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Registos e biobancos
ALEMANHA
Baden-Württemberg
HEIDELBERG
Epidemiological cancer registry Baden-Württemberg
Epidemiologisches Krebsregister am DKFZ Heidelberg
Epidemiologisches Krebsregister Baden-Württemberg
ALEMANHA
Bayern
MÜNCHEN
MCR - Munich Cancer Registry
LMU Klinikum der Universität München - Campus Großhadern
Tumorregister München
ALEMANHA
Bayern
NÜRNBERG
Bayern population based cancer registry
Registerstelle des Krebsregisters Bayern
ALEMANHA
Berlin
BERLIN
Common cancer registry of Berlin, Brandenburg, Mecklenburg-Western Pomerania, Saxony-Anhalt and the free states Saxony and Thuringia
Gemeinsames Krebsregister (GKR)
Registerstelle des Gemeinsamen Krebsregisters (GKR)
ALEMANHA
Bremen
BREMEN
Bremen cancer registry
Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS)
Registerstelle des Bremer Krebsregisters
ALEMANHA
Hamburg
HAMBURG
Hamburg cancer registry
Behörde für Wissenschaft, Forschung, Gleichstellung und Bezirke
Hamburgisches Krebsregister
ALEMANHA
Rheinland-Pfalz
MAINZ
German childhood cancer registry (Partner of ACCIS: Automated Childhood Cancer Information System, Member of IACR and ENCR)
Institut für Medizinische Biometrie, Epidemiologie und Informatik (IMBEI)
Deutsches Kinderkrebsregister am IMBEI
ALEMANHA
Saarland
SAARBRÜCKEN
EKRS: Saarland Cancer Registry - contributes to the RARECARE Project
Epidemiologisches Krebsregister Saarland
ALEMANHA
Schleswig-Holstein
KIEL
German central children tumor registry
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel
ALEMANHA
Schleswig-Holstein
LÜBECK
Schleswig-Holstein cancer registry
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein
AUSTRIA
WIEN
WIEN
Austrian cancer registry - contributes to the RARECARE project
Österreichisches Krebsregister
ESLOVAQUIA
Bratislavsky kraj
BRATISLAVA
National cancer registry (contributes to the RARECARE project)
National Health Information Center
National Cancer Registry
ESLOVENIA
SLOVENIA
LJUBLJANA
Slovenian cancer registry - contributes to the RARECARE project
Institute of Oncology Ljubljana
Cancer Registry of Slovenia
ESPANHA
Cataluña
ESPLUGUES DE LLOBREGAT
Biobank of the Sant Joan de Déu Children's Hospital for Research (BHISJDI)
Fundació Sant Joan de Déu - Institut de Recerca Sant Joan de Déu
Biobanco del Hospital Infantil Sant Joan de Déu para la investigación
ESTONIA
Tallinn
TALLINN
Estonian cancer registry - contributes to the RARECARENet project
National Institute for Health Development
Estonian Cancer Registry
FINLANDIA
Finland
HELSINKI
Finnish cancer registry - contributes to the RARECARE project
Syöpätautien tilastollinen ja epidemiologinen tutkimuslaitos
Finnish Cancer Registry
FRANCA
ILE-DE-FRANCE
PARIS
ERN [PAEDCAN] - PARTNER: Paediatric Rare Tumours Networks - European Registry
CLCC Institut Curie
Institut Curie
ISLANDIA
ICELAND
REYKJAVIK
Icelander cancer registry - contributes to the RARECARE project
Icelandic Cancer Registry
ITALIA
LOMBARDIA
MILANO
ERN [EURACAN] - STARTER: STarting an Adult Rare Tumor European Registry
Fondazione IRCCS Istituto Nazionale dei Tumori
Fondazione IRCCS - Istituto Nazionale dei Tumori
MALTA
MALTA
GUARDAMANGIA
Maltese cancer registry - contributes to the RARECARE project
Departement of Health Information
Malta National Cancer Registry
NORUEGA
Østlandet
OSLO
Norwegian cancer registry - contributes to the RARECARE project
Institute of Population-Based Cancer Research
Cancer Registry of Norway
POLONIA
Kielce
KIELCE
Kielce cancer registry - contributes to the RARECARE project
Holycross Cancer Centre
Department of Cancer Control & Epidemiology
POLONIA
Kraków
KRAKOW
Cracow cancer registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie, Oddzial w Krakowie
Department of Epidemiology
POLONIA
Warszawa
WARSZAWA
Mazovian Cancer Registry - contributes to the RARECARE project
Centrum Onkologii - Instytut im. Marii Sklodowskiej-Curie
Cancer Center and Institute of Oncology
PORTUGAL
NORTE
PORTO
Banco de tumores e tecidos
Centro Hospitalar de S. João, EPE
