x

Pesquisar um registo/biobanco

* (*) campo(s) de preenchimento obrigatório

136 Resultado(s)

Ordenados por

Financiado por um membro do IRDiRC = Membro de uma ERN =

Registos e biobancos

ALEMANHA

Berlin
BERLIN

Core documentation of children and adolescens with rheumatic diseases
Deutsches Rheuma-Forschungszentrum Berlin
Forschungsbereich Epidemiologie

BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Central Registry of Rare Diseases (CRRD)
Sciensano
Health Services Research - Rare Diseases

ESPANHA

Andalucía
SEVILLA

Registry for rare diseases in Andalusia (Spain)
Junta de Andalucía. Consejería de Salud y Bienestar Social
Dirección General de Calidad, Investigación y Gestión del Conocimiento

ESPANHA

Aragón
ZARAGOZA

Rare disease registry of Aragon (Spain)
Gobierno de Aragón. Departamento de Sanidad, Bienestar Social y Familia
Servicio de Evaluación y Acreditación Sanitaria

ESPANHA

Baleares
PALMA DE MALLORCA

Population registry of rare diseases of Balearic Islands (Spain)
Govern de les Illes Balears. Dirección General de Salud Pública y Consumo
Servicio de Epidemiología

ESPANHA

Baleares
PALMA DE MALLORCA

Population registry of rare diseases of Balearic Islands (Spain)
Govern de les Illes Balears. Dirección General de Salud Pública y Consumo
Dirección General de Salud Pública y Consumo

ESPANHA

Cantabria
SANTANDER

Population registry of rare diseases and congenital anomalies of Cantabria (Spain)
Gobierno de Cantabria. Consejería de Sanidad y Servicios Sociales
Servicio de Atención Sanitaria

ESPANHA

Comunidad Valenciana
VALENCIA

SIER-CV: Information System on rare diseases in Valencian Community (Spain)
FISABIO - Salud Pública
Área de Enfermedades Raras

ESPANHA

Extremadura
MÉRIDA

Registry for rare diseases in Extremadura (Spain)
Junta de Extremadura. Servicio Extremeño de Salud
Subdirector de Epidemiología

ESPANHA

Galicia
SANTIAGO DE COMPOSTELA

RERGA: Registry for rare diseases in Galicia (Spain)
Servicio Gallego de Salud
Servicio de Análisis y Evaluación Asistencial

ESPANHA

Madrid
MADRID

SIERMA: Information system on rare diseases in Madrid (Spain)
Comunidad de Madrid. Subdirección de Promoción y Prevención de la Salud
Subdirección de Promoción y Prevención de la Salud

ESPANHA

Madrid
MADRID

ReeR: Spanish National Registry of Rare Diseases
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras

ESPANHA

Murcia
MURCIA

SIERrm: Information System on rare diseases in the Region of Murcia (Spain)
Región de Murcia. Consejería de Sanidad y Política Social
Servicio de Planificación y Financiación Sanitaria

ESPANHA

Navarra
PAMPLONA

Population registry of rare diseases of Navarra (Spain)
Instituto de Salud Pública y Laboral de Navarra
Sección de Epidemiología de Enfermedades No Transmisibles

FRANCA

ILE-DE-FRANCE
PARIS

French National Registry for Rare Diseases (BNDMR)
AP-HP Campus Picpus - Département WIND (Web Innovation Données)
Banque Nationale de Données Maladies Rares (BNDMR)

ITALIA

LIGURIA
GENOVA

Financiado por um membro do IRDiRCERN [RITA] - MERITA: A METADATA REGISTRY FOR THE ERN RITA
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O. Pediatria II

SUICA

Suisse Alémanique
BERN

Swiss Rare Disease Registry
Institute of Social and Preventive Medicine (ISPM)

SUICA

Suisse Alémanique
ZÜRICH

Swiss Rare Disease Registry
Universitäts - Kinderspital Zürich - Eleonorenstiftung
Abteilung für Stoffwechselkrankheiten

ALEMANHA

Schleswig-Holstein
LÜBECK

GeVas: German Vasculitis Registry
Universitätsklinikum Schleswig-Holstein - Campus Lübeck
Klinik für Rheumatologie und Klinische Immunologie

