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Registers en biobanken

DUITSLAND

Baden-Württemberg
FREIBURG

Von Hippel-Lindau registry
Universitätsklinikum Freiburg
Klinik für Innere Medizin IV - Sektion für präventive Medizin

DUITSLAND

Niedersachsen
MEPPEN

VHL-Biobank
Verein VHL (von Hippel-Lindau) betroffener Familien e.V.

FRANKRIJK

OCCITANIE
MONTPELLIER

UMD VHL (von Hippel-Lindau tumor suppressor) mutations database
IURC - Institut Universitaire de Recherche Clinique
Laboratoire de génétique moléculaire

ZWITSERLAND

Suisse Alémanique
BERN

SwissNET - Registry for Neuroendocrine Tumours in Switzerland
Inselspital
SwissNET - Registry for Neuroendocrine Tumours in Switzerland

DUITSLAND

Baden-Württemberg
FREIBURG

International pheochromocytoma and paraganglioma registry
Universitätsklinikum Freiburg
Klinik für Innere Medizin IV - Sektion für präventive Medizin

FRANKRIJK

GRAND-EST
VANDOEUVRE-LÈS-NANCY

French registry of children solid tumors
Faculté de médecine de Nancy
Registre national des tumeurs solides de l'enfant

PORTUGAL

CENTRO
COIMBRA

Central regional cancer patient registry
Instituto Português de Oncologia de Coimbra de Francisco Gentil, EPE
Registo Oncológico Regional - Zona Centro

PORTUGAL

ILHAS
AÇORES

Açores regional cancer patient registry (RORA)
Centro de Oncologia dos Açores Prof Doutor José Conde
Registo Oncológico Regional dos Açores

PORTUGAL

NORTE
PORTO

North regional cancer registry (RORENO)
Instituto Português de Oncologia do Porto, EPE / IPOFG - CRO Porto
Registo Oncológico Regional do Norte

PORTUGAL

NORTE
VILA NOVA DE GAIA

Vila Nova de Gaia regional cancer registry (ROG)
Centro Hospitalar de Vila Nova de Gaia
Registo de Cancro (ROG)

SPANJE

Asturias
OVIEDO

Registro MEN: Spanish registry of multiple endocrine neoplasia, pheochromocitomas and paragangliomas
Hospital Universitario Central de Asturias
Servicio de Endocrinología y Nutrición (HUCA)

AUSTRALIË

Victoria
PARKVILLE

ENSAT: European Network for the Study of Adrenal Tumours
The University of Melbourne
Melbourne eResearch Group (MEG)

DUITSLAND

Hamburg
HAMBURG

German adrenal tumors registry
UKE - Universitätsklinikum Hamburg-Eppendorf
Praxis Prof. Dr. med. Wolfgang Saeger

DUITSLAND

Nordrhein-Westfalen
KÖLN

Tumor bank for embryonal tumors
Universitätsklinikum Köln
Pädiatrische Onkologie und Hämatologie

DUITSLAND

Sachsen-Anhalt
MAGDEBURG

GPOH-MET Registry: Registry for children and adolescents with malignant endocrine tumour
Universitätsklinikum Magdeburg A.ö.R
Bereich Pädiatrische Hämatologie und Onkologie

IERLAND

County Dublin
DUBLIN

Irish ENS@T Biobank and Registry - contributes to ENS@T registry
Endocrinology Department, Beaumont Hospital
Adrenal Service

PORTUGAL

CENTRO
COIMBRA

Adrenal tumor national registry
Hospitais da Universidade de Coimbra
Serviço de endocrinologia diabetes e metabolismo

DENEMARKEN

Sjælland
COPENHAGEN

Mendelian cytogenetics network online database
The Panum Institute-University of Copenhagen
Department of Cellular and Molecular Medicine

DUITSLAND

Baden-Württemberg
HEIDELBERG

Epidemiological cancer registry Baden-Württemberg
Epidemiologisches Krebsregister am DKFZ Heidelberg
Epidemiologisches Krebsregister Baden-Württemberg

DUITSLAND

Bayern
MÜNCHEN

MCR - Munich Cancer Registry
LMU Klinikum der Universität München - Campus Großhadern
Tumorregister München

DUITSLAND

Bayern
NÜRNBERG

Bayern population based cancer registry
Registerstelle des Krebsregisters Bayern

DUITSLAND

Berlin
BERLIN

DUITSLAND

Bremen
BREMEN

Bremen cancer registry
Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS)
Registerstelle des Bremer Krebsregisters

DUITSLAND

Hamburg
HAMBURG

Hamburg cancer registry
Behörde für Soziales, Familie, Gesundheit und Verbraucherschutz
Hamburgisches Krebsregister

DUITSLAND

Rheinland-Pfalz
MAINZ

German childhood cancer registry (Partner of ACCIS: Automated Childhood Cancer Information System)
Institut für Medizinische Biometrie, Epidemiologie und Informatik (IMBEI)
Deutsches Kinderkrebsregister am IMBEI

DUITSLAND

Saarland
SAARBRÜCKEN

DUITSLAND

Schleswig-Holstein
KIEL

German central children tumor registry
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel

DUITSLAND

Schleswig-Holstein
LÜBECK

Schleswig-Holstein cancer registry
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein

ESTLAND

Tallinn
TALLINN

Estonian cancer registry - contributes to the RARECARENet project
National Institute for Health Development
Estonian Cancer Registry

ESTLAND

Tartu
TARTU

Biobank of the Estonian Genome Centre
Institute of Genomics of University of Tartu
The Estonian Genome Centre

FINLAND

Finland
HELSINKI

Finnish cancer registry - contributes to the RARECARE project
Syöpätautien tilastollinen ja epidemiologinen tutkimuslaitos
Finnish Cancer Registry

IJSLAND

ICELAND
REYKJAVIK

ITALIË

LIGURIA
GENOVA

Cell line and DNA Biobank from patients affected by genetic diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Centro di diagnostica genetica e biochimica delle malattie metaboliche

ITALIË

LIGURIA
GENOVA

Gefinancierd door een IRDiRC-lidTelethon Network of Genetic Biobanks
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Centro di diagnostica genetica e biochimica delle malattie metaboliche

MALTA

MALTA
GUARDAMANGIA

Maltese cancer registry - contributes to the RARECARE project
Departement of Health Information
Malta National Cancer Registry

MAROKKO

Rabat
RABAT

Moroccan National Genetic Database
Institut National d'Hygiène
Département de génétique médicale

NOORWEGEN

Østlandet
OSLO

Norwegian cancer registry - contributes to the RARECARE project
Institute of Population-Based Cancer Research
Cancer Registry of Norway

OOSTENRIJK

TIROL
INNSBRUCK

Austrian Country Node of the Human Variome Project (HVP)
Medizinische Universität Innsbruck
Zentrum Medizinische Genetik Innsbruck

OOSTENRIJK

WIEN
WIEN

POLEN

Kielce
KIELCE

Kielce cancer registry - contributes to the RARECARE project
Holycross Cancer Centre
Department of Cancer Control & Epidemiology

POLEN

Kraków
KRAKOW

Cracow cancer registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie, Oddzial w Krakowie
Department of Epidemiology

POLEN

Warszawa
WARSZAWA

Mazovian Cancer Registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie
Cancer Center and Institute of Oncology

PORTUGAL

NORTE
PORTO

Tumour bank
Centro Hospitalar de S. João, EPE
Serviço de Anatomia Patológica

PORTUGAL

SUL
LISBOA

Southern Portugal cancer registry - contributes to the RARECARE project
Instituto Português de Oncologia - Centro de Lisboa
Registo Oncológico Regional Sul

SLOVENIË

SLOVENIA
LJUBLJANA

Slovenian cancer registry - contributes to the RARECARE project
Institute of Oncology Ljubljana
Cancer Registry of Slovenia

SLOWAKIJE

Bratislavsky kraj
BRATISLAVA

National cancer registry (contributes to the RARECARE project)
National Health Information Center
National Cancer Registry

SPANJE

Cataluña
ESPLUGUES DE LLOBREGAT

Biobank of the Sant Joan de Déu Children's Hospital for Research (BHISJDI)
Fundació Sant Joan de Déu - Institut de Recerca Sant Joan de Déu
Biobanco del Hospital Infantil Sant Joan de Déu para la investigación

SPANJE

Madrid
MADRID

CIBERER Biobank (Biobank of rare diseases)
ISCIII - Instituto de Salud Carlos III
Centro de Investigación Biomédica en Red de Enfermedades Raras

SPANJE

Madrid
MADRID

BioNER: Biobank of the Institute of Rare Diseases Research/Institute of Health Carlos III
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras

SPANJE

País Vasco
BARAKALDO

Gefinancierd door een IRDiRC-lidBasque Biobank
BIOEF - Fundación Vasca de Innovación e Investigación Sanitarias
Biobanco Vasco

ZUID-KOREA

KOREA, REPUBLIC OF
SEOUL

Gefinancierd door een IRDiRC-lidKorean Mutation Database for Rare Diseases
Seoul National University Hospital
Molecular Diagnostics Laboratory

ZWEDEN

Stockholms läns landsting
STOCKHOLM

Swedish Childhood Cancer Registry
Astrid Lindgren Children's Hospital - Karolinska
Paediatric Oncology

ZWITSERLAND

Suisse Alémanique
BERN

Swiss Childhood Cancer Registry
Institute of Social and Preventive Medicine (ISPM)

DUITSLAND

Baden-Württemberg
HEIDELBERG

Cooperative European Paediatric Renal Transplant Initiative registry
Universitätsmedizin Heidelberg
Zentrum für Seltene Erkrankungen (ZSE) Heidelberg

DUITSLAND

Baden-Württemberg
HEIDELBERG

Gefinancierd door een IRDiRC-lidERK-REG: ERKNet Registry for Rare Kidney Diseases
Universitätsmedizin Heidelberg
Zentrum für Seltene Erkrankungen (ZSE) Heidelberg

NEDERLAND

Noord-Holland
AMSTERDAM

ESPN/ERA-EDTA Registry: European Registry for Children on Renal Replacement Therapy
Amsterdam UMC, locatie AMC
Afdeling Klinische Informatiekunde

VERENIGD KONINKRIJK

Avon
BRISTOL

UK renal rare disease biobank
Southmead Hospital
Academic Renal Unit

VERENIGD KONINKRIJK

West Midlands
BIRMINGHAM

UK Renal Rare Disease Registry (RaDaR) - Part of OXAL Europe
Birmingham Children's Hospital NHS Foundation Trust
Birmingham Children's Hospital

Netwerken van registers en biobanken

DUITSLAND

Schleswig-Holstein
LÜBECK

GEKID: Association of the epidemiologic cancer registries
  • Institut für Krebsepidemiologie e.V.
  • Registerstelle Krebsregister Schleswig-Holstein
  • ITALIË

    LIGURIA
    GENOVA

    TELETHON NETWORK OF GENETIC BIOBANKS
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • Centro di diagnostica genetica e biochimica delle malattie metaboliche