Serviço de Anatomia Patológica
PORTUGAL
SUL
LISBOA
Southern Portugal cancer registry - contributes to the RARECARE project
Instituto Português de Oncologia - Centro de Lisboa
Registo Oncológico Regional Sul
SUECIA
Region Stockholm
STOCKHOLM
Swedish Childhood Cancer Registry
Astrid Lindgren Children's Hospital - Karolinska
Paediatric Oncology
SUICA
Suisse Alémanique
BERN
Swiss Childhood Cancer Registry
Institute of Social and Preventive Medicine (ISPM)
ALEMANHA
Baden-Württemberg
STUTTGART
CWS-SoTiSaR: A registry for soft tissue sarcoma and other soft tissue tumours in children, adolescents, and young adults
Klinikum Stuttgart - Standort Olgahospital
Pädiatrie 5 - Onkologie, Hämatologie und Immunologie
ALEMANHA
Baden-Württemberg
TÜBINGEN
STEP Registry: Registry for rare tumors in children and adolescents
Universitätsklinik für Kinder- und Jugendmedizin Tübingen
Abteilung für allgemeine Pädiatrie, Hämatologie/Onkologie
ALEMANHA
Hessen
FRANKFURT AM MAIN
CWS-SoTiSaR: A registry for soft tissue sarcoma and other soft tissue tumours in children, adolescents, and young adults
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt
Klinik für Kinder- und Jugendmedizin
ALEMANHA
Nordrhein-Westfalen
BONN
Brain-Net - brain tissue bank Bonn (epilepsy, brain tumor)
Universitätsklinikum Bonn (AöR)
Hirntumor-Referenzzentrum der DGNN
ALEMANHA
Nordrhein-Westfalen
DORTMUND
STEP Registry: Registry for rare tumors in children and adolescents
Klinikum Dortmund gGmbH - Klinikzentrum Mitte
Klinik für Kinder- und Jugendmedizin
ALEMANHA
Nordrhein-Westfalen
KÖLN
Tumor bank for embryonal tumors
Universitätsklinikum Köln
Pädiatrische Onkologie und Hämatologie
AUSTRIA
STEIERMARK
GRAZ
Bone and soft tissue tumor registry Graz
Medizinische Universität Graz
Universitätsklinik für Orthopädie und Traumatologie
AUSTRIA
WIEN
WIEN
Austrian brain tumor registry
Allgemeines Krankenhaus der Stadt Wien
Abteilung für Neuropathologie und Neurochemie
BELGICA
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Central Registry of Rare Diseases (CRRD)
Sciensano
Health Services Research - Rare Diseases
ESPANHA
Andalucía
SEVILLA
Registry for rare diseases in Andalusia (Spain)
Junta de Andalucía. Consejería de Salud y Bienestar Social
Dirección General de Calidad, Investigación y Gestión del Conocimiento
ESPANHA
Aragón
ZARAGOZA
Rare disease registry of Aragon (Spain)
Gobierno de Aragón. Departamento de Sanidad, Bienestar Social y Familia
Servicio de Evaluación y Acreditación Sanitaria
ESPANHA
Baleares
PALMA DE MALLORCA
Population registry of rare diseases of Balearic Islands (Spain)
Govern de les Illes Balears. Dirección General de Salud Pública y Consumo
Servicio de Epidemiología
ESPANHA
Baleares
PALMA DE MALLORCA
Population registry of rare diseases of Balearic Islands (Spain)
Govern de les Illes Balears. Dirección General de Salud Pública y Consumo
Dirección General de Salud Pública y Consumo
ESPANHA
Cantabria
SANTANDER
Population registry of rare diseases and congenital anomalies of Cantabria (Spain)
Gobierno de Cantabria. Consejería de Sanidad y Servicios Sociales
Servicio de Atención Sanitaria
ESPANHA
Comunidad Valenciana
VALENCIA
SIER-CV: Information System on rare diseases in Valencian Community (Spain)
FISABIO - Salud Pública
Área de Enfermedades Raras
ESPANHA
Extremadura
MÉRIDA
Registry for rare diseases in Extremadura (Spain)
Junta de Extremadura. Servicio Extremeño de Salud
Subdirector de Epidemiología
ESPANHA
Galicia
SANTIAGO DE COMPOSTELA
RERGA: Registry for rare diseases in Galicia (Spain)
Servicio Gallego de Salud
Servicio de Análisis y Evaluación Asistencial
ESPANHA
Madrid
MADRID
SIERMA: Information system on rare diseases in Madrid (Spain)
Comunidad de Madrid. Subdirección de Promoción y Prevención de la Salud
Subdirección de Promoción y Prevención de la Salud
ESPANHA
Madrid
MADRID
ReeR: Spanish National Registry of Rare Diseases
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
ESPANHA
Murcia
MURCIA
SIERrm: Information System on rare diseases in the Region of Murcia (Spain)