FRANCA

ILE-DE-FRANCE
PARIS

French auto-immunity and Rituximab (AIR) registry: prospective study of patients treated with Rituximab
CHU Paris Centre - Hôpital Cochin, Site Cochin
Unité fonctionnelle de Médecine interne et centre de référence maladies rares

IRLANDA

County Dublin
DUBLIN

The Irish Rare Kidney Disease Registry and Biobank
St James's Hospital
Trinity Health Kidney Centre - Trinity College Dublin

PAISES BAIXOS

Noord-Holland
AMSTERDAM

REINO UNIDO

Greater London
LONDON

UK and Ireland Vasculitis registry (UKIVAS)
Royal Free London Hospital
University College London, Centre for Nephrology

REINO UNIDO

Oxfordshire
OXFORD

UK and Ireland Vasculitis registry (UKIVAS)
Nuffield Orthopaedic Centre
Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences

ALEMANHA

Baden-Württemberg
FREIBURG

ALEMANHA

Bayern
GARMISCH-PARTENKIRCHEN

German biobank for sytemic juvenile idiopathic arthritis (SoJIA) - subproject of AID-NET
Kinderklinik Garmisch-Partenkirchen gGmbH
Deutsches Zentrum für Kinder- und Jugendrheumatologie

ALEMANHA

Hessen
GIEßEN

Giessen PNEUMObank
Med. Klinik und Poliklinik II des UKGM am Standort Gießen
Schwerpunkt Pneumologie und Intensivmedizin - Fibrosierende Lungenerkrankungen

ALEMANHA

Mecklenburg-Vorpommern
ROSTOCK

ALEMANHA

Nordrhein-Westfalen
KREFELD

Financiado por um membro do IRDiRCGerman AID (Autoinflammatory disorders) registry - subproject AID-NET
HELIOS Klinikum Krefeld
Zentrum für Kinder- und Jugendmedizin

ALEMANHA

Nordrhein-Westfalen
MÜNSTER

Financiado por um membro do IRDiRCAID-NET : Biobank (DNA/RNA/serum) for autoinflammatory syndromes
Universitätsklinikum Münster
Klinik für Kinder- und Jugendmedizin - Pädiatrische Rheumatologie und Immunologie

ALEMANHA

Nordrhein-Westfalen
WÜRSELEN

German calciphylaxis registry -contributes to the international calciphylaxis registry EuCalNet
Rhein-Maas-Klinikum
Klinik für Kardiologie, Nephrologie und Internistische Intensivmedizin

ALEMANHA

Sachsen-Anhalt
DESSAU

German registry for papulosis atrophicans maligna
Städtisches Klinikum Dessau
Klinik für Dermatologie, Venerologie und Allergologie / Immunologisches Zentrum

ALEMANHA

Schleswig-Holstein
KIEL

Financiado por um membro do IRDiRCPOPGEN biobank
Christian-Albrechts-Universität zu Kiel -UKSH
Institut für Epidemiologie

ALEMANHA

Schleswig-Holstein
KIEL

German amyloid registry kiel
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel

AUSTRIA

OBERÖSTERREICH
LINZ

Non-Interventional, web-based Registry for Histiocytic Disorders
Ordensklinikum Linz GmbH Elisabethinen
Interne 1 - Hämatologie mit Stammzelltransplantation, Hämostaseologie und medizinische Onkologie

ESPANHA

Madrid
MADRID

Spanish patient registry of hereditary angioedema
Hospital Universitario La Paz
Servicio de Inmunología

ESTADOS UNIDOS

Massachusetts
CAMBRIDGE

IOS : Icatibant Outcome Survey for hereditory angioedema
Shire Human Genetics Therapies, Inc.

