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Registers en biobanken

ILE-DE-FRANCE
VILLEJUIF
French registry of child hematological malignancies
GHU Paris-Sud - Hôpital Paul Brousse
Epidémiologie environnementale des cancers

Baden-Württemberg
ULM
German marginal zone lymphoma registry
Universitätsklinikum Ulm
Institut für Experimentelle Tumorforschung

WIEN
WIEN
NF-10 - Prospective collection of potentially prognostically relevant data in patients with indolent non-follicular B-cell lymphoma
Allgemeines Krankenhaus der Stadt Wien
Klinische Abteilung für Onkologie

Hessen
GIEßEN
NHL-BFM Registry 2012: Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin Lymphoma diagnosed in children and adolescents
Kinderklinik des UKGM am Standort Gießen
Abteilung für Pädiatrische Hämatologie und Onkologie

Nordrhein-Westfalen
MÜNSTER
NHL-BFM Registry 2012: Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin Lymphoma diagnosed in children and adolescents
Universitätsklinikum Münster
Klinik für Kinder- und Jugendmedizin - Pädiatrische Hämatologie und Onkologie

Gelderland
NIJMEGEN
AGORA: biobank (DNA) voor aangeboren afwijkingen en kinderkanker
Radboudumc - Radboud universitair medisch centrum
Afdeling Kinderurologie

Gelderland
NIJMEGEN
AGORA: biobank (DNA) voor aangeboren afwijkingen en kinderkanker
Radboudumc - Radboud universitair medisch centrum
Afdeling Health Evidence

WIEN
WIEN
Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin lymphoma in children and adolescents
St. Anna Kinderspital
Zentrum für Kinder- und Jugendheilkunde

Surrey
SUTTON
FCLL - A Genetic Study of Chronic Lymphocytic Leukaemia and Other Lymphoproliferative Disease
The Institute of Cancer Research
Section of Epidemiology

Victoria
MEKBOURNE
Lymphoma and Related Diseases Registry (LaRDR)
Monash University
Department of Epidemiology & Preventive Medicine

ILE-DE-FRANCE
VILLEJUIF
French registry of adult lymphomas
GHU Paris-Sud - Hôpital Paul Brousse
Epidémiologie environnementale des cancers

Schleswig-Holstein
KIEL
German Lymph Node Registry - tumor bank
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Sektion Hämatopathologie und Lymphknotenregister am Institut für Pathologie

BOURGOGNE-FRANCHE-COMTE
DIJON
Côte d'Or registry of hematological malignancies
Université de Bourgogne
Faculté de Médecine

NORMANDIE
CAEN
Basse Normandie registry of hematological malignancies
CHU de Caen - Hôpital de la Côte de Nacre
Laboratoire d'hématologie biologique

NOUVELLE AQUITAINE
BORDEAUX
Gironde registry of hematological malignancies
CLCC Institut Bergonié
Service d'information médicale et de surveillance épidémiologique

West Midlands
BIRMINGHAM
CEHRB - Central England Haemato-Oncology Research Biobank
Birmingham Women's NHS Foundation Trust
Birmingham Women's and Children's

West Midlands
BIRMINGHAM
CEHRB - Central England Haemato-Oncology Research Biobank
Birmingham Women's NHS Foundation Trust
West Midlands Regional Genetics Laboratory (part of the West Midlands Regional Genetics Service)

Baden-Württemberg
HEIDELBERG
Epidemiological cancer registry Baden-Württemberg
Epidemiologisches Krebsregister am DKFZ Heidelberg
Epidemiologisches Krebsregister Baden-Württemberg

Bayern
MÜNCHEN
MCR - Munich Cancer Registry
LMU Klinikum der Universität München - Campus Großhadern
Tumorregister München

Bayern
NÜRNBERG
Bayern population based cancer registry
Registerstelle des Krebsregisters Bayern

Berlin
BERLIN
Common cancer registry of Berlin, Brandenburg, Mecklenburg-Western Pomerania, Saxony-Anhalt and the free states Saxony and Thuringia
Gemeinsames Krebsregister (GKR)
Registerstelle des Gemeinsamen Krebsregisters (GKR)

Bremen
BREMEN
Bremen cancer registry
Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS)
Registerstelle des Bremer Krebsregisters

Hamburg
HAMBURG
Hamburg cancer registry
Behörde für Wissenschaft, Forschung, Gleichstellung und Bezirke
Hamburgisches Krebsregister

Rheinland-Pfalz
MAINZ
German childhood cancer registry (Partner of ACCIS: Automated Childhood Cancer Information System, Member of IACR and ENCR)
Institut für Medizinische Biometrie, Epidemiologie und Informatik (IMBEI)
Deutsches Kinderkrebsregister am IMBEI

Saarland
SAARBRÜCKEN
EKRS: Saarland Cancer Registry - contributes to the RARECARE Project
Epidemiologisches Krebsregister Saarland

Schleswig-Holstein
KIEL
German central children tumor registry
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel

Schleswig-Holstein
LÜBECK
Schleswig-Holstein cancer registry
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein

Tallinn
TALLINN
Estonian cancer registry - contributes to the RARECARENet project
National Institute for Health Development
Estonian Cancer Registry

Finland
HELSINKI
Finnish cancer registry - contributes to the RARECARE project
Syöpätautien tilastollinen ja epidemiologinen tutkimuslaitos
Finnish Cancer Registry

ILE-DE-FRANCE
PARIS
ERN [PAEDCAN] - PARTNER: Paediatric Rare Tumours Networks - European Registry
CLCC Institut Curie
Institut Curie