Región de Murcia. Consejería de Sanidad y Política Social
Servicio de Planificación y Financiación Sanitaria
ESPANHA
Navarra
PAMPLONA
Population registry of rare diseases of Navarra (Spain)
Instituto de Salud Pública y Laboral de Navarra
Sección de Epidemiología de Enfermedades No Transmisibles
FRANCA
AUVERGNE-RHONE-ALPES
PIERRE-BENITE
French national patients registry on rare peritoneal tumor RENAPE
CHU de Lyon HCL - GH Sud
Service de chirurgie digestive et endocrinienne
FRANCA
BOURGOGNE-FRANCHE-COMTE
DIJON
Registry for digestive cancers in Burgundy
Centre de Recherche Inserm UMR866 Lipides, Nutrition, Cancer - LNC
Epidémiologie et recherche clinique en oncologie digestive
FRANCA
BOURGOGNE-FRANCHE-COMTE
DIJON
Côte d'Or registry of hematological malignancies
Université de Bourgogne
Faculté de Médecine
FRANCA
BRETAGNE
BREST
Digestive Tumor Registry of Finistère
CHU de Brest - Hôpital de la Cavale Blanche
Service d'Hépatologie Gastro-Entérologie
FRANCA
ILE-DE-FRANCE
PARIS
French National Registry for Rare Diseases (BNDMR)
AP-HP Campus Picpus - Département WIND (Web Innovation Données)
Banque Nationale de Données Maladies Rares (BNDMR)
FRANCA
ILE-DE-FRANCE
PARIS
National database for the study and follow-up of paediatric rare tumors
CLCC Institut Curie
Département d'Oncologie pédiatrique, adolescents et jeunes adultes
FRANCA
NORMANDIE
CAEN
Basse Normandie registry of hematological malignancies
CHU de Caen - Hôpital de la Côte de Nacre
Laboratoire d'hématologie biologique
FRANCA
NORMANDIE
CAEN
Registry of digestive tumors in Calvados
Centre François Baclesse
Unité Anticipe (Inserm U1086): Unité de Recherche Interdisciplinaire pour la Prévention et le Traitement des Cancers
FRANCA
NOUVELLE AQUITAINE
BORDEAUX
Gironde registry of hematological malignancies
CLCC Institut Bergonié
Service d'information médicale et de surveillance épidémiologique
FRANCA
PAYS DE LA LOIRE
ANGERS
National database for the study and follow-up of paediatric rare tumors
CHU d'Angers
Centre de ressources et de compétences sur la mucoviscidose CRCM
PAISES BAIXOS
Gelderland
NIJMEGEN
AGORA: biobank (DNA) for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum
Afdeling Kinderurologie
PAISES BAIXOS
Gelderland
NIJMEGEN
AGORA: biobank (DNA) for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum
Afdeling Health Evidence
PAISES BAIXOS
Noord-Holland
AMSTERDAM
Biobank Head and Neck Cancer (tumor biopsies, plasma and blood cells)
Amsterdam UMC, locatie VUmc
Afdeling KNO Hoofd-Halschirurgie
REINO UNIDO
West Midlands
BIRMINGHAM
CEHRB - Central England Haemato-Oncology Research Biobank
Birmingham Women's NHS Foundation Trust
West Midlands Regional Genetics Laboratory (part of the West Midlands Regional Genetics Service)
REINO UNIDO
West Midlands
BIRMINGHAM
eTumour: Web accessible MR decison support system for brain tumour diagnosis and pronosis, incorporating in vivo and ex vivo genomic and metabolomic data
University of Birmingham
School of Cancer Sciences
ALEMANHA
Baden-Württemberg
TÜBINGEN
CMMR: Central Malignant Melanoma Registry in germany
Zentrum für Dermatoonkologie am Universitätsklinikum Tübingen
Sektion Dermatologische Onkologie
ALEMANHA
Bayern
MÜNCHEN
Child liver tumor registry
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital
Kinderchirurgische Klinik und Poliklinik
ALEMANHA
Bayern
MÜNCHEN
NeoExNET registry: patient registry for neuroendocrine tumors
Medizinische Klinik und Poliklinik IV - Standort Ziemssenstraße
Medizinische Klinik und Poliklinik IV
ALEMANHA
Bayern
REGENSBURG
DÖSAK tumor registry for documentation of tumors of the face and jaws in germany, austria and switzerland
Universitätsklinikum Regensburg
Klinik und Poliklinik für Mund-, Kiefer- und Gesichtschirurgie
ALEMANHA
Berlin
BERLIN
NET-Registry: German neuroendocrine gastrointestinal tumors
Charité - Universitätsmedizin Berlin (CVK)
Medizinische Klinik mit Schwerpunkt Hepatologie und Gastroenterologie (CVK)
ALEMANHA
Hamburg
HAMBURG
Registry for Patients with WT1 Mutation Associated Diseases
UKE - Universitätsklinikum Hamburg-Eppendorf