FRANCA

AUVERGNE-RHONE-ALPES
GRENOBLE

Cloud-R HAE Register Hereditary Angiodema
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant
Centre national de référence des angioedèmes (CREAK)

FRANCA

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

French cohort for auto-inflammatory diseases
CHU Paris-Sud - Hôpital de Bicêtre
Service de Rhumatologie pédiatrique

FRANCA

ILE-DE-FRANCE
PARIS

EurêClark registry (The European Clarkson's syndrome registry)
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière
Service de Médecine Interne, Maladies Auto-Immunes et Systémiques

FRANCA

ILE-DE-FRANCE
PARIS

Financiado por um membro do IRDiRCRaDiCo-ACOSTILL: National cohort on adult and childhood onset Still disease
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière
Service de rhumatologie

FRANCA

ILE-DE-FRANCE
PARIS

Biological collection in sarcoidosis in France
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
Service de pneumologie

FRANCA

ILE-DE-FRANCE
PARIS

French atypical sarcoïdosis clinical forms registry
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
Service de pneumologie

FRANCA

ILE-DE-FRANCE
PARIS

Financiado por um membro do IRDiRCRaDiCo-ACOSTILL: National cohort on adult and childhood onset Still disease
Groupe hospitalier AP-HP.6 - Hôpital Tenon
Service de médecine interne

FRANCA

OCCITANIE
MONTPELLIER

Infevers : The registry of Hereditary Auto-inflammatory Disorders Mutations
CHU de Montpellier - Hôpital Arnaud de Villeneuve
Laboratoire de génétique des maladies rares et autoinflammatoires

HUNGRIA

Közép-Magyarország
BUDAPEST

Hungarian Angioedema Register
Semmelweis Egyetem, Kútvölgyi Klinikai tömb
Semmelweis Egyetem III. Sz. Belgyógyászati Klinika Kutatólaboratóriuma

ITALIA

LAZIO
ROMA

IPERN: Registry of JIA patients treated with anti-TNF
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO
U.O. di Reumatologia

ITALIA

LIGURIA
GENOVA

EUROFEVER: European registry for autoinflammatory diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie

ITALIA

LIGURIA
GENOVA

IPERN: Registry of JIA patients treated with anti-TNF
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O. Pediatria II

ITALIA

LOMBARDIA
MILANO

HAE-registry: European hereditary angioedema patient registry
IRCCS-ICS Maugeri
Centro Studi Angioedema

ITALIA

LOMBARDIA
MILANO

The Italian Registry of Hereditary Angioedema
IRCCS-ICS Maugeri
Centro Studi Angioedema

ITALIA

TOSCANA
PISA

PORTUGAL

SUL
LISBOA

Biobanco-IMM
Faculdade de Medicina da Universidade de Lisboa
Biobanco-IMM

REINO UNIDO

Greater London
LONDON

English hereditary angioedema patient registry - part of the HAE European registry
Barts and the London NHS Trust
Department of Immunology

SUECIA

Region Skåne
LUND

SERPING1base: Mutation registry for Hereditary angioedema
Lund University
Department of Experimental Medical Science

SUICA

Suisse Romande
LAUSANNE

Swiss registries for Interstitial and Orphan Lung Diseases (SIOLD Registries)
Centre Hospitalier Universitaire Vaudois CHUV
Swiss registries for Interstitial and Orphan Lung Diseases

ALEMANHA

Baden-Württemberg
FREIBURG

ALEMANHA

Baden-Württemberg
FREIBURG

Financiado por um membro do IRDiRCGAIN-Biobank: Consortial Biobank for patients with Inborn Errors of Multi-Organ Autoimmune Diseases
CCI am Universitätsklinikum Freiburg
Centrum für Chronische Immundefizienz

ALEMANHA

Bayern
MÜNCHEN

MD-NET: Muscle Tissue Culture Collection (MTCC) (EuroBioBank partner)
Friedrich-Baur-Institut
Friedrich-Baur-Institut an der Neurologischen Klinik und Poliklinik

ALEMANHA

Hamburg
HAMBURG

ALEMANHA

Niedersachsen
HANNOVER

ALEMANHA

Niedersachsen
HANNOVER

Lupus nephritis registry (established by the german paediatric nephrology association)
Medizinische Hochschule Hannover
Klinik für Pädiatrische Nieren-, Leber- und Stoffwechselerkrankungen

ALEMANHA

Nordrhein-Westfalen
KÖLN

Patient registry of the German Network for Systemic Scleroderma
Universitätsklinikum Köln
Koordinierungszentrale des DNSS

ALEMANHA

Sachsen-Anhalt
DESSAU

German registry for Morbus Adamantiades-Behçet e.V.
Städtisches Klinikum Dessau
Deutsches Register Morbus Adamantiades-Behçet e.V.

