Cerca un registro/una biobanca
Altra/e opzione/i di ricerca
68 Risultato/i
Finanziato da un ente associato a IRDiRC = 
Membro di una ERN = 
Registri and biobanche
AUSTRIA
TIROL
INNSBRUCK
Innsbruck registry for Adamantiades-Behcet disease: Retrospective and prospective data collection
Medizinische Universität Innsbruck
Universitätsklinik für Innere Medizin II
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
BSSC: The Belgian Systemic Sclerosis Cohort
Cliniques Universitaires de Bruxelles - Hôpital Erasme
Department of Internal Medicine/Médecine interne
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
BSSC: The Belgian Systemic Sclerosis Cohort
Cliniques universitaires Saint-Luc - UCLouvain
Service de rhumatologie
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
BSSC: The Belgian Systemic Sclerosis Cohort
Cliniques universitaires Saint-Luc - UCLouvain
Centre multidisciplinaire de prise en charge de la sclérodermie
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
CRRD: Central Registry of Rare Diseases
Sciensano
Health Services Research - Rare Diseases
BELGIO
OOST-VLAANDEREN
GENT
BSSC: The Belgian Systemic Sclerosis Cohort
Ghent University Hospital - UZ Gent
Gentse Universitaire Scleroderma Unit (GUSU)
BELGIO
VLAAMS BRABANT
LEUVEN
BSSC: The Belgian Systemic Sclerosis Cohort
UZ Leuven - Campus Gasthuisberg
Department of Rheumatology/Dienst Reumatologie
FRANCIA
ILE-DE-FRANCE
LE KREMLIN-BICÊTRE
Establishment of children and adolescents cohort in Behcet disease in France
APHP. Université Paris-Saclay, Hôpital Bicêtre
Service de Rhumatologie pédiatrique
FRANCIA
ILE-DE-FRANCE
LE KREMLIN-BICÊTRE
DNA bank for child's Behcet disease in France
APHP. Université Paris-Saclay, Hôpital Bicêtre
Service de Rhumatologie pédiatrique
FRANCIA
ILE-DE-FRANCE
PARIS
French National Registry for Rare Diseases (BNDMR)
AP-HP Campus Picpus - Département WIND (Web Innovation Données)
Banque Nationale de Données Maladies Rares (BNDMR)
FRANCIA
ILE-DE-FRANCE
PARIS
RaDiCo-ACOSTILL: National cohort on adult and childhood onset Still disease
AP-HP.Sorbonne Université - Hôpital de la Pitié-Salpêtrière
Service de rhumatologie
FRANCIA
ILE-DE-FRANCE
PARIS
MATHEC-SFGM-TC registry
GHU AP-HP Nord. Université de Paris - Hôpital Saint-Louis
Unité de Médecine Interne (UF 04): CRMR MATHEC, Maladies Auto-immunes et Thérapie Cellulaire
FRANCIA
ILE-DE-FRANCE
PARIS
Biological collection in sarcoidosis in France
GHU AP-HP Nord. Université de Paris - Hôpital Saint-Louis
Service de pneumologie
FRANCIA
ILE-DE-FRANCE
PARIS
RaDiCo-ACOSTILL: National cohort on adult and childhood onset Still disease
Groupe hospitalier AP-HP.6 - Hôpital Tenon
Service de médecine interne
GERMANIA
Baden-Württemberg
HEIDELBERG
CERTAIN: Cooperative European Paediatric Renal Transplant Initiative registry
Universitätsmedizin Heidelberg
Zentrum für Seltene Erkrankungen (ZSE) Heidelberg
GERMANIA
Baden-Württemberg
HEIDELBERG
ERN [ERKNet] - ERKReg: The European Rare Kidney Disease Registry
Universitätsmedizin Heidelberg
Zentrum für Seltene Erkrankungen (ZSE) Heidelberg
GERMANIA
Bayern
MÜNCHEN
MD-NET: Muscle Tissue Culture Collection (MTCC) (EuroBioBank partner)
Friedrich-Baur-Institut
Friedrich-Baur-Institut an der Neurologischen Klinik und Poliklinik
GERMANIA
Hessen
GIEßEN
Giessen PNEUMObank
Med. Klinik und Poliklinik II des UKGM am Standort Gießen
Schwerpunkt Pneumologie und Intensivmedizin - Fibrosierende Lungenerkrankungen
GERMANIA
Nordrhein-Westfalen
KÖLN
Patient registry of the German Network for Systemic Scleroderma
Universitätsklinikum Köln
Koordinierungszentrale des DNSS
GERMANIA
Sachsen-Anhalt
DESSAU
German registry for Morbus Adamantiades-Behçet e.V.
Städtisches Klinikum Dessau
Deutsches Register Morbus Adamantiades-Behçet e.V.