Klinik und Poliklinik für Kinder- und Jugendmedizin
ALEMANHA
Hamburg
HAMBURG
German adrenal tumors registry
UKE - Universitätsklinikum Hamburg-Eppendorf
Praxis Prof. Dr. med. Wolfgang Saeger
ALEMANHA
Nordrhein-Westfalen
AACHEN
NPC-2016 - A multicenter registry for nasopharyngeal cancer in children, adolescents and young adults
Universitätsklinikum Aachen
Sektion für Pädiatrische Hämatologie, Onkologie und Stammzelltransplantation
ALEMANHA
Nordrhein-Westfalen
ESSEN
Registry for Merkel Cell Carcinoma
Universitätsklinikum Essen
DKTK Abteilung für Translationale Hautkrebsforschung
ALEMANHA
Nordrhein-Westfalen
ESSEN
Retinoblastoma Genetics Website
Universitätsklinikum Essen
Institut für Humangenetik
ALEMANHA
Nordrhein-Westfalen
KREFELD
Central Cutaneous Lymphoma Registry
HELIOS Klinikum Krefeld
Klinik für Dermatologie
ALEMANHA
Sachsen-Anhalt
MAGDEBURG
GPOH-MET Registry: Registry for children and adolescents with malignant endocrine tumour
Universitätsklinikum Magdeburg A.ö.R
Universitätskinderklinik
ALEMANHA
Schleswig-Holstein
KIEL
German Lymph Node Registry - tumor bank
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Sektion Hämatopathologie und Lymphknotenregister am Institut für Pathologie
AUSTRALIA
Victoria
PARKVILLE
ENSAT: European Network for the Study of Adrenal Tumours
The University of Melbourne
Melbourne eResearch Group (MEG)
AUSTRIA
SALZBURG
SALZBURG
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): Head and neck tumor registry Austria
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität
Universitätsklinik für Innere Medizin III
AUSTRIA
WIEN
WIEN
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): ALL-Registry and Biobank
Allgemeines Krankenhaus der Stadt Wien
Klinische Abteilung für Hämatologie und Hämostaseologie
AUSTRIA
WIEN
WIEN
Central data registry of the European Competence Network on Mastocytosis (ECMN)
Allgemeines Krankenhaus der Stadt Wien
Klinische Abteilung für Hämatologie und Hämostaseologie
AUSTRIA
WIEN
WIEN
Austrian Bone Marrow Donor Registry
Österreichische Knochenmarkspendezentrale
Fonds Österreichisches Stammzellregister
BELGICA
VLAAMS BRABANT
ZAVENTEM
ENETS: European Neuroendocrine Tumour Registry
BGDO (Belgian Group of Digestive Oncology)_ENETS Registry
Neuroendocrine Tumours Working group
DINAMARCA
Hovedstaden
COPENHAGEN
Nordic Database for Rare Diseases
Rigshospitalet
Department of Clinical Genetics and Paediatrics
ESPANHA
Asturias
OVIEDO
Registro MEN: Spanish registry of multiple endocrine neoplasia, pheochromocitomas and paragangliomas
Hospital Universitario Central de Asturias
Servicio de Endocrinología y Nutrición
ESPANHA
Castilla - León
SALAMANCA
National DNA Bank: Rare diseases sample collection
Centro de Investigación del Cáncer (USAL-CSIC)
Banco Nacional de ADN
ESPANHA
Cataluña
BELLATERRA
DNA repair biobank
Universitat Autònoma de Barcelona
Grupo de inestabilidad genómica y reparación del DNA
ESPANHA
Madrid
MADRID
Spanish Academy of Dermatology and Venereology (AEDV) Registry of primary cutaneous lymphoma
Academia Española de Dermatología y Venereología
Unidad de investigación de la Fundación Academia Española de Dermatología y Venereología
FRANCA
AUVERGNE-RHONE-ALPES
BRON
Regional registry of thyroid cancers in Rhône-Alpes
CHU de Lyon HCL - GH Est-Hôpital Neurologique P. Wertheimer
Service de médecine nucléaire
FRANCA
CENTRE-VAL DE LOIRE
TOURS
NF-France: genotype/phenotype database on neurofibromatosis 1
CHRU de Tours - Hôpital Clocheville
Pôle Enfants - Neuropédiatrie et handicaps
FRANCA
GRAND-EST
REIMS
Marne-Ardennes thyroid cancer registry
CLCC Institut Jean Godinot
Consultation Thyroïde / Médecine nucléaire
FRANCA
GRAND-EST
VANDOEUVRE-LÈS-NANCY
National registry of children solid tumors
Faculté de médecine de Nancy
Registre national des tumeurs solides de l'enfant
FRANCA
ILE-DE-FRANCE
CRÉTEIL
NF-France: genotype/phenotype database on neurofibromatosis 1
CHU Henri Mondor
Service de dermatologie
FRANCA
ILE-DE-FRANCE
VILLEJUIF
ENETS Registry: European Neuro-Endocrine Tumors Group
CLCC Institut Gustave Roussy