AUSTRIA

TIROL
INNSBRUCK

Innsbruck registry for Adamantiades-Behcet disease: Retrospective and prospective data collection
Medizinische Universität Innsbruck
Universitätsklinik für Innere Medizin II

BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

The Belgian Systemic Sclerosis Cohort - BSSC
Cliniques universitaires Saint-Luc - UCLouvain
Service de rhumatologie

CANADA

Colombie-Britannique
VANCOUVER

Glomerulonephritis Registry
Centre for Health Evaluation and Outcome Sciences (CHEOS)
Department of Nephrology

CANADA

Québec
MONTRÉAL

Canadian Inflammatory Myopathy Study (CIMS)
Hôpital général juif - Jewish General Hospital
Rheumatology Department, Suite A 725

CANADA

Québec
MONTRÉAL

Canadian Inflammatory Myopathy Study (CIMS)
Montreal Neurological Institute and Hospital
Clinical Research Unit (CRU)

ESPANHA

Canarias
LAS PALMAS DE GRAN CANARIA

Spanish Rheumatology Society Lupus Registry
Hospital Universitario de Gran Canaria Dr. Negrín
Servicio de Reumatología

ESPANHA

Cataluña
BARCELONA

REeRIGG4: Spanish IgG4-related Disease Registry
Hospital Universitari Vall d'Hebron
Servicio de Medicina Interna

FRANCA

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

Establishment of children and adolescents cohort in Behcet disease in France
CHU Paris-Sud - Hôpital de Bicêtre
Service de Rhumatologie pédiatrique

FRANCA

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

DNA bank for child's Behcet disease in France
CHU Paris-Sud - Hôpital de Bicêtre
Service de Rhumatologie pédiatrique

FRANCA

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

KAWA-NET: KAWASAKI disease registry
CHU Paris-Sud - Hôpital de Bicêtre
Service de Rhumatologie pédiatrique

FRANCA

ILE-DE-FRANCE
PARIS

RaDiCo-MARFAN: National cohort on Marfan syndrome and apparent diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard
Service de cardiologie

FRANCA

ILE-DE-FRANCE
PARIS

Registry for Patients with Digital Ulcers Associated with Systemic Sclerosis (DU/SSc)
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
MATHEC - Maladies Auto-Immunes et Thérapie Cellulaire

FRANCA

ILE-DE-FRANCE
PARIS

European Society for Blood and Marrow Transplant Society Registry (EBMT registry)
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
MATHEC - Maladies Auto-Immunes et Thérapie Cellulaire

FRANCA

ILE-DE-FRANCE
PARIS

European prospective registry of children born to mothers affected by the antiphospholipids syndrome
Cabinet Médical Jarente
Service de Pédiatrie - Consultation de Génétique médicale et clinique

FRANCA

ILE-DE-FRANCE
PARIS

French Cohorts in Sneddon syndrome and suspected Sneddon syndrome livedo
Groupe hospitalier AP-HP.6 - Hôpital Tenon
Service de dermatologie, médecine vasculaire et allergologie

FRANCA

OCCITANIE
MONTPELLIER

UMD TGFBR2 (transforming growth factor, beta receptor II) mutations database
IURC - Institut Universitaire de Recherche Clinique
Laboratoire de génétique moléculaire

FRANCA

OCCITANIE
MONTPELLIER

UMD FBN1 (fibrillin 1) mutations database
IURC - Institut Universitaire de Recherche Clinique
Laboratoire de génétique moléculaire

FRANCA

OCCITANIE
MONTPELLIER

UMD FBN2 (fibrillin 2) mutations database
IURC - Institut Universitaire de Recherche Clinique
Laboratoire de génétique moléculaire

FRANCA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

French case registry for IgG4-related disease
CHU de Marseille - Hôpital de la Timone
Département de Médecine Interne

HUNGRIA

Dél-Dunántúl
PECS

Marfan biobank
Clinical Center - University of Pécs
Department of Medical Genetics

ITALIA

SICILIA
MESSINA

Behçet's disease registry
A.O.U. Policlinico "G. Martino"
Ambulatorio di Immunologia e Reumatologia Pediatrica

