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120 Resultaat/Resultaten
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Registers en biobanken
BELGIË
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Belgian Cystic Fibrosis patient Registry (BCFR) - contributes to the EUROCARE CF and the ECFS registries
Sciensano
Health Services Research - Rare Diseases
CYPRUS
Cyprus
NICOSIA
Cyprian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Cyprus International Institute (CII) for the environment and public health
Department of environment and public health
DENEMARKEN
Hovedstaden
COPENHAGEN
Nordic Database for Rare Diseases
Rigshospitalet
Department of Clinical Genetics and Paediatrics
DENEMARKEN
Hovedstaden
COPENHAGEN
Danish cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Rigshospitalet
Paediatrisk klinik I
DENEMARKEN
Jylland
AARHUS
Danish cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Aarhus Universitetshospital - Skejby
Pediatric department A - Center for Cystisk Fibrose
DUITSLAND
Hessen
GIEßEN
German cystic fibrosis registry - contributes to the EUROCARE CF registry
Kinderklinik des UKGM am Standort Gießen
Abteilung für Allgemeine Pädiatrie und Neonatologie
ESTLAND
Tartu
TARTU
Estonian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Centre of Clinical Genetics - Tartu University Hospital
Centre of Clinical Genetics - United Laboratories
FRANKRIJK
ILE-DE-FRANCE
PARIS
ITINERAIR-HTAP: French cohort of adult with pulmonary arterial hypertension
Actelion Pharmaceuticals France SAS
FRANKRIJK
ILE-DE-FRANCE
PARIS
ITINERAIR-pediatrie: French cohort of children with pulmonary arterial hypertension
Actelion Pharmaceuticals France SAS
FRANKRIJK
ILE-DE-FRANCE
PARIS
ITINERAIR-scleroderma: French pulmonary arterial hypertension screening cohort of patients with scleroderma
Actelion Pharmaceuticals France SAS
FRANKRIJK
ILE-DE-FRANCE
PARIS
RaDiCo-PID: National cohort on Idiopathic Interstitial Pneumonia from infancy to elderly
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau
Service de pneumologie pédiatrique
FRANKRIJK
OCCITANIE
MONTPELLIER
LSDB, locus specific database
IURC - Institut Universitaire de Recherche Clinique
Laboratoire de génétique moléculaire
FRANKRIJK
OCCITANIE
MONTPELLIER
Cohorte française de patients atteints de mucoviscidose et cohorte CFTR-RD
Institut Universitaire de Recherche Clinique EA 7402 Université de Montpellier
Laboratoire de Génétique de Maladies Rares
GRIEKENLAND
THESSALONIKI
THESSALONIKI
Greek cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Aristotle University of Thessaloniki - Ippokration General Hospital
4th Pediatric Department
HONGARIJE
Dél-Dunántúl
PECS
Cystic fibrosis biobank
Clinical Center - University of Pécs
Department of Medical Genetics
HONGARIJE
Közép-Magyarország
BUDAPEST
Hungarian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Department of Dermatology, Venereology and Dermatoncology, Semmelweis University
Department of pediatric pulmonary
IERLAND
County Dublin
DUBLIN
CFRI: The Cystic Fibrosis Registry of Ireland - contributes to the EUROCARE CF registry
University College Dublin
Cystic Fibrosis Registry of Ireland
IJSLAND
ICELAND
REYKJAVIK
Icelander cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Landspitali
Pediatric department
ISRAËL
ISRAEL
KFAR SABA
Israeli cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Meir Medical Center
Department of pediatry
ITALIË
EMILIA ROMAGNA
BOLOGNA