Cancers endocriniens - Surrénales et Tumeurs neuro-endocrines
FRANCA
ILE-DE-FRANCE
VILLEJUIF
French registry of child hematological malignancies
GHU Paris-Sud - Hôpital Paul Brousse
Epidémiologie environnementale des cancers
FRANCA
NOUVELLE AQUITAINE
BORDEAUX
Registry and pronostic cohort of cutaneous lymphomas in Aquitaine
CHU de Bordeaux - Hôpital Saint André
Unité de Dermatologie Cancérologie
FRANCA
NOUVELLE AQUITAINE
BORDEAUX
Primary central nervous system tumors registry of Gironde
Université Bordeaux 2 - Victor Ségalen
Institut de Santé Publique, d'Épidémiologie et de Développement
FRANCA
PAYS DE LA LOIRE
ANGERS
GTE: French registry of endocrine tumors
CHU d'Angers
Département d'endocrinologie, diabétologie et nutrition
HUNGRIA
Dél-Dunántúl
PECS
Neurofibromatosis type 1 biobank
Clinical Center - University of Pécs
Department of Medical Genetics
IRLANDA
County Dublin
DUBLIN
Irish ENS@T Biobank and Registry - contributes to ENS@T registry
Endocrinology Department, Beaumont Hospital
Adrenal Service
ITALIA
EMILIA ROMAGNA
BOLOGNA
Multiple Osteochondromas Registry - REM
Istituto Ortopedico Rizzoli - Centro di Ricerca e Poliambulatorio
Laboratorio di Genetica Molecolare - S.S.D. di Genetica Medica e Malattie Rare Ortopediche
ITALIA
EMILIA ROMAGNA
BOLOGNA
Biorepsitory of tissue and blood samples, lymphocytes and DNA from patients affected by solitary/multiple osteochondroma and peripheral chondrosarcoma
Istituto Ortopedico Rizzoli - Centro di Ricerca e Poliambulatorio
Laboratorio di Genetica Molecolare - S.S.D. di Genetica Medica e Malattie Rare Ortopediche
ITALIA
EMILIA ROMAGNA
BOLOGNA
BIOGEN: Diagnostic and research genetic Biobank
Istituto Ortopedico Rizzoli - Centro di Ricerca e Poliambulatorio
Laboratorio di Genetica Molecolare - S.S.D. di Genetica Medica e Malattie Rare Ortopediche
ITALIA
EMILIA ROMAGNA
BOLOGNA
Registry of Ollier disease and Maffucci syndrome - ROM
Istituto Ortopedico Rizzoli - Centro di Ricerca e Poliambulatorio
Laboratorio di Genetica Molecolare - S.S.D. di Genetica Medica e Malattie Rare Ortopediche
ITALIA
PUGLIA
SAN GIOVANNI ROTONDO
Genetic Biobank from patients with Williams-Beuren syndrome and other genomic disorders
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II
U.O.C. Genetica Medica
ITALIA
TOSCANA
SIENA
Italian retinoblastoma registry
Università degli Studi di Siena
Dipartimento di Pediatria, Ostetricia e Medicina della Riproduzione
ITALIA
VENETO
PADOVA
North-east Italy registry of neurofibromatosis
Azienda Ospedaliera di Padova
U.O.C. Genetica Clinica ed Epidemiologica
PAISES BAIXOS
Gelderland
NIJMEGEN
ERN [GENTURIS] - GENTURIS registry: The ERN Genetic Tumour Risk Syndromes Registry
Radboudumc - Radboud universitair medisch centrum
Sectie Klinische Genetica
PAISES BAIXOS
Gelderland
NIJMEGEN
ERN [eUROGEN] - ERN eUROGEN Registry for rare urogenital diseases
Radboudumc - Radboud universitair medisch centrum
Afdeling Kinderurologie
PAISES BAIXOS
Gelderland
NIJMEGEN
ERN [eUROGEN] - ERN eUROGEN Registry for rare urogenital diseases
Radboudumc - Radboud universitair medisch centrum
Afdeling Health Evidence
PAISES BAIXOS
Zuid-Holland
ROTTERDAM
ENCORE Biobank for Neurodevelopmental Disorders (blood/saliva/skin biopsies)
Erasmus MC - Erasmus Medisch Centrum
Afdeling Neurowetenschappen
PORTUGAL
CENTRO
COIMBRA
Registo Nacional de Tumores da Supra-renal
Hospitais da Universidade de Coimbra
Serviço de endocrinologia diabetes e metabolismo
REINO UNIDO
Edinburgh
EDINBURGH
Existing Breast Cancer Research Tissue Bank & Database: Edinburgh Breast Unit and Edinburgh Cancer Research Centre Breast Cancer specimen collection and database established prior to September 2006
Breakthrough Research Unit
Edinburgh Edinburgh Breast Unit
REINO UNIDO
Greater London
LONDON
Family History of Bowel Cancer Registry
Department of Gastroenterology
West Middlesex University Hospital
REINO UNIDO
Greater Manchester
MANCHESTER
VORTEX BIOBANK: Prospective sample collection for the VORTEX randomised radiotherapy trial in adults with extremity soft tissue sarcoma
