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Financé par un membre IRDiRC = 
Membre d'un ERN = 
Registres et biobanques
ALLEMAGNE
Baden-Württemberg
TÜBINGEN
ADOReg : Nationwide prospective registry for health services research in dermatologic oncology - sub registry Cutaneous Lymphoma
Universitäts-Hautklinik
ALLEMAGNE
Sachsen-Anhalt
HALLE (SAALE)
German T-cell lymphoma registry (T-NHL) of the German Lymphoma Alliance
Universitätsklinikum Halle (Saale)
Universitätsklinik und Poliklinik für Innere Medizin IV
AUTRICHE
SALZBURG
SALZBURG
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): PTCL registry (T-cell lymphoma in Austria)
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität
Universitätsklinik für Innere Medizin III
ESPAGNE
Madrid
MADRID
Spanish Academy of Dermatology and Venereology (AEDV) Registry of primary cutaneous lymphoma
Academia Espańola de Dermatología y Venereología
Unidad de investigación de la Fundación Academia Espańola de Dermatología y Venereología
FRANCE
ILE-DE-FRANCE
VILLEJUIF
RNHE - Registre national des hémopathies malignes de l'enfant
GHU Paris-Sud - Hôpital Paul Brousse
Epidémiologie environnementale des cancers
FRANCE
NOUVELLE AQUITAINE
BORDEAUX
GFELC registre: registre français des lymphomes cutanés primitifs
CHU de Bordeaux - Hôpital Saint André
Unité de Dermatologie Cancérologie
ALLEMAGNE
Hamburg
HAMBURG
NHL-BFM Registry 2012: Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin Lymphoma diagnosed in children and adolescents
UKE - Universitätsklinikum Hamburg-Eppendorf
Klinik und Poliklinik für Pädiatrische Hämatologie und Onkologie
ALLEMAGNE
Nordrhein-Westfalen
MÜNSTER
NHL-BFM Registry 2012: Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin Lymphoma diagnosed in children and adolescents
Universitätsklinikum Münster
Klinik für Kinder- und Jugendmedizin - Pädiatrische Hämatologie und Onkologie
AUTRICHE
WIEN
WIEN
Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin lymphoma in children and adolescents
St. Anna Kinderspital
Zentrum für Kinder- und Jugendheilkunde
AUTRICHE
WIEN
WIEN
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): ALL-Registry : Registry and Biobank for the collection of clinical data and biomaterial from adult ALL patients
Universitätsklinikum - AKH Wien
Klinische Abteilung für Hämatologie und Hämostaseologie
FRANCE
GRAND-EST
VANDOEUVRE-LČS-NANCY
RNTSE - Registre national des tumeurs solides de l'enfant
Faculté de médecine de Nancy
Registre national des tumeurs solides de l'enfant
ITALIE
TOSCANA
SESTO FIORENTINO (FIRENZE)
Da Vinci European Biobank
Universitŕ degli Studi di Firenze
Da Vinci European Biobank
PAYS-BAS
Gelderland
NIJMEGEN
AGORA: biobank (DNA) for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum
Afdeling Kinderurologie
PAYS-BAS
Gelderland
NIJMEGEN
AGORA: biobank (DNA) for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum
Afdeling Health Evidence
ROYAUME-UNI
Surrey
SUTTON
FCLL - A Genetic Study of Chronic Lymphocytic Leukaemia and Other Lymphoproliferative Disease
The Institute of Cancer Research
Section of Epidemiology
ALLEMAGNE
Baden-Württemberg
HEIDELBERG
Epidemiological cancer registry Baden-Württemberg
Epidemiologisches Krebsregister am DKFZ Heidelberg
Epidemiologisches Krebsregister Baden-Württemberg
ALLEMAGNE
Bayern
MÜNCHEN
MCR - Munich Cancer Registry - contributes to ENCR (European Network of Cancer Registries) and IACR (International Association of Cancer Registries)
LMU Klinikum der Universität München - Campus Großhadern
Tumorregister München
ALLEMAGNE
Bayern
NÜRNBERG
Bavarian Cancer Registy - contributes to ENCR (European Network of Cancer Registries) and IACR (International Association of Cancer Registries)
Registerstelle des Krebsregisters Bayern
ALLEMAGNE
Berlin
BERLIN
Common cancer registry of Berlin, Brandenburg, Mecklenburg-Western Pomerania, Saxony-Anhalt and the free states Saxony and Thuringia
Gemeinsames Krebsregister (GKR)
Registerstelle des Gemeinsamen Krebsregisters (GKR)
ALLEMAGNE
Bremen
BREMEN
Bremen cancer registry
Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS)
Registerstelle des Bremer Krebsregisters
ALLEMAGNE
Hamburg
HAMBURG
Hamburg cancer registry - contributes to ECIS (European Cancer Information System) and GCO (Global Cancer Observatory)
Behörde für Wissenschaft, Forschung, Gleichstellung und Bezirke
Hamburgisches Krebsregister
ALLEMAGNE
Rheinland-Pfalz
MAINZ
German childhood cancer registry (Partner of ACCIS: Automated Childhood Cancer Information System, Member of IACR and ENCR)
Institut für Medizinische Biometrie, Epidemiologie und Informatik (IMBEI)
Deutsches Kinderkrebsregister am IMBEI
ALLEMAGNE
Rheinland-Pfalz
MAINZ
GLA Registry for Malignant Lymphoma of the German Lymphoma Alliance
Universitätsmedizin Mainz
III. Medizinische Klinik und Poliklinik
ALLEMAGNE
Saarland
SAARBRÜCKEN
Saarland Cancer Registry - contributes to ECIS (European Cancer Information System), IARC (International Agency for Research on Cancer) and RARECARE
Ministerium für Arbeit, Soziales, Frauen und Gesundheit
Krebsregister Saarland
ALLEMAGNE
Schleswig-Holstein
KIEL
German central children tumor registry
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel
ALLEMAGNE
Schleswig-Holstein
LÜBECK
Schleswig-Holstein cancer registry
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein
AUSTRALIE
Victoria
MEKBOURNE
Lymphoma and Related Diseases Registry (LaRDR)
Monash University
Department of Epidemiology & Preventive Medicine
AUTRICHE
WIEN
WIEN
Austrian national cancer registry - contributes to the RARECARE project
Österreichisches Krebsregister
ESPAGNE
Cataluńa
ESPLUGUES DE LLOBREGAT
Pediatric Biobank for Research
Fundació Sant Joan de Déu - Institut de Recerca Sant Joan de Déu
Biobanco Pediátrico para la Investigación
ESTONIE
Tallinn
TALLINN
Estonian cancer registry - contributes to the RARECARENet project
National Institute for Health Development
Estonian Cancer Registry
FINLANDE
Finland
HELSINKI
Finnish cancer registry - contributes to the RARECARE project
Syöpätautien tilastollinen ja epidemiologinen tutkimuslaitos
Finnish Cancer Registry
FRANCE
ILE-DE-FRANCE
VILLEJUIF
Registre français des lymphomes de l'adulte
GHU Paris-Sud - Hôpital Paul Brousse
Epidémiologie environnementale des cancers
ITALIE
LOMBARDIA
MILANO
ERN [EURACAN] - STARTER: STarting an Adult Rare Tumor European Registry
Fondazione IRCCS Istituto Nazionale dei Tumori
Fondazione IRCCS - Istituto Nazionale dei Tumori
ITALIE
VENETO
PADOVA
ERN [PAEDCAN] - PARTNER: Paediatric Rare Tumours Networks - European Registry
Azienda Ospedaliera di Padova
POLOGNE
Kielce
KIELCE
Kielce cancer registry - contributes to the RARECARE project
Holycross Cancer Centre
Department of Cancer Control & Epidemiology
POLOGNE
Kraków
KRAKOW
Cracow cancer registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie, Oddzial w Krakowie
Department of Epidemiology
PORTUGAL
NORTE
PORTO
Tumour bank
Centro Hospitalar Universitário de S. Joăo, EPE - CHUSJ, EPE
Serviço de Anatomia Patológica - CHUSJ, EPE
PORTUGAL
SUL
LISBOA
Southern Portugal cancer registry - contributes to the RARECARE project
Instituto Portuguęs de Oncologia de Lisboa Francisco Gentil, EPE
Registo Oncológico Regional Sul
SLOVENIE
SLOVENIA
LJUBLJANA
Cancer Registry of Republic of Slovenia - contributes to the RARECARE project
Institute of Oncology Ljubljana
Cancer Registry of Slovenia
SUEDE
Region Stockholm
SOLNA
SBCR: Swedish Childhood Cancer Registry
Astrid Lindgrens Barnsjukhus
Astrid Lindgren Children's Hospital
ALLEMAGNE
Schleswig-Holstein
KIEL
German Lymph Node Registry - tumor bank
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Sektion Hämatopathologie und Lymphknotenregister am Institut für Pathologie
BELGIQUE
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Registre Central des Maladies Rares / Centraal Register Zeldzame Ziekten
Sciensano
Health Services Research - Rare Diseases
ESPAGNE
Andalucía
SEVILLA
Registry for rare diseases in Andalusia (Spain)
Junta de Andalucía. Consejería de Salud y Bienestar Social
Subdirección Técnica Asesora de Gestión de la Información
ESPAGNE
Aragón
ZARAGOZA
Rare disease registry of Aragon (Spain)
Gobierno de Aragón. Departamento de Sanidad
Servicio de Evaluación y Acreditación Sanitaria
ESPAGNE
Cantabria
SANTANDER
Population registry of rare diseases and congenital anomalies of Cantabria (Spain)
Gobierno de Cantabria. Consejería de Sanidad y Servicios Sociales
Servicio de Atención Sanitaria
ESPAGNE
Comunidad Valenciana
VALENCIA
SIER-CV: Information System on rare diseases in Valencian Community (Spain)
Generalitat Valenciana. Conselleria de Sanitat
Servicio de Estudios Epidemiológicos y Vigilancia de Enfermedades No Transmisibles
ESPAGNE
Extremadura
MÉRIDA
Registry for rare diseases in Extremadura (Spain)
Junta de Extremadura. Servicio Extremeńo de Salud
Subdirector de Epidemiología
ESPAGNE
Galicia
SANTIAGO DE COMPOSTELA
RERGA: Registry for rare diseases in Galicia (Spain)
Servicio Gallego de Salud
Servicio de Atención Hospitalaria
ESPAGNE
Madrid
MADRID
RePER: Rare Diseases Patient Registry
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
ESPAGNE
Murcia
MURCIA
SIERrm: Information System on rare diseases in the Region of Murcia (Spain)
Región de Murcia. Consejería de Sanidad y Política Social
Servicio de Planificación y Financiación Sanitaria
ESPAGNE
Navarra
PAMPLONA
RERNA: Population-based Rare Disease Registry of Navarre (Spain)
Instituto de Salud Pública y Laboral de Navarra
Observatorio de la Salud Comunitaria
ESPAGNE
País Vasco
BARAKALDO
Basque Biobank
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco
ESPAGNE
País Vasco
VITORIA-GASTEIZ
Rare Diseases Registry of the Basque Country
Gobierno Vasco. Departamento de Salud
Registro de Enfermedades Raras de la Comunidad Autónoma de Euskadi
ETATS-UNIS
South Dakota
SIOUX FALLS
CORDS Registry: Coordination of Rare Diseases at Sanford Registry
Sanford Research
Standford Research
ITALIE
LAZIO
ROMA
RNMR: Italian National Rare Diseases Registry
ISS - Istituto Superiore di Sanitŕ
Centro Nazionale Malattie Rare
ITALIE
TOSCANA
PISA
Tuscan Registry of Rare Diseases
Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR
Fondazione Toscana Gabriele Monasterio
ITALIE
VENETO
PADOVA
Rare Diseases Registry - Veneto Region
Azienda Ospedaliera di Padova
Coordinamento Malattie Rare Regione del Veneto
FRANCE
BOURGOGNE-FRANCHE-COMTE
DIJON
RHEMCO - Registre des hémopathies malignes de Côte d'Or
Université de Bourgogne
Faculté de Médecine
FRANCE
NORMANDIE
CAEN
Registre des hémopathies malignes de Basse Normandie
CHU de Caen - Hôpital de la Côte de Nacre
Laboratoire d'hématologie biologique
FRANCE
NOUVELLE AQUITAINE
BORDEAUX
Registre des hémopathies malignes de la Gironde
CLCC Institut Bergonié
Service d'information médicale et de surveillance épidémiologique
ROYAUME-UNI
West Midlands
BIRMINGHAM
CEHRB - Central England Haemato-Oncology Research Biobank
Birmingham Women's NHS Foundation Trust
Birmingham Women's and Children's
ROYAUME-UNI
West Midlands
BIRMINGHAM
CEHRB - Central England Haemato-Oncology Research Biobank
Birmingham Women's NHS Foundation Trust
West Midlands Regional Genetics Laboratory (part of the West Midlands Regional Genetics Service)
ESPAGNE
Madrid
MADRID
ERN [TRANSPLANT-CHILD] - PETER: PaEdiatric Transplantation European Registry
Hospital Universitario La Paz
Servicio de Hepatología infantil
Réseaux de registres et biobanques
ITALIE
LOMBARDIA
VARESE
ENCR: European Network of Cancer Registries
European Commission's Joint Research Centre in Ispra
European Commission's Joint Research Centre
MALTE
MALTA
MALTA