RIPID - Italian registry of diffuse infiltrative pneumopathies
Policlinico S. Orsola-Malpighi - Area S. Orsola
U.O. Pneumologia e Terapia Intensiva Respiratoria
ITALIË
LIGURIA
GENOVA
Galliera Genetic Bank
Ospedali Galliera
Dipartimento di Scienze genetiche, Perinatali e Ginecologiche
ITALIË
LOMBARDIA
MILANO
Italian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Istituto di Statistica Medica e Biometria ''G.A. Maccacaro''
KROATIË
CROATIA
ZAGREB
Croatian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Zagreb University Medical School
Department of pediatric gastroenterology and nutrition
LETLAND
LATVIA
RIGA
Latvian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Childrens University Hospital
Department of pneumology
LITOUWEN
SUDOVIA
KAUNAS
Lithuanian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Kaunas University of Medicine
Clinic of children diseases
LUXEMBURG
LUXEMBOURG
LUXEMBOURG
Luxembourgers cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Centre Hospitalier du Luxembourg
Département de pneumologie
NEDERLAND
Utrecht
BAARN
Nederlandse CF Registratie - draagt bij aan de European Cystic Fibrosis Society Patient Registry (ECFSPR)
Nederlandse Cystic Fibrosis Stichting
NOORWEGEN
Østlandet
OSLO
Norwegian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Oslo University Hospital, Ullevaal
NSCF - Norsk senter for cystisk fibrose
NORTH MACEDONIA
NORTH MACEDONIA
SKOPJE
Macedonian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
St. Cyril and Methodius University - Faculty of medicine
Pediatric clinic
OOSTENRIJK
WIEN
WIEN
Austrian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Wilhelminenspital
Abteilung für Kinder- und Jugendheilkunde mit Ambulanz
POLEN
Poznan
POZNAN
Polish cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Uniwersytet Medyczny im. Karola Marcinkowskiego w Poznaniu
Zaklad Genetyki Medycznej
PORTUGAL
SUL
LISBOA
Portuguese cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Hospital de Santa Maria
Respiratory unit
ROEMENIË
TIMIS
TIMISOARA
Romanian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Centrul National de Mucoviscidoza
Cystic fibrosis clinic
SERBIA
Serbia
BELGRADE
Serbian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Mother and Child Health Institute of Serbia "Dr Vukan Cupic"
Laboratory of medical Genetics
SLOVENIË
SLOVENIA
LJUBLJANA
Slovenian cystic fibrosis patient registry - contributes to the EUROCARE CF registry
University Medical Centre Ljubljana
Sluzba za pljucne bolezni, Pediatricna klinika
SLOWAKIJE
Bratislavsky kraj
BRATISLAVA
Slovak cystic fibrosis patient registry - contributes to the EUROCARE CF registry
University Hospital Bratislava, SGN Podunajske Biskupice
Slovak cystic fibrosis patient registry
SPANJE
Andalucía
SEVILLA
Registry for rare diseases in Andalusia (Spain)
Junta de Andalucía. Consejería de Salud y Bienestar Social
Dirección General de Calidad, Investigación y Gestión del Conocimiento
SPANJE
Aragón
ZARAGOZA
Rare disease registry of Aragon (Spain)
Gobierno de Aragón. Departamento de Sanidad, Bienestar Social y Familia
Servicio de Evaluación y Acreditación Sanitaria
SPANJE
Baleares
PALMA DE MALLORCA
Population registry of rare diseases of Balearic Islands (Spain)
Govern de les Illes Balears. Dirección General de Salud Pública y Consumo
Servicio de Epidemiología
SPANJE
Baleares
PALMA DE MALLORCA
Population registry of rare diseases of Balearic Islands (Spain)