School of Cancer and Enabling Sciences
Translational Radiobiology
REINO UNIDO
Greater Manchester
MANCHESTER
CCRN 2421 (Noonan/RASopathy patients): A registry study to characterize genetic and pathway biomarkers in Noonan syndrome and other RASopathy patients - UK
St Mary's Hospital
Manchester Cente for Genomic Medicine
SUECIA
Region Skåne
LUND
BLMbase: Mutation registry for Bloom Syndrome
Lund University
Department of Experimental Medical Science
SUICA
Suisse Alémanique
BERN
Swiss Paediatric Renal Registry
Institute of Social and Preventive Medicine (ISPM)
SUICA
Suisse Alémanique
BERN
SwissNET - Registry for Neuroendocrine Tumours in Switzerland
University Hospital Inselspital
SwissNET - Registry for Neuroendocrine Tumours in Switzerland
ALEMANHA
Baden-Württemberg
FREIBURG
International pheochromocytoma and paraganglioma registry -terminated-
Universitätsklinikum Freiburg
Klinik für Innere Medizin IV - Nephrologie und Allgemeinmedizin
ALEMANHA
Baden-Württemberg
FREIBURG
Von Hippel-Lindau registry -terminated-
Universitätsklinikum Freiburg
Klinik für Innere Medizin IV - Nephrologie und Allgemeinmedizin
ALEMANHA
Baden-Württemberg
FREIBURG
Hilda biobank for children at the University Medical Center Freiburg - diagnostic and research on biomaterials of children and adolescents
Zentrum für Kinder- und Jugendmedizin Freiburg
Klinik für Pädiatrische Hämatologie und Onkologie
ALEMANHA
Baden-Württemberg
MANNHEIM
Register for rare myeloproliferative neoplasms
Universitätsmedizin Mannheim
III. Medizinische Klinik
ALEMANHA
Bayern
AUGSBURG
EU-RHAB: European Rhabdoid Tumor Registry
Universitätsklinikum Augsburg
Schwäbisches Kinderkrebszentrum
ALEMANHA
Bayern
MÜNCHEN
German multiple endocrine neoplasia type 1 (MEN 1) registry
Max-Planck-Institut für Psychiatrie
ALEMANHA
Bayern
WÜRZBURG
NKR: German registry for adrenocortical carcinoma
Zentrum Innere Medizin (ZIM)
Medizinische Klinik und Poliklinik I - Endokrinologie und Diabetologie
ALEMANHA
Bayern
WÜRZBURG
NKR: German adrenocortical carcinoma biobank
Zentrum Innere Medizin (ZIM)
Medizinische Klinik und Poliklinik I - Endokrinologie und Diabetologie
ALEMANHA
Bayern
WÜRZBURG
Registry and biobank for rare thyroid and parathyroid carcinoma
Zentrum Innere Medizin (ZIM)
Medizinische Klinik und Poliklinik I - Endokrinologie und Diabetologie
ALEMANHA
Berlin
BERLIN
OVCAD: Charité tumor bank ovarian cancer (TOC)
Charité - Universitätsmedizin Berlin (CVK)
Klinik für Gynäkologie mit Zentrum für onkologische Chirurgie (CVK)
ALEMANHA
Hamburg
HAMBURG
CPT-SIOP-Registry : International Registry for Choroid Plexus Tumors
UKE - Universitätsklinikum Hamburg-Eppendorf
Klinik und Poliklinik für Pädiatrische Hämatologie und Onkologie
ALEMANHA
Hamburg
HAMBURG
German pituitary tumors registry
UKE - Universitätsklinikum Hamburg-Eppendorf
Praxis Prof. Dr. med. Wolfgang Saeger
ALEMANHA
Mecklenburg-Vorpommern
ROSTOCK
National patient registry rare histiocytic disorders - part of the International Rare Histiocytic Disorders Registry (IRHDR)
Universitäts-Kinder- und Jugendklinik Rostock
Kinder- und Jugendklinik
ALEMANHA
Nordrhein-Westfalen
DÜSSELDORF
MDS Registry: German myelodysplastic syndromes patient registry
Universitätsklinikum Düsseldorf
Klinik für Hämatologie, Onkologie und Klinische Immunologie
AUSTRALIA
Victoria
MEKBOURNE
Lymphoma and Related Diseases Registry (LaRDR)
Monash University
Department of Epidemiology & Preventive Medicine
AUSTRALIA
Victoria
MEKBOURNE
Myelodysplastic Syndromes Registry (MDS)
Monash University
Department of Epidemiology & Preventive Medicine
AUSTRIA
SALZBURG
SALZBURG
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): Austrian Registry on Hypomethylating Agents in Myeloid Neoplasms
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität
Universitätsklinik für Innere Medizin III
AUSTRIA
SALZBURG
SALZBURG
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): MBC-Registry (Metastatic breast cancer in Austria)
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität
Universitätsklinik für Innere Medizin III
AUSTRIA
TIROL
INNSBRUCK
MDS: Austrian myelodysplastic syndromes patient registry - contributes to the European Myelodysplastic Syndromes (MDS) Registry
Medizinische Universität Innsbruck
Universitätsklinik für Innere Medizin V - Hämatologie und Onkologie
ESPANHA
Cataluña
BARCELONA
Spanish patient registry of myelodysplasic syndromes
Grupo Español de Síndromes Mielodisplásicos
ESPANHA
Cataluña
BARCELONA
RETEGEP: Spanish Registry of Gastroenteropancreatic Neuroendocrine Tumors
Secretaria Técnica GETNE - TACTICS MD
Grupo Español de Tumores Neuroendocrinos
ESPANHA
Comunidad Valenciana
VALENCIA
Epidemiologic Registry of Patients Diagnosed With Acute Myeloid Leukemia - ES
Hospital Universitario y Politécnico La Fe
Servicio de Hematología y Hemoterapia
ESPANHA
Madrid
MADRID
Spanish Molecular Registry of Pituitary Adenomas (REMAH Nacional)
Sociedad Española de Endocrinología y Nutrición
Grupo de Neuroendocrinología de la SEEN
ESTADOS UNIDOS
New York
NEW YORK
Thymic Malignancy Interest Group International Database
Memorial Sloan-Kettering Cancer Center
FRANCA
AUVERGNE-RHONE-ALPES
BRON
UMD MEN1 (multiple endocrine neoplasis I) mutations database
CHU de Lyon HCL - GH Est
Unité Médicale de Génétique des Cancers et des Maladies Multifactorielles
FRANCA
ILE-DE-FRANCE
CRÉTEIL
Mesothelioma cohort in Seine Saint-Denis and Val de Marne
Faculté de Médecine de Créteil
"Physiopathologie de la bronchopneumopathie chronique obstructive"
FRANCA
ILE-DE-FRANCE
PARIS
GMF: French registry of myelodysplastic syndromes and leukemia chemo- and radio-induced
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
Groupe Francophone des Myélodysplasies (GFM)
FRANCA
ILE-DE-FRANCE
PARIS
French registry of familial and premature prostate cancers (before 50 years)
Groupe hospitalier AP-HP.6 - Hôpital Tenon
Centre expert Oncologie urologique et prostatique
FRANCA
ILE-DE-FRANCE
SAINT-CLOUD
UMD BRCA1 (Breast cancer 1, early onset) mutations database
CLCC Hôpital René Huguenin - Institut Curie
Laboratoire d'oncogénétique
FRANCA
ILE-DE-FRANCE
VILLEJUIF
French registry of adult lymphomas
GHU Paris-Sud - Hôpital Paul Brousse
Epidémiologie environnementale des cancers
FRANCA
NORMANDIE
CAEN
Multicenter national registry of pleural mesothelioma (qualified register)
CHU de Caen - Hôpital de la Côte de Nacre
Laboratoire d'Anatomie Pathologique et neuropathologie
FRANCA
NOUVELLE AQUITAINE
BORDEAUX
Aquitaine registry of mesothelioma
Université Bordeaux 2 - Victor Ségalen
Institut de Santé Publique, d'Épidémiologie et de Développement
FRANCA
OCCITANIE
MONTPELLIER
UMD VHL (von Hippel-Lindau tumor suppressor) mutations database
IURC - Institut Universitaire de Recherche Clinique
Laboratoire de génétique moléculaire
FRANCA
PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
LEA - Multicentric prospective cohort of children and adolescents malignant hemopathies
CHU de Marseille - Hôpital de la Timone
Evaluation des systèmes de soins et santé perçue
ITALIA
LIGURIA
GENOVA
Galliera Genetic Bank
Ospedali Galliera
Dipartimento di Scienze genetiche, Perinatali e Ginecologiche
ITALIA
LOMBARDIA
PAVIA
EUMDS: European Registry for Myelodysplastic Syndromes - part of EuroLeukemiaNet (ELN)
Fondazione IRCCS Policlinico San Matteo
S.C. Ematologia
ITALIA
LOMBARDIA
PAVIA
Italian myelodysplastic syndromes registry
Fondazione IRCCS Policlinico San Matteo
S.C. Ematologia
ITALIA
TOSCANA
FIRENZE
Italian register multiple endocrine neoplasia
Azienda Ospedaliero Universitaria Careggi
S.O.D. Malattie del Metabolismo Minerale ed Osseo
ITALIA
TOSCANA
FIRENZE
Italian Network MDS Registry (FISM_registry)
Azienda Ospedaliero Universitaria Careggi
S.O.D. Ematologia
PAISES BAIXOS
Gelderland
NIJMEGEN
Radboud Biobank - Collection Pheochromocytoma/Paraganglioma (frozen and paraffin embedded tissue)
Radboudumc - Radboud universitair medisch centrum
Afdeling Endocriene Ziekten
PAISES BAIXOS
Noord-Brabant
EINDHOVEN
Adrenocortical Carcinoma Biobank - part of the ENS@T Registry
Máxima Medisch Centrum, locatie Eindhoven
Afdeling Interne Geneeskunde
PAISES BAIXOS
Zuid-Holland
LEIDEN
European Parathyroid Tumor Registry
LUMC - Leids Universitair Medisch Centrum
Afdeling Pathologie
PORTUGAL
CENTRO
COIMBRA
Registo de Pacientes Oncológico Regional - Zona Centro (ROR-Centro)
Instituto Português de Oncologia de Coimbra de Francisco Gentil, EPE
Registo Oncológico Regional - Zona Centro
PORTUGAL
ILHAS
AÇORES
Registo Oncológico da Região Autónoma dos Açores (RORA)
Centro de Oncologia dos Açores Prof Doutor José Conde
Registo Oncológico Regional dos Açores
PORTUGAL
NORTE
PORTO
RORENO - Registo Oncológico Regional do Norte
Instituto Português de Oncologia do Porto, EPE / IPOFG - CRO Porto
Registo Oncológico Regional do Norte
PORTUGAL
SUL
LISBOA
Registo Nacional de Tumores da Hipófise
Hospital Egas Moniz
Serviço de Endocrinologia
REINO UNIDO
Greater London
LONDON
Global Familial Isolated Pituitary Adenoma (FIPA) Biobank
Barts and The London School of Medicine and Dentistry
Endocrinology
REINO UNIDO
Greater London
LONDON
ERNEST - European Registry for Myeloproliferative Neoplasms towards a better understanding of Epidemiology, Survival and Treatment
Guy's Hospital
Department of Haematology
REINO UNIDO
Surrey
SUTTON
FCLL - A Genetic Study of Chronic Lymphocytic Leukaemia and Other Lymphoproliferative Disease
The Institute of Cancer Research
Section of Epidemiology
REINO UNIDO
West Yorkshire
LEEDS
EUMDS: European Registry for Myelodysplastic Syndromes - part of EuroLeukemiaNet (ELN)
Leeds General Infirmary
Department of Haematology
SUECIA
Region Skåne
LUND
CASP10base: Mutation registry for Autoimmune lymphoproliferative syndrome, type II (ALPS2)
Lund University
Department of Experimental Medical Science
SUECIA
Region Skåne
LUND
CASP8base: Mutation registry for Caspase 8 deficiency
Lund University
Department of Experimental Medical Science
SUECIA
Region Skåne
LUND
FASLGbase: Mutation registry for Autoimmune lymphoproliferative syndrome, type 1B (ALPS1B) (previously known as TNFSF6base)
Lund University
Department of Experimental Medical Science
SUECIA
Region Skåne
LUND
NRASbase: Mutation registry for Autoimmune lymphoproliferative syndrome type IV
Lund University
Department of Experimental Medical Science
SUECIA
Region Skåne
LUND
Swedish Acute Myelogenous Leukemia Registry
Skånes Universitetssjukhus
Lund onkologiskt centrum
SUICA
Suisse Romande
LAUSANNE
Swiss registries for Interstitial and Orphan Lung Diseases (SIOLD Registries)
Centre Hospitalier Universitaire Vaudois CHUV
Swiss registries for Interstitial and Orphan Lung Diseases
ALEMANHA
Bayern
FREIBURG
ALEMANHA
Hessen
FRANKFURT AM MAIN
GMALL-registry: registry for adult patients with acute lymphoblastic leukemia or related diseases
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt
Medizinische Klinik II - Hämatologie, Onkologie, Hämostaseologie, Rheumatologie, Infektiologie
ALEMANHA
Hessen
FRANKFURT AM MAIN
GMALL-registry: Biobank for adult patients with acute lymphoblastic leukemia or related diseases
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt
Medizinische Klinik II - Hämatologie, Onkologie, Hämostaseologie, Rheumatologie, Infektiologie
ALEMANHA
Hessen
FRANKFURT AM MAIN
German Registry for Incidental Gallbladder Carcinoma
Krankenhaus Nordwest GmbH
Institut für Klinisch-Onkologische Forschung
ALEMANHA
Hessen
GIEßEN
NHL-BFM Registry 2012: Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin Lymphoma diagnosed in children and adolescents
Kinderklinik des UKGM am Standort Gießen
Abteilung für Pädiatrische Hämatologie und Onkologie
ALEMANHA
Hessen
MARBURG
German national case collection of familial pancreatic cancer
Universitätsklinikum Gießen und Marburg GmbH, Standort Marburg
Klinik für Visceral- Thorax- und Gefäßchirurgie
ALEMANHA
Nordrhein-Westfalen
MÜNSTER
NHL-BFM Registry 2012: Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin Lymphoma diagnosed in children and adolescents
Universitätsklinikum Münster
Klinik für Kinder- und Jugendmedizin - Pädiatrische Hämatologie und Onkologie
ALEMANHA
Rheinland-Pfalz
MAINZ
Mainz registry of congenital