamen Krebsregisters (GKR)
ALEMANIA
Bremen
BREMEN
Bremen cancer registry
Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS)
Registerstelle des Bremer Krebsregisters
ALEMANIA
Hamburg
HAMBURG
Hamburg cancer registry
Behörde für Soziales, Familie, Gesundheit und Verbraucherschutz
Hamburgisches Krebsregister
ALEMANIA
Rheinland-Pfalz
MAINZ
German childhood cancer registry (Partner of ACCIS: Automated Childhood Cancer Information System)
Institut für Medizinische Biometrie, Epidemiologie und Informatik (IMBEI)
Deutsches Kinderkrebsregister am IMBEI
ALEMANIA
Saarland
SAARBRÜCKEN
EKRS: Saarland Cancer Registry - contributes to the RARECARE Project
Epidemiologisches Krebsregister Saarland
ALEMANIA
Schleswig-Holstein
KIEL
German central children tumor registry
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel
ALEMANIA
Schleswig-Holstein
LÜBECK
Schleswig-Holstein cancer registry
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein
AUSTRIA
TIROL
INNSBRUCK
Austrian Country Node of the Human Variome Project (HVP)
Medizinische Universität Innsbruck
Zentrum Medizinische Genetik Innsbruck
AUSTRIA
WIEN
WIEN
Austrian cancer registry - contributes to the RARECARE project
Österreichisches Krebsregister
COREA DEL SUR
KOREA, REPUBLIC OF
SEOUL
Korean Mutation Database for Rare Diseases
Seoul National University Hospital
Molecular Diagnostics Laboratory
DINAMARCA
Sjælland
COPENHAGEN
Mendelian cytogenetics network online database
The Panum Institute-University of Copenhagen
Department of Cellular and Molecular Medicine
ESLOVAQUIA
Bratislavsky kraj
BRATISLAVA
National cancer registry (contributes to the RARECARE project)
National Health Information Center
National Cancer Registry
ESLOVENIA
SLOVENIA
LJUBLJANA
Slovenian cancer registry - contributes to the RARECARE project
Institute of Oncology Ljubljana
Cancer Registry of Slovenia
ESPAÑA
Cataluña
ESPLUGUES DE LLOBREGAT
Biobanco del Hospital Infantil Sant Joan de Déu para la investigación (BHISJDI)
Fundació Sant Joan de Déu - Institut de Recerca Sant Joan de Déu
Biobanco del Hospital Infantil Sant Joan de Déu para la investigación
ESPAÑA
Madrid
MADRID
CIBERER Biobank (Banco de muestras biológicas de enfermedades raras)
ISCIII - Instituto de Salud Carlos III
Centro de Investigación Biomédica en Red de Enfermedades Raras
ESPAÑA
Madrid
MADRID
BioNER: Biobanco Nacional de Enfermedades Raras
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
ESPAÑA
País Vasco
BARAKALDO
Biobanco Vasco
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco
ESTONIA
Tallinn
TALLINN
Estonian cancer registry - contributes to the RARECARENet project
National Institute for Health Development
Estonian Cancer Registry
ESTONIA
Tartu
TARTU
Biobank of the Estonian Genome Centre
Institute of Genomics of University of Tartu
The Estonian Genome Centre
FINLANDIA
Finland
HELSINKI
Finnish cancer registry - contributes to the RARECARE project
Syöpätautien tilastollinen ja epidemiologinen tutkimuslaitos
Finnish Cancer Registry
ISLANDIA
ICELAND
REYKJAVIK
Icelander cancer registry - contributes to the RARECARE project
Icelandic Cancer Registry
ITALIA
LIGURIA
GENOVA
Cell line and DNA Biobank from patients affected by genetic diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Centro di diagnostica genetica e biochimica delle malattie metaboliche
ITALIA
LIGURIA
GENOVA
Telethon Network of Genetic Biobanks
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Centro di diagnostica genetica e biochimica delle malattie metaboliche
MALTA
MALTA
GUARDAMANGIA
Maltese cancer registry - contributes to the RARECARE project
Departement of Health Information
Malta National Cancer Registry
MARRUECOS
Rabat
RABAT
Moroccan National Genetic Database
Institut National d'Hygiène
Département de génétique médicale
NORUEGA
Østlandet
OSLO
Norwegian cancer registry - contributes to the RARECARE project
Institute of Population-Based Cancer Research
Cancer Registry of Norway
POLONIA
Kielce
KIELCE
Kielce cancer registry - contributes to the RARECARE project
Holycross Cancer Centre
Department of Cancer Control & Epidemiology
POLONIA
Kraków
KRAKOW
Cracow cancer registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie, Oddzial w Krakowie
Department of Epidemiology
POLONIA
Warszawa
WARSZAWA
Mazovian Cancer Registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie
Cancer Center and Institute of Oncology
PORTUGAL
SUL
LISBOA
Southern Portugal cancer registry - contributes to the RARECARE project
Instituto Português de Oncologia - Centro de Lisboa
Registo Oncológico Regional Sul
SUECIA
Stockholms läns landsting
STOCKHOLM
Swedish Childhood Cancer Registry
Astrid Lindgren Children's Hospital - Karolinska
Paediatric Oncology
SUIZA
Suisse Alémanique
BERN
Swiss Childhood Cancer Registry
Institute of Social and Preventive Medicine (ISPM)
ALEMANIA
Baden-Württemberg
HEIDELBERG
Cooperative European Paediatric Renal Transplant Initiative registry
Universitätsmedizin Heidelberg
Zentrum für Seltene Erkrankungen (ZSE) Heidelberg
ALEMANIA
Baden-Württemberg
HEIDELBERG
ERK-REG: ERKNet Registry for Rare Kidney Diseases
Universitätsmedizin Heidelberg
Zentrum für Seltene Erkrankungen (ZSE) Heidelberg
PAISES BAJOS (LOS)
Noord-Holland
AMSTERDAM
ESPN/ERA-EDTA Registry: European Registry for Children on Renal Replacement Therapy
Amsterdam UMC, locatie AMC
Afdeling Klinische Informatiekunde
REINO UNIDO (EL)
West Midlands
BIRMINGHAM
UK Renal Rare Disease Registry (RaDaR) - Part of OXAL Europe
Birmingham Children's Hospital NHS Foundation Trust
Birmingham Children's Hospital
Redes de registos y biobancos
ALEMANIA
Schleswig-Holstein
LÜBECK
GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein
ITALIA
LIGURIA
GENOVA