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Finanziato da un ente associato a IRDiRC =

Registri and biobanche

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

ERCUSYN: European registry on Cushing's syndrome
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Finanziato da un ente associato a IRDiRCEIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

European Porphyria Registry (EPR)
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Finanziato da un ente associato a IRDiRCEIMD: Registro e network europeo per malattia metabolica da intossicazione
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Registro per le sindromi di Wolfram, Alström , Bardet-Biedl e altre sindromi rare - afferisce al network EURO-WABB
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Finanziato da un ente associato a IRDiRCEIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Finanziato da un ente associato a IRDiRCEUROMAC: Registry of patients affected by McArdle Disease
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Finanziato da un ente associato a IRDiRCIrish Registry for homocystinurias and methylation defects - contributes to E-HOD
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

E-HOD - European network and registry for homocystinurias and methylation defects (contributes to U-IMD)
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Finanziato da un ente associato a IRDiRCERN [PAEDCAN] - PARTNER: Paediatric Rare Tumours Networks - European Registry
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Finanziato da un ente associato a IRDiRCERN [Endo-ERN] - EuRRECa: European Registries for Rare Endocrine Conditions
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Finanziato da un ente associato a IRDiRCERN [RITA] - MERITA: UN REGISTRO DI METADATI PER ERN RITA
European Commission
DG SANTE - Directorate General for Health and Food Safety

Network di registri and biobanche

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Finanziato da un ente associato a IRDiRCEUROCAT: European surveillance of congenital anomalies
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIO

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIO

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    EUROFEVER: PReS network europeo di registri sulle sindromi autoinfiammatorie in età pediatrica
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIO

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    SCNIR: Severe Chronic Neutropenia International Registry
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIO

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Finanziato da un ente associato a IRDiRCE-IMD : European registry and network for Intoxication type Metabolic Diseases
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIO

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    BELGIO

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Finanziato da un ente associato a IRDiRCE-HOD - European network and registry for homocystinurias and methylation defects
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • GERMANIA

    Baden-Württemberg
    HEIDELBERG

    Finanziato da un ente associato a IRDiRCE-IMD : European registry and network for Intoxication type Metabolic Diseases
  • Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik
  • Klinik für Kinderheilkunde I - Sektion für Neuropädiatrie und Stoffwechselmedizin
  • GERMANIA

    Niedersachsen
    HANNOVER

    SCNIR: Severe Chronic Neutropenia International Registry
  • Medizinische Hochschule Hannover
  • SCNIR - Europazentrale
  • ITALIA

    LIGURIA
    GENOVA

    EUROFEVER: PReS network europeo di registri sulle sindromi autoinfiammatorie in età pediatrica
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie
  • PAESI BASSI

    Noord-Holland
    AMSTERDAM

    Finanziato da un ente associato a IRDiRCE-HOD - European network and registry for homocystinurias and methylation defects
  • Amsterdam UMC, locatie VUmc
  • Afdeling Interne Geneeskunde
  • PAESI BASSI

    Zuid-Holland
    LEIDEN

    PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
  • LUMC - Leids Universitair Medisch Centrum
  • Afdeling Longziekten
  • REGNO UNITO; GRAN BRETAGNA

    Antrim and Newtownabbey
    NEWTOWNABBEY

    REGNO UNITO; GRAN BRETAGNA

    West Midlands
    BIRMINGHAM