ICELAND
REYKJAVIK
Icelander cancer registry - contributes to the RARECARE project
Icelandic Cancer Registry

LOMBARDIA
MILANO
ERN [EURACAN] - STARTER: STarting an Adult Rare Tumor European Registry
Fondazione IRCCS Istituto Nazionale dei Tumori
Fondazione IRCCS - Istituto Nazionale dei Tumori

MALTA
GUARDAMANGIA
Maltese cancer registry - contributes to the RARECARE project
Departement of Health Information
Malta National Cancer Registry

Řstlandet
OSLO
Norwegian cancer registry - contributes to the RARECARE project
Institute of Population-Based Cancer Research
Cancer Registry of Norway

WIEN
WIEN
Austrian cancer registry - contributes to the RARECARE project
Österreichisches Krebsregister

Kielce
KIELCE
Kielce cancer registry - contributes to the RARECARE project
Holycross Cancer Centre
Department of Cancer Control & Epidemiology

Kraków
KRAKOW
Cracow cancer registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie, Oddzial w Krakowie
Department of Epidemiology

Warszawa
WARSZAWA
Mazovian Cancer Registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie
Cancer Center and Institute of Oncology

NORTE
PORTO
Tumour bank
Centro Hospitalar Universitário de S. Joăo, EPE
Serviço de Anatomia Patológica

SUL
LISBOA
Southern Portugal cancer registry - contributes to the RARECARE project
Instituto Portuguęs de Oncologia de Lisboa de Francisco Gentil, EPE
Registo Oncológico Regional Sul

SLOVENIA
LJUBLJANA
Slovenian cancer registry - contributes to the RARECARE project
Institute of Oncology Ljubljana
Cancer Registry of Slovenia

Bratislavsky kraj
BRATISLAVA
National cancer registry (contributes to the RARECARE project)
National Health Information Center
National Cancer Registry

Andalucía
SEVILLA
Registry for rare diseases in Andalusia (Spain)
Junta de Andalucía. Consejería de Salud y Bienestar Social
Dirección General de Calidad, Investigación y Gestión del Conocimiento

Aragón
ZARAGOZA
Rare disease registry of Aragon (Spain)
Gobierno de Aragón. Departamento de Sanidad, Bienestar Social y Familia
Servicio de Evaluación y Acreditación Sanitaria

Baleares
PALMA DE MALLORCA
Population registry of rare diseases of Balearic Islands (Spain)
Govern de les Illes Balears. Dirección General de Salud Pública y Consumo
Servicio de Epidemiología

Baleares
PALMA DE MALLORCA
Population registry of rare diseases of Balearic Islands (Spain)
Govern de les Illes Balears. Dirección General de Salud Pública y Consumo
Dirección General de Salud Pública y Consumo

Cantabria
SANTANDER
Population registry of rare diseases and congenital anomalies of Cantabria (Spain)
Gobierno de Cantabria. Consejería de Sanidad y Servicios Sociales
Servicio de Atención Sanitaria

Cataluńa
ESPLUGUES DE LLOBREGAT
Biobank of the Sant Joan de Déu Children's Hospital for Research (BHISJDI)
Fundació Sant Joan de Déu - Institut de Recerca Sant Joan de Déu
Biobanco del Hospital Infantil Sant Joan de Déu para la investigación

Comunidad Valenciana
VALENCIA
SIER-CV: Information System on rare diseases in Valencian Community (Spain)
FISABIO - Salud Pública
Área de Enfermedades Raras

Extremadura
MÉRIDA
Registry for rare diseases in Extremadura (Spain)
Junta de Extremadura. Servicio Extremeńo de Salud
Subdirector de Epidemiología

Galicia
SANTIAGO DE COMPOSTELA
RERGA: Registry for rare diseases in Galicia (Spain)
Servicio Gallego de Salud
Servicio de Análisis y Evaluación Asistencial

Madrid
MADRID
SIERMA: Information system on rare diseases in Madrid (Spain)
Comunidad de Madrid. Subdirección de Promoción y Prevención de la Salud
Subdirección de Promoción y Prevención de la Salud

Madrid
MADRID
ERN [TRANSPLANT-CHILD] - PETER: PaEdiatric Transplantation European Registry
Hospital Universitario La Paz
Servicio de Hepatología infantil

Madrid
MADRID
ReeR: Spanish National Registry of Rare Diseases
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras

Murcia
MURCIA
SIERrm: Information System on rare diseases in the Region of Murcia (Spain)
Región de Murcia. Consejería de Sanidad y Política Social
Servicio de Planificación y Financiación Sanitaria

Navarra
PAMPLONA
RERNA: Population-based Rare Disease Registry of Navarre (Spain)
Instituto de Salud Pública y Laboral de Navarra
Observatorio de la Salud Comunitaria

País Vasco
BARAKALDO
Basque Biobank
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco

País Vasco
VITORIA-GASTEIZ
Rare Diseases Registry of the Basque Country
Gobierno Vasco. Departamento de Salud
Registro de Enfermedades Raras de la Comunidad Autónoma de Euskadi

Region Stockholm
SOLNA
SBCR: Swedish Childhood Cancer Registry
Astrid Lindgrens Barnsjukhus
Astrid Lindgren Children's Hospital

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Central Registry of Rare Diseases (CRRD)
Sciensano
Health Services Research - Rare Diseases

ILE-DE-FRANCE
PARIS