PAISES BAIXOS

Groningen
GRONINGEN

Financiado por um membro do IRDiRCBiobank Sjögren Syndrome (DNA/whole blood/serum/tissue/saliva/tears) - Part of RESULT: REgistry of Sjögren syndrome in UMCG: a LongiTudinal study
UMCG - Universitair Medisch Centrum Groningen
Afdeling Mondziekten, Kaak- en Aangezichtschirurgie

PAISES BAIXOS

Groningen
GRONINGEN

PAISES BAIXOS

Utrecht
NIEUWEGEIN

Financiado por um membro do IRDiRCBiobank of Interstitial Lung Diseases (DNA/serum/plasma/BAL fluid)
St. Antonius Ziekenhuis, locatie Nieuwegein
Longcentrum

REINO UNIDO

Greater Manchester
SALFORD

EuroMyositis registry
Hope Hospital, University of Manchester
The University of Manchester Rheumatic Diseases Centre

SUICA

Suisse Alémanique
BASEL

Swiss SLE Cohort Study
Universitätsspital Basel
Association of the Swiss SLE Cohort Study (ASSCS)

SUICA

Suisse Alémanique
BASEL

SACHER: Swiss Adult Congenital HEart disease Registry
Universitätsspital Basel
Cardiology Department

SUICA

Suisse Alémanique
BERN

Swiss Paediatric Renal Registry
Institute of Social and Preventive Medicine (ISPM)

TURQUIA

TURKEY
ISTANBUL

ALEMANHA

Baden-Württemberg
FREIBURG

PSHN Registry - Purpura Schoenlein-Henoch-Nephritis registry of the German society for paediatric nephrology (GPN)
Zentrum für Kinder- und Jugendmedizin Freiburg
Sektion Kindernephrologie der Klinik für Allgemeine Kinder- und Jugendmedizin

ALEMANHA

Bayern
MÜNCHEN

ALEMANHA

Nordrhein-Westfalen
WUPPERTAL

National registry for retroperitoneal fibrosis
HELIOS Universitätsklinikum Wuppertal - Universität Witten/Herdecke
Klinik für Urologie und Kinderurologie, Prostatazentrum Wuppertal und Bergisch Land

BELGICA

VLAAMS BRABANT
LEUVEN

Pediatric Granulomatous Arthritis International Registry
UZ Leuven - Campus Gasthuisberg
Pediatric Rheumatology

BELGICA

VLAAMS BRABANT
LEUVEN

Biobank of the pediatric granulomatous arthritis international registry
UZ Leuven - Campus Gasthuisberg
Pediatric Rheumatology

FRANCA

AUVERGNE-RHONE-ALPES
GRENOBLE

Cobra: COhort Angioedema Berinert
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant
Centre national de référence des angioedèmes (CREAK)

FRANCA

ILE-DE-FRANCE
PARIS

BLAU registry: French pediatric granulomatous arthritis registry
Hôpital Necker-Enfants Malades
Service d'Immuno-hématologie pédiatrique - Rhumatologie

HUNGRIA

Közép-Magyarország
BUDAPEST

HAEdb: C1 inhibitor gene mutation database
Institute of Haematology and Immunology

ITALIA

LIGURIA
GENOVA

Galliera Genetic Bank
Ospedali Galliera
Dipartimento di Scienze genetiche, Perinatali e Ginecologiche

ITALIA

LOMBARDIA
MILANO

The Global Registry of Hereditary Angioedema Type I and II
IRCCS-ICS Maugeri
Centro Studi Angioedema

ITALIA

SICILIA
MESSINA

Financiado por um membro do IRDiRCTransthyretin amyloid neuropathy (TTR-FAP) italian registry
A.O.U. Policlinico "G. Martino"
Centro Clinico Nemo Sud - Centro ad alta specializzazione per le malattie neuromuscolari

PAISES BAIXOS

Gelderland
NIJMEGEN

Financiado por um membro do IRDiRCERN [eUROGEN] - ERN eUROGEN Registry for rare urogenital diseases
Radboudumc - Radboud universitair medisch centrum
Afdeling Kinderurologie