GERMANIA
Schleswig-Holstein
BORSTEL
BMB Nord: BioMaterialBank Nord
Forschungszentrum Borstel Leibniz Lungenzentrum
GERMANIA
Schleswig-Holstein
KIEL
POPGEN biobank
Christian-Albrechts-Universität zu Kiel -UKSH
Institut für Epidemiologie
ITALIA
CALABRIA
CATANZARO
Registro italiano della malattia di Behçet
Azienda Ospedaliera Universitaria "Mater Domini"
Ambulatorio di Reumatologia e Immunologia Pediatrica
ITALIA
LAZIO
ROMA
FMF: Registro Italiano della febbre mediterranea familiare nei giovani
Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Centro delle Febbri Periodiche - Istituto di Medicina Interna
ITALIA
LAZIO
ROMA
Registro italiano di pazienti adulti affetti da febbre mediterranea familiare
Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Centro delle Febbri Periodiche - Istituto di Medicina Interna
ITALIA
LAZIO
ROMA
RNMR: Registro Nazionale Malattie Rare
ISS - Istituto Superiore di Sanità
Centro Nazionale Malattie Rare
ITALIA
TOSCANA
PISA
Registro Toscano Malattie Rare
Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR
Fondazione Toscana Gabriele Monasterio
ITALIA
VENETO
PADOVA
Registro Malattie Rare della Regione Veneto
Azienda Ospedaliera di Padova
Coordinamento Malattie Rare Regione del Veneto
PAESI BASSI
Noord-Holland
AMSTERDAM
ESPN/ERA-EDTA Registry: European Registry for Children on Renal Replacement Therapy
Amsterdam UMC, locatie AMC
Afdeling Klinische Informatiekunde
PAESI BASSI
Utrecht
NIEUWEGEIN
Biobank of Interstitial Lung Diseases (DNA/serum/plasma/BAL fluid)
St. Antonius Ziekenhuis, locatie Nieuwegein
Longcentrum
REGNO UNITO; GRAN BRETAGNA
Avon
BRISTOL
UK renal rare disease biobank
Southmead Hospital
Academic Renal Unit
REGNO UNITO; GRAN BRETAGNA
Greater London
LONDON
Juvenile Dermatomyositis Cohort Biomarker Study and Repository
GOSH NHS Foundatin Trust
Rheumatology Unit
REGNO UNITO; GRAN BRETAGNA
Greater London
LONDON
Juvenile Dermatomyositis Cohort Biomarker Study and Repository
Institute of Child Health
Juvenile Dermatomyositis Cohort Biomarker Study & Repository
REGNO UNITO; GRAN BRETAGNA
Greater London
LONDON
Juvenile Dermatomyositis Cohort Biomarker Study and Repository
The Institute of Child Health & The Division of Medicine, UCL
The Institute of Child Health & The Division of Medicine
REGNO UNITO; GRAN BRETAGNA
Merseyside
LIVERPOOL
Juvenile Dermatomyositis Cohort Biomarker Study and Repository
Alder Hey Children's Hospital
Department of Rheumatology
REGNO UNITO; GRAN BRETAGNA
West Midlands
BIRMINGHAM
RaDaR : UK National Registry of Rare Kidney Diseases
Birmingham Children's Hospital NHS Foundation Trust
Birmingham Children's Hospital
SPAGNA
Andalucía
SEVILLA
Registry for rare diseases in Andalusia (Spain)
Junta de Andalucía. Consejería de Salud y Bienestar Social
Subdirección Técnica Asesora de Gestión de la Información
SPAGNA
Aragón
ZARAGOZA
Rare disease registry of Aragon (Spain)
Gobierno de Aragón. Departamento de Sanidad
Servicio de Evaluación y Acreditación Sanitaria
SPAGNA
Cantabria
SANTANDER
Population registry of rare diseases and congenital anomalies of Cantabria (Spain)
Gobierno de Cantabria. Consejería de Sanidad y Servicios Sociales
Servicio de Atención Sanitaria
SPAGNA
Comunidad Valenciana
VALENCIA
SIER-CV: Information System on rare diseases in Valencian Community (Spain)
Generalitat Valenciana. Conselleria de Sanitat Universal i Salut Pública
Servicio de Estudios Epidemiológicos y Vigilancia de Enfermedades No Transmisibles
SPAGNA
Extremadura
MÉRIDA
Registry for rare diseases in Extremadura (Spain)
Junta de Extremadura. Servicio Extremeño de Salud
Subdirector de Epidemiología
SPAGNA
Galicia
SANTIAGO DE COMPOSTELA
RERGA: Registry for rare diseases in Galicia (Spain)
Servicio Gallego de Salud
Servicio de Atención Hospitalaria
SPAGNA
Madrid
MADRID
RePER: Rare Diseases Patient Registry
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
SPAGNA
Murcia
MURCIA
SIERrm: Information System on rare diseases in the Region of Murcia (Spain)
Región de Murcia. Consejería de Sanidad y Política Social
Servicio de Planificación y Financiación Sanitaria
SPAGNA
Navarra
PAMPLONA
RERNA: Population-based Rare Disease Registry of Navarre (Spain)
Instituto de Salud Pública y Laboral de Navarra
Observatorio de la Salud Comunitaria
SPAGNA
País Vasco
BARAKALDO
Basque Biobank
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco
SPAGNA
País Vasco
VITORIA-GASTEIZ
Rare Diseases Registry of the Basque Country
Gobierno Vasco. Departamento de Salud
Registro de Enfermedades Raras de la Comunidad Autónoma de Euskadi
STATI UNITI
South Dakota
SIOUX FALLS
CORDS Registry: Coordination of Rare Diseases at Sanford Registry
Sanford Research
Standford Research
SVIZZERA
Suisse Alémanique
BERN
Swiss Rare Disease Registry (SRSK)
Institute of Social and Preventive Medicine (ISPM)
SVIZZERA
Suisse Alémanique
ZÜRICH
Swiss Rare Disease Registry (SRSK)
Universitäts - Kinderspital Zürich - Eleonorenstiftung
Abteilung für Stoffwechselkrankheiten
TURCHIA
TURKEY
ISTANBUL
Database setup for the visualisation and examination of oral ulcers in Behcet disease patients
Acibadem University
Department of internal medicine
FRANCIA
ILE-DE-FRANCE
PARIS
French auto-immunity and Rituximab (AIR) registry: prospective study of patients treated with Rituximab
AP-HP.Centre - Université de Paris - Hôpital Cochin
Unité fonctionnelle de Médecine interne et centre de référence maladies rares
GERMANIA
Baden-Württemberg
FREIBURG
PSHN Registry - Purpura Schoenlein-Henoch-Nephritis registry of the German society for paediatric nephrology (GPN)
Zentrum für Kinder- und Jugendmedizin Freiburg
Sektion Kindernephrologie der Klinik für Allgemeine Kinder- und Jugendmedizin
GERMANIA
Hamburg
HAMBURG
Hamburg Glomerulonephritis Registry (subproject SFB 1192: Immune-Mediated Glomerular Diseases - Basic Concepts and Clinical Implications)
UKE - Universitätsklinikum Hamburg-Eppendorf
III. Medizinische Klinik und Poliklinik
GERMANIA
Niedersachsen
HANNOVER
Lupus Nephritis Registry of the German Society of Paediatric Nephrology
Medizinische Hochschule Hannover
Klinik für Pädiatrische Nieren-, Leber- und Stoffwechselerkrankungen
IRLANDA
County Dublin
DUBLIN
The Irish Rare Kidney Disease Registry and Biobank
St James's Hospital
Trinity Health Kidney Centre - Trinity College Dublin
IRLANDA
County Dublin
DUBLIN
The Irish Rare Kidney Disease Registry and Biobank
Tallaght University Hospital
Trinity Health Kidney Centre
SPAGNA
Baleares
PALMA DE MALLORCA
RERIB: Population registry of rare diseases of Balearic Islands (Spain)
Govern de les Illes Balears. Consejería de Salud y Consumo
Servicio de Epidemiología
SPAGNA
Canarias
LAS PALMAS DE GRAN CANARIA
Spanish Rheumatology Society Lupus Registry
Hospital Universitario de Gran Canaria Dr. Negrín
Servicio de Reumatología
SPAGNA
Madrid
MADRID
SIERMA: Information system on rare diseases in Madrid (Spain)
Comunidad de Madrid. Direccion General de Salud Publica
Subdirección General de Vigilancia en Salud Pública
SPAGNA
Madrid
MADRID
ERN [TRANSPLANT-CHILD] - PETER: PaEdiatric Transplantation European Registry
Hospital Universitario La Paz
Servicio de Hepatología infantil
SVEZIA
Region Stockholm
SOLNA
IRBIS: International registry for biologics in systemic lupus erythematosus
Karolinska Institutet
Department of Medicine, Solna (MedS)
SVIZZERA
Suisse Alémanique
BASEL
Swiss SLE Cohort Study
Universitätsspital Basel
Association of the Swiss SLE Cohort Study (ASSCS)
SVIZZERA
Suisse Alémanique
BERN
Swiss Paediatric Renal Registry
Institute of Social and Preventive Medicine (ISPM)
Network di registri and biobanche
FRANCIA
ILE-DE-FRANCE
PARIS
ImmunAID Cohort: Cohort of patients with rare systemic auto-inflammatory diseases
AP-HP.Sorbonne Université - Hôpital de la Pitié-Salpêtrière
Service de rhumatologie
ITALIA
LIGURIA
GENOVA
EUROFEVER: PReS network europeo di registri sulle sindromi autoinfiammatorie in età pediatrica
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie
REGNO UNITO; GRAN BRETAGNA
Greater London
LONDON