Govern de les Illes Balears. Dirección General de Salud Pública y Consumo
Dirección General de Salud Pública y Consumo
SPANJE
Cantabria
SANTANDER
Population registry of rare diseases and congenital anomalies of Cantabria (Spain)
Gobierno de Cantabria. Consejería de Sanidad y Servicios Sociales
Servicio de Atención Sanitaria
SPANJE
Comunidad Valenciana
VALENCIA
SIER-CV: Information System on rare diseases in Valencian Community (Spain)
FISABIO - Salud Pública
Área de Enfermedades Raras
SPANJE
Extremadura
MÉRIDA
Registry for rare diseases in Extremadura (Spain)
Junta de Extremadura. Servicio Extremeño de Salud
Subdirector de Epidemiología
SPANJE
Galicia
SANTIAGO DE COMPOSTELA
RERGA: Registry for rare diseases in Galicia (Spain)
Servicio Gallego de Salud
Servicio de Análisis y Evaluación Asistencial
SPANJE
Madrid
MADRID
SIERMA: Information system on rare diseases in Madrid (Spain)
Comunidad de Madrid. Subdirección de Promoción y Prevención de la Salud
Subdirección de Promoción y Prevención de la Salud
SPANJE
Madrid
MADRID
REHAP: Spanish Registry of Pulmonary Arterial Hypertension
Hospital Universitario 12 de Octubre
Unidad Multidisciplinar de Hipertensión Pulmonar
SPANJE
Madrid
MADRID
ERN [TRANSPLANT-CHILD] - PETER: PaEdiatric Transplantation European Registry
Hospital Universitario La Paz
Servicio de Hepatología infantil
SPANJE
Madrid
MADRID
ReeR: Spanish National Registry of Rare Diseases
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
SPANJE
Murcia
MURCIA
SIERrm: Information System on rare diseases in the Region of Murcia (Spain)
Región de Murcia. Consejería de Sanidad y Política Social
Servicio de Planificación y Financiación Sanitaria
SPANJE
Navarra
PAMPLONA
Population registry of rare diseases of Navarra (Spain)
Instituto de Salud Pública y Laboral de Navarra
Sección de Epidemiología de Enfermedades No Transmisibles
TSJECHIË
Capital City Prague
PRAHA
Czech cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Motol university hospital - 2nd Medical School Charles University Prague
National centre for diagnosis and treatment of cystic fibrosis
TURKIJE
TURKEY
ANKARA
Turkish cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Ankara University - Faculty of medicine
Division of Pediatric Molecular Pathology and Genetics
VERENIGD KONINKRIJK
Cambridgeshire
CAMBRIDGE
English cystic fibrosis patient registry - contributes to the EUROCARE CF and ECFS registries
Royal Papworth Hospital
Pulmonary Vascular Diseases Unit
VERENIGD KONINKRIJK
Greater London
LONDON
BPOLD: British Paediatric Orphan Lung Disease Registry
GOSH NHS Foundatin Trust
Respiratory Medicine Group
VERENIGD KONINKRIJK
Greater Manchester
MANCHESTER
CCRN 2421 (Noonan/RASopathy patients): A registry study to characterize genetic and pathway biomarkers in Noonan syndrome and other RASopathy patients - UK
St Mary's Hospital
Manchester Cente for Genomic Medicine
VERENIGD KONINKRIJK
Lothian
EDINBURGH
BPOLD: British Paediatric Orphan Lung Disease Registry
Royal Hospital for Sick Children
Department of Respiratory, Sleep & General Medicine
VERENIGD KONINKRIJK
Lothian
EDINBURGH
ChILD-EU Database and Observational Study; European Management Platform for Childhood Interstitial Lung Diseases
Royal Hospital for Sick Children
Department of Respiratory, Sleep & General Medicine
VERENIGD KONINKRIJK
Tayside
DUNDEE
English cystic fibrosis database
Ninewells Hospital and Medical School
Division Of Cardiovascular & Diabetes Medicine
