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Finanziato da un ente associato a IRDiRC =

Registri and biobanche

FRANCIA

ILE-DE-FRANCE
PARIS

BLAU registry: French pediatric granulomatous arthritis registry
Hôpital Necker-Enfants Malades
Service d'Immuno-hématologie pédiatrique - Rhumatologie

CANADA

Colombie-Britannique
VANCOUVER

Glomerulonephritis Registry
Centre for Health Evaluation and Outcome Sciences (CHEOS)
Department of Nephrology

FRANCIA

ILE-DE-FRANCE
PARIS

French auto-immunity and Rituximab (AIR) registry: prospective study of patients treated with Rituximab
CHU Paris Centre - Hôpital Cochin, Site Cochin
Unité fonctionnelle de Médecine interne et centre de référence maladies rares

GERMANIA

Berlin
BERLIN

Core documentation of children and adolescens with rheumatic diseases
Deutsches Rheuma-Forschungszentrum Berlin
Forschungsbereich Epidemiologie

GERMANIA

Schleswig-Holstein
LÜBECK

GeVas: German Vasculitis Registry
Universitätsklinikum Schleswig-Holstein - Campus Lübeck
Klinik für Rheumatologie und Klinische Immunologie

IRLANDA

County Dublin
DUBLIN

The Irish Rare Kidney Disease Registry and Biobank
St James's Hospital
Trinity Health Kidney Centre - Trinity College Dublin

PAESI BASSI

Noord-Holland
AMSTERDAM

REGNO UNITO; GRAN BRETAGNA

Greater London
LONDON

UK and Ireland Vasculitis registry (UKIVAS)
Royal Free London Hospital
University College London, Centre for Nephrology

REGNO UNITO; GRAN BRETAGNA

Oxfordshire
OXFORD

UK and Ireland Vasculitis registry (UKIVAS)
Nuffield Orthopaedic Centre
Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences

SVIZZERA

Suisse Romande
ETOY

JIRcohorte
Fondation rhumatismes-enfants-suisse

SVIZZERA

Suisse Romande
LAUSANNE

JIRcohorte
Centre Hospitalier Universitaire Vaudois CHUV
URIRP - Unité Romande d'Immuno-Rhumatologie Pédiatrique

FRANCIA

ILE-DE-FRANCE
PARIS

French National Registry for Rare Diseases (BNDMR)
AP-HP Campus Picpus - Département WIND (Web Innovation Données)
Banque Nationale de Données Maladies Rares (BNDMR)

PAESI BASSI

Utrecht
NIEUWEGEIN

Finanziato da un ente associato a IRDiRCBiobank of Interstitial Lung Diseases (DNA/serum/plasma/BAL fluid)
St. Antonius Ziekenhuis, locatie Nieuwegein
Longcentrum

FRANCIA

ILE-DE-FRANCE
PARIS

Finanziato da un ente associato a IRDiRCNational cohort on Idiopathic Interstitial Pneumonia from infancy to elderly
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau
Service de pneumologie pédiatrique

ITALIA

EMILIA ROMAGNA
BOLOGNA

RIPID - Registro Italiano delle pneumopatie infiltrative diffuse
Policlinico S. Orsola-Malpighi - Area S. Orsola
U.O. Pneumologia e Terapia Intensiva Respiratoria

REGNO UNITO; GRAN BRETAGNA

Lothian
EDINBURGH

Finanziato da un ente associato a IRDiRCChILD-EU Database and Observational Study; European Management Platform for Childhood Interstitial Lung Diseases
Royal Hospital for Sick Children
Department of Respiratory, Sleep & General Medicine

Network di registri and biobanche

IRLANDA

County Dublin
DUBLIN

UKIVAS - UK and Ireland registry of autoimmune vasculitides
  • St James's Hospital
  • Trinity Health Kidney Centre - Trinity College Dublin