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31 Wyniki

Ufundowane przez członka IRDiRC =

Rejestry i biobanki

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

ERCUSYN: Registro Europeo del Síndrome de Cushing
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Ufundowane przez członka IRDiRCEIMD: Europäisches Register und Netzwerk für Patienten mit Organoazidurien und Harnstoffzyklusdefekten
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

European Porphyria Registry (EPR)
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Ufundowane przez członka IRDiRCEIMD: Registro e network europeo per malattia metabolica da intossicazione
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Registro per le sindromi di Wolfram, Alström , Bardet-Biedl e altre sindromi rare - afferisce al network EURO-WABB
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Ufundowane przez członka IRDiRCEIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Ufundowane przez członka IRDiRCEUROMAC: Registro de pacientes afectados por la enfermedad de McArdle
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Ufundowane przez członka IRDiRCIrish Registry for homocystinurias and methylation defects - contributes to E-HOD
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

E-HOD - European network and registry for homocystinurias and methylation defects (contributes to U-IMD)
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Ufundowane przez członka IRDiRCERN [PAEDCAN] - PARTNER: Réseaux pédiatriques de tumeurs rares - Registre européen
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Ufundowane przez członka IRDiRCERN [Endo-ERN] - EuRRECa: Registres européens pour des conditions endocriniennes rares
European Commission
DG SANTE - Directorate General for Health and Food Safety

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Ufundowane przez członka IRDiRCERN [RITA] - MERITA: UN REGISTRO DI METADATI PER ERN RITA
European Commission
DG SANTE - Directorate General for Health and Food Safety

Sieci rejestrów i biobanków

BELGIA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Ufundowane przez członka IRDiRCEUROCAT: European surveillance of congenital anomalies
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    EUROFEVER: PReS network europeo di registri sulle sindromi autoinfiammatorie in età pediatrica
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    SCNIR: Severe Chronic Neutropenia International Registry
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Ufundowane przez członka IRDiRCE-IMD: Europäisches Register und Netzwerk für Patienten mit Organoazidurien und Harnstoffzyklusdefekten
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • BELGIA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    BELGIA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Ufundowane przez członka IRDiRCE-HOD - European network and registry for homocystinurias and methylation defects
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety
  • NIEMCY

    Baden-Württemberg
    HEIDELBERG

    Ufundowane przez członka IRDiRCE-IMD: Europäisches Register und Netzwerk für Patienten mit Organoazidurien und Harnstoffzyklusdefekten
  • Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik
  • Klinik für Kinderheilkunde I - Sektion für Neuropädiatrie und Stoffwechselmedizin
  • NIEMCY

    Niedersachsen
    HANNOVER

    SCNIR: Severe Chronic Neutropenia International Registry
  • Medizinische Hochschule Hannover
  • SCNIR - Europazentrale
  • WŁOCHY

    LIGURIA
    GENOVA

    EUROFEVER: PReS network europeo di registri sulle sindromi autoinfiammatorie in età pediatrica
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie
  • HOLANDIA

    Noord-Holland
    AMSTERDAM

    Ufundowane przez członka IRDiRCE-HOD - European network and registry for homocystinurias and methylation defects
  • Amsterdam UMC, locatie VUmc
  • Afdeling Interne Geneeskunde
  • HOLANDIA

    Zuid-Holland
    LEIDEN

    PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
  • LUMC - Leids Universitair Medisch Centrum
  • Afdeling Longziekten
  • ZJEDNOCZONE KRÓLESTWO

    Antrim and Newtownabbey
    NEWTOWNABBEY

    ZJEDNOCZONE KRÓLESTWO

    West Midlands
    BIRMINGHAM