ZWEDEN
Region Skåne
LUND
SPAHR: Swedish Pulmonary Arterial Hypertension Registry
Skånes Universitetssjukhus
Heart and Lung Division
ZWEDEN
Region Uppsala
UPPSALA
Swedish cystic fibrosis patient registry - contributes to the EUROCARE CF registry
Akademiska childrens hospital
Uppsala centrum för cystisk fibros
ZWITSERLAND
Suisse Romande
LAUSANNE
Swiss registries for Interstitial and Orphan Lung Diseases (SIOLD Registries)
Centre Hospitalier Universitaire Vaudois CHUV
Swiss registries for Interstitial and Orphan Lung Diseases
DUITSLAND
Baden-Württemberg
HEIDELBERG
EXCITING Registry: Registry for Exploring Clinical and Epidemiological Characteristics of Interstitial Lung Diseases
Thoraxklinik-Heidelberg gGmbH
Thoraxklinik Heidelberg
NEDERLAND
Utrecht
NIEUWEGEIN
Biobank of Interstitial Lung Diseases (DNA/serum/plasma/BAL fluid)
St. Antonius Ziekenhuis, locatie Nieuwegein
Longcentrum
VERENIGD KONINKRIJK
Oxfordshire
OXFORD
UK10K RARE CHD - Congenital heart disease variant database
The Wellcome Trust Centre for Human Genetics
Division of Cardiovascular Medicine
BELGIË
OOST-VLAANDEREN
GENT
I-DSD: Internationale register voor aandoeningen van geslachtsontwikkeling -Vlaanderen bijdrage (UZ Gent)
Ghent University Hospital - UZ Gent
Het Centrum voor geslachtsontwikkeling [DSD team]
DUITSLAND
Bayern
MÜNCHEN
MD-NET: Muscle Tissue Culture Collection (MTCC) (EuroBioBank partner)
Friedrich-Baur-Institut
Friedrich-Baur-Institut an der Neurologischen Klinik und Poliklinik
DUITSLAND
Hessen
GIEßEN
eurIPFreg: European idiopathic pulmonary fibrosis registry
Med. Klinik und Poliklinik II des UKGM am Standort Gießen
Schwerpunkt Pneumologie und Intensivmedizin - Fibrosierende Lungenerkrankungen
DUITSLAND
Hessen
GIEßEN
eurIPFbank: European idiopathic pulmonary fibrosis biobank
Med. Klinik und Poliklinik II des UKGM am Standort Gießen
Schwerpunkt Pneumologie und Intensivmedizin - Fibrosierende Lungenerkrankungen
DUITSLAND
Hessen
GIEßEN
Giessen PNEUMObank
Med. Klinik und Poliklinik II des UKGM am Standort Gießen
Schwerpunkt Pneumologie und Intensivmedizin - Fibrosierende Lungenerkrankungen
DUITSLAND
Schleswig-Holstein
KIEL
POPGEN biobank
Christian-Albrechts-Universität zu Kiel -UKSH
Institut für Epidemiologie
FRANKRIJK
AUVERGNE-RHONE-ALPES
BRON
French National Lymphangioleiomyomatosis Registry (RE-LAM-CE)
CHU de Lyon HCL - GH Est-Hôpital Louis Pradel
Service de pneumologie
FRANKRIJK
ILE-DE-FRANCE
PARIS
Biological collection in sarcoidosis in France
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
Service de pneumologie
FRANKRIJK
ILE-DE-FRANCE
PARIS
French atypical sarcoïdosis clinical forms registry
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
Service de pneumologie
NEDERLAND
Gelderland
NIJMEGEN
ERN [GENTURIS] - GENTURIS registry: The ERN Genetic Tumour Risk Syndromes Registry
Radboudumc - Radboud universitair medisch centrum
Sectie Klinische Genetica
SPANJE
Galicia
LUGO
REPA: Spanish registry of alveolar proteinosis
Hospital Universitario Lucus Augusti
Servicio de Neumología
SPANJE
Madrid
COSLADA
Spanish registry of lymphangioleiomyomatosis (terminated)
Hospital Universitario del Henares
Servicio de Neumología
VERENIGD KONINKRIJK
Nottinghamshire
NOTTINGHAM
English registry for lymphangioleiomyomatosis
LAM Action Nottingham, Voluntary Action Centre
Division of Respiratory Medicine, Clinical Sciences Building
BELGIË
VLAAMS BRABANT
LEUVEN
Pediatric granulomatous arthritis international registry
UZ Leuven - Campus Gasthuisberg
Pediatric Rheumatology
BELGIË
VLAAMS BRABANT
LEUVEN
Biobank of the pediatric granulomatous arthritis international registry
UZ Leuven - Campus Gasthuisberg
Pediatric Rheumatology
DUITSLAND
Baden-Württemberg
FREIBURG
PSHN Registry - Purpura Schoenlein-Henoch-Nephritis registry of the German society for paediatric nephrology (GPN)
Zentrum für Kinder- und Jugendmedizin Freiburg
Sektion Kindernephrologie der Klinik für Allgemeine Kinder- und Jugendmedizin
DUITSLAND
Bayern
GARMISCH-PARTENKIRCHEN
German biobank for sytemic juvenile idiopathic arthritis (SoJIA) - subproject of AID-NET
Kinderklinik Garmisch-Partenkirchen gGmbH
Deutsches Zentrum für Kinder- und Jugendrheumatologie
DUITSLAND
Bayern
GAUTING
INSIGHTS-IPF Investigating Significant Health Trends in Idiopathic Pulmonary Fibrosis
Asklepios-Fachkliniken München-Gauting
Klinik für Pneumologie
DUITSLAND
Hamburg
HAMBURG
Hamburg Glomerulonephritis Registry (subproject SFB 1192: Immune-Mediated Glomerular Diseases - Basic Concepts and Clinical Implications)
UKE - Universitätsklinikum Hamburg-Eppendorf
III. Medizinische Klinik und Poliklinik
DUITSLAND
Hessen
GIEßEN
Mutation Database Retina International: ep-Gene (HPS1)
Augenklinik des UKGM am Standort Gießen
Labor für molekulare Ophthalmologie - Klinik und Poliklinik für Augenheilkunde
DUITSLAND
Hessen
GIEßEN
Mutation Database Retina International: Human light ear Gene (le, HPS4)
Augenklinik des UKGM am Standort Gießen
Labor für molekulare Ophthalmologie - Klinik und Poliklinik für Augenheilkunde
DUITSLAND
Niedersachsen
HANNOVER
Lupus nephritis registry (established by the german paediatric nephrology association)
Medizinische Hochschule Hannover
Klinik für Pädiatrische Nieren-, Leber- und Stoffwechselerkrankungen
FRANKRIJK
ILE-DE-FRANCE
BOBIGNY
Idiopathic pulmonary fibrosis: Cohort studies for evaluation of pronostic factors, therapeutic evaluation
CHU Paris Seine-Saint-Denis - Hôpital Avicenne
Service de Pneumologie
FRANKRIJK
ILE-DE-FRANCE
PARIS
French cohort of idiopathic pulmonary fibrosis
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
Service de pneumologie
FRANKRIJK
ILE-DE-FRANCE
PARIS
French biological collection of idiopathic pulmonary fibrosis
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
Service de pneumologie
FRANKRIJK
ILE-DE-FRANCE
PARIS
BLAU registry: French pediatric granulomatous arthritis registry
Hôpital Necker-Enfants Malades
Service d'Immuno-hématologie pédiatrique - Rhumatologie
FRANKRIJK
ILE-DE-FRANCE
PARIS
IERLAND
County Dublin
DUBLIN
The Irish Rare Kidney Disease Registry and Biobank
St James's Hospital
Trinity Health Kidney Centre - Trinity College Dublin
ITALIË
LAZIO
ROMA
IPERN: Registry of JIA patients treated with anti-TNF
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO
U.O. di Reumatologia
ITALIË
LIGURIA
GENOVA
IPERN: Registry of JIA patients treated with anti-TNF
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O. Pediatria II
NEDERLAND
Noord-Holland
AMSTERDAM
Dutch patient registry for Niemann-Pick Disease Type B
Amsterdam UMC, locatie AMC
Afdeling Erfelijke Stofwisselingsziekten
NEDERLAND
Utrecht
UTRECHT
PHARMACHILD patient registry: Long-term pharmacovigilance for adverse effects in childhood arthritis, focusing on immune modulatory drugs (part of PRINTO network)
UMC Utrecht - Universitair Medisch Centrum Utrecht
Polikliniek Immunologie
SPANJE
Canarias
LAS PALMAS
Spanish Rheumatology Society Lupus Registry
Hospital Universitario de Gran Canaria Dr. Negrín
Servicio de Reumatología
VERENIGD KONINKRIJK
Tyne & Wear
NEWCASTLE UPON TYNE
The National Chronic Granulomatous Disease Registry
The Great North Children's Hospital, Royal Victoria Infirmary
Sir James Spence Institute of Child Health
VERENIGD KONINKRIJK
West Midlands
BIRMINGHAM
International Niemann-Pick Disease Registry
Queen Elizabeth Hospital
Inherited Metabolic Disorders
ZWEDEN
Region Skåne
LUND
CYBAbase: Mutation registry for autosomal recessive chronic granulomatous disease (CGD), deficiency of p22phox
Lund University
Department of Experimental Medical Science
ZWEDEN
Region Skåne
LUND
CYBBbase: Mutation registry for X-linked chronic granulomatous disease (previously known as X-CDGbase)
Lund University
Department of Experimental Medical Science
ZWEDEN
Region Skåne
LUND
NCF1base: Mutation registry for autosomal recessive chronic granulomatous disease (CGD), deficiency of p47phox
Lund University
Department of Experimental Medical Science
ZWEDEN
Region Skåne
LUND
NCF2base: Mutation registry for autosomal recessive chronic granulomatous disease (CGD), deficiency of p67phox
Lund University
Department of Experimental Medical Science
ZWITSERLAND
Suisse Alémanique
BERN
Swiss Paediatric Renal Registry
Institute of Social and Preventive Medicine (ISPM)
CANADA
Colombie-Britannique
VANCOUVER
Glomerulonephritis Registry
Centre for Health Evaluation and Outcome Sciences (CHEOS)
Department of Nephrology
DUITSLAND
Baden-Württemberg
TÜBINGEN
Niemann-Pick Type C Disease Gene Variation Database
Institut für Medizinische Genetik und angewandte Genomik Tübingen
Institut für Medizinische Genetik und angewandte Genomik
FRANKRIJK
ILE-DE-FRANCE
PARIS
RaDiCo-ACOSTILL: National cohort on adult and childhood onset Still disease
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière
Service de rhumatologie
FRANKRIJK
ILE-DE-FRANCE
PARIS
RaDiCo-ACOSTILL: National cohort on adult and childhood onset Still disease
Groupe hospitalier AP-HP.6 - Hôpital Tenon
Service de médecine interne
NEDERLAND
Noord-Holland
AMSTERDAM
Dutch patient registry for Niemann-Pick Disease Type C
Amsterdam UMC, locatie AMC
Afdeling Erfelijke Stofwisselingsziekten
SPANJE
Asturias
OVIEDO
RenalTube: Database of patients with primary tubulopathies
Hospital Universitario Central de Asturias
Servicio de Pediatría
VERENIGD KONINKRIJK
Greater Manchester
MANCHESTER
Registry for Patients with Niemann-Pick Type C Disease
St Mary's Hospital
Manchester Cente for Genomic Medicine
NEDERLAND
Utrecht
UTRECHT
STRIVE: A Long-term, Multi-center, Longitudinal Post-marketing, Observational Registry to Assess Long Term Safety and Effectiveness of HUMIRA® (Adalimumab) in Children With Moderately to Severely Active Polyarticular or Polyarticular-course Juvenile Idiopathic Arthritis (JIA) - NL
UMC Utrecht - Universitair Medisch Centrum Utrecht
Polikliniek Immunologie
Netwerken van registers en biobanken
DENEMARKEN
Midtjylland
KARUP
ECFS: European Cystic Fibrosis Society patient registry
European Cystic Fibrosis Society
SPANJE
Madrid
MADRID
SpainRDR: Spanish Rare Disease Registries Research Network (patient registries)
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
VERENIGD KONINKRIJK
Tayside
DUNDEE
EUROCARE CF: European cystic fibrosis registry
Ninewells Hospital and Medical School
Division Of Cardiovascular & Diabetes Medicine
ITALIË
LIGURIA
GENOVA