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Registres et biobanques

ALLEMAGNE

Rheinland-Pfalz
MAINZ

Mainz registry of congenital anomalies - contributes to the EUROCAT network
Universitätsmedizin Mainz
Geburtenregister Mainzer Modell

ALLEMAGNE

Sachsen-Anhalt
MAGDEBURG

Centre Saxony-Anhalt registry of congenital anomalies - contributes to the EUROCAT network
Universitätsklinikum Magdeburg A.ö.R
MONZ - Fehlbildungsmonitoring Sachsen-Anhalt

AUTRICHE

STEIERMARK
GRAZ

Styrian registry of congenital anomalies - contributes to the EUROCAT network
Medizinische Universität Graz
Forschungsverein zur Registrierung steirischer Geburtsfehlbildungen

BELGIQUE

ANTWERPEN
ANTWERPEN

Antwerpen registry of congenital anomalies - contributes to the EUROCAT network
Provinciaal Instituut voor Hygiëne - Antwerpen
EUROCAT Antwerpen

BELGIQUE

HAINAUT
GOSSELIES

Hainault and Namur registry of congenital anomalies - contributes to the EUROCAT network
Institut de Pathologie et de Génétique - Gosselies
Centre de Génétique Humaine

DANEMARK

Syddanmark
ODENSE

Funen county registry of congenital anomalies - contributes to the EUROCAT network
University of Southern Denmark
Epidemiology department

ESPAGNE

País Vasco
VITORIA-GASTEIZ

RACAV: Registry of congenital anomalies of the Basque Country (Spain) - contributes to the EUROCAT network
Gobierno Vasco - Departamento de Sanidad y Consumo
Gobierno Vasco. Departamento de Salud

FINLANDE

Finland
HELSINKI

Register of Congenital Malformations
National Institute for Health and Welfare
Terveyden ja hyvinvoinnin laitos

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Registre des anomalies congénitales de la région Auvergne - contribuant au réseau EUROCAT
CHU de Clermont-Ferrand - Hôpital d'Estaing
Service de génétique

FRANCE

AUVERGNE-RHONE-ALPES
LYON

Registre des anomalies congénitales de la région Rhône-Alpes (REMERA) - contribuant au réseau EUROCAT
Registre des Malformations en Rhône Alpes
Registre des Malformations en Rhône Alpes REMERA

FRANCE

ILE-DE-FRANCE
PARIS

Registre des anomalies congénitales de Paris - contribuant au réseau EUROCAT
CHU Paris Centre - Maternité Port Royal
Equipe EPOPé

FRANCE

OUTRE-MER
FORT DE FRANCE

Registre des anomalies congénitales des Antilles françaises - contribuant au réseau EUROCAT
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant
Centre Pluridisciplinaire de Diagnostic Prénatal (CPDP)

FRANCE

OUTRE-MER
SAINT-PIERRE

Registre des anomalies congénitales de l'île de La Réunion - contribuant au réseau EUROCAT
CHU de la Réunion - GH Sud Réunion - Saint-Pierre
Unité de génétique médicale Foetopathologie et Oncogénétique

IRLANDE

County Cork
CORK

IRLANDE

County Dublin
DUBLIN

Dublin registry of congenital anomalies - contributes to the EUROCAT network
Dr. Steeven's Hospital
HSE Registry of Congenital Anomalies (East)

IRLANDE

County Kilkenny
KILKENNY

South East of Ireland registry of congenital anomalies - part of BINOCAR and EUROCAT network
Health Service Executive South SE
South East of Ireland registry of congenital anomalies

ITALIE

CAMPANIA
BENEVENTO

Campania registry of congenital anomalies - contributes to the EUROCAT network
A.O.R.N. "Gaetano Rummo"
U.O.C. di Genetica Medica

ITALIE

SICILIA
CATANIA

ISMAC: Sicilian registry of congenital anomalies - contributes to the EUROCAT network
ASMAC
Associazione per la Prevenzione Sociale e per il Trattamento delle Malformazioni Congenite

ITALIE

TOSCANA
PISA

Tuscan Registry of Congenital Anomalies
Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR
Unità di Ricerca Epidemiologia Ambientale e Registri di Patologia

ITALIE

VENETO
PADOVA

North-East of Italy registry of congenital anomalies - contributes to the EUROCAT network
Azienda Ospedaliera di Padova
U.O.C. Genetica Clinica ed Epidemiologica

MALTE

MALTA
G'MANGIA

MALTA CONGENITAL ANOMALIES REGISTRY (MCAR) - it contributes to EUROCAT
Ministry for Health
Directorate of Health Information and Research

PAYS-BAS

Groningen
GRONINGEN

EUROCAT Northern Netherlands - contributes to the international EUROCAT network
UMCG - Universitair Medisch Centrum Groningen
Afdeling Genetica

POLOGNE

Poznan
POZNAN

PRCM: Polish registry of congenital malformations - contributes to the EUROCAT network
Uniwersytet Medyczny im. Karola Marcinkowskiego w Poznaniu
Zaklad Genetyki Medycznej

PORTUGAL

SUL
LISBOA

RENAC - Portuguese registry of congenital anomalies (contributes to the EUROCAT network)
Instituto Nacional de Saúde Dr. Ricardo Jorge - Lisboa
Departamento de Epidemiologia

ROYAUME-UNI

Avon
BRISTOL

SWCAR - South West congenital anomalies registry - part of BINOCAR and EUROCAT network
St Michael's Hospital
South West Congenital Anomaly Register

ROYAUME-UNI

Merseyside
LIVERPOOL

Merseyside and Cheshire registry of congenital anomalies -part of BINOCAR and EUROCAT network
Liverpool Women's NHS Foundation Trust
Mersey Perinatal Epidemiology Unit, Department of Obstetrics & Gynaecology

ROYAUME-UNI

Strathclyde
GLASGOW

Glasgow registry of congenital anomalies - part of BINOCAR and EUROCAT network
Royal Hospital for Sick Children
Paediatric Epidemiology & Community Health (PEACH) Unit

ROYAUME-UNI

West Glamorgan
NEWPORT

National Congenital Anomaly System (NCAS) - part of BINOCAR and EUROCAT network
Office for National Statistics
National Congenital Anomaly System (NCAS)

SUISSE

Suisse Romande
LAUSANNE

ALLEMAGNE

Berlin
BERLIN

Financé par un membre IRDiRCGerman registry for congenital heart defects - part of the competence network for congenital heart defects
Kompetenznetz Angeborene Herzfehler
Nationales Register für angeborene Herzfehler e. V.

ALLEMAGNE

Berlin
BERLIN

Financé par un membre IRDiRCGerman Biobank for congenital heart defects - part of the competence network for congenital heart defects
Kompetenznetz Angeborene Herzfehler
Nationales Register für angeborene Herzfehler e. V.

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Registre français des malformations cardiaques familiales
CHU de Lyon HCL - GH Est
Laboratoire cardiogénétique - Malformations cardiaques congénitales

PAYS-BAS

Noord-Holland
AMSTERDAM

CONCOR: Dutch registration of adult patients with congenital heart disease
AMC - Academisch Medisch Centrum
Afdeling Cardiologie

PAYS-BAS

Noord-Holland
AMSTERDAM

CONCOR: Dutch DNA biobank of adult patients with congenital heart disease
AMC - Academisch Medisch Centrum
Afdeling Cardiologie

PAYS-BAS

Noord-Holland
AMSTERDAM

SUEDE

Skane
LUND

SWEDCON: Swedish Registry of Congenital Heart Disease
Skånes Universitetssjukhus
Cardiology Division

Réseaux de registres et biobanques

ROYAUME-UNI

Antrim and Newtownabbey
NEWTOWNABBEY

ROYAUME-UNI

Tyne & Wear
NEWCASTLE UPON TYNE

BINOCAR: British Isles network of congenital anomaly registries
  • Regional Maternity Survey Office
  • British Isles Network of Congenital Anomaly Registers (BINOCAR)