PAISES BAIXOS

Gelderland
NIJMEGEN

Financiado por um membro do IRDiRCERN [eUROGEN] - ERN eUROGEN Registry for rare urogenital diseases
Radboudumc - Radboud universitair medisch centrum
Afdeling Health Evidence

PAISES BAIXOS

Zuid-Holland
LEIDEN

LUMC Biobank RVCL-S (DNA/peripheral blood cells/plasma/serum/tissue/CSF)
LUMC - Leids Universitair Medisch Centrum
Afdeling Neurologie

PORTUGAL

NORTE
PORTO

MitoBreak: Base de dados de pontos de quebra no DNA mitocondrial
CIIMAR - Interdisciplinary Centre of Marine and Environmental Research

REINO UNIDO

Greater London
LONDON

UK and Ireland Juvenile Dermatomyositis Cohort Biomarker Study and Repository
GOSH NHS Foundatin Trust
Juvenile Dermatomyositis Research Centre

REINO UNIDO

Greater London
LONDON

REINO UNIDO

Greater London
LONDON

UK and Ireland Juvenile Dermatomyositis Cohort Biomarker Study and Repository
The Institute of Child Health & The Division of Medicine, UCL
The Institute of Child Health & The Division of Medicine

REINO UNIDO

Merseyside
LIVERPOOL

UK and Ireland Juvenile Dermatomyositis Cohort Biomarker Study and Repository
Alder Hey Children's Hospital
Department of Rheumatology

SUECIA

Region Västerbotten
UMEÅ

Swedish Registry for Familial Amyloid Polyneuropathy
University Hospital of Umeå
Department of Medicine

FRANCA

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

French registry of Marshall's syndrome with periodic fever
CHU Paris-Sud - Hôpital de Bicêtre
Service de Rhumatologie pédiatrique

ITALIA

LAZIO
ROMA

FMF: Italian registry for familial mediterranean fever in the young
Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Sezione Pediatrica

ITALIA

LAZIO
ROMA

Italian Registry of adult patients affected by familial mediterranean fever
Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Centro delle Febbri Periodiche - Istituto di Medicina Interna

REINO UNIDO

West Glamorgan
LEEDS

CCRN 1055: Osteonecrosis of the Jaw (ONJ) Case Registry
Division 6, Fairburn House
Industry Recruitment

ALEMANHA

Hessen
FRANKFURT AM MAIN

BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Belgian sickle cell anemia registry
Hôpital Universitaire des Enfants Reine Fabiola - HUDERF
Service d'hémato-oncologie, d'immunologie et de rhumatologie pédiatrique

FRANCA

ILE-DE-FRANCE
CRÉTEIL

French sickle cell anemia registry
Hôpitaux Universitaires Henri Mondor
Unité des Maladies Génétiques du Globule Rouge

PAISES BAIXOS

Gelderland
NIJMEGEN

Radboud Biobank - Iron Biobank (cell lines, DNA, serum and urine)
Radboudumc - Radboud universitair medisch centrum
Translationeel Metabool Laboratorium

PAISES BAIXOS

Noord-Holland
NAARDEN

PAISES BAIXOS

Zuid-Holland
LEIDEN

EPCOT: European prospective cohort on thrombophilia
LUMC - Leids Universitair Medisch Centrum
Afdeling Klinische Epidemiologie

AUSTRIA

WIEN
WIEN

Ceprotin Treatment Registry
Allgemeines Krankenhaus der Stadt Wien
Klinische Abteilung für Hämatologie und Hämostaseologie

REINO UNIDO

Cambridgeshire
CAMBRIDGE

Antithrombin related diseases Mutation Database
University of Cambridge
Department of Medicine

Redes de registos e biobancos

IRLANDA

County Dublin
DUBLIN

UKIVAS - UK and Ireland registry of autoimmune vasculitides
  • St James's Hospital
  • Trinity Health Kidney Centre - Trinity College Dublin
  • ALEMANHA

    Nordrhein-Westfalen
    WÜRSELEN

    EuCalNet: International Calciphylaxis Registry
  • Rhein-Maas-Klinikum
  • Klinik für Kardiologie, Nephrologie und Internistische Intensivmedizin
  • ITALIA

    LIGURIA
    GENOVA

    EUROFEVER: PReS European network of registries for autoinflammatoy diseases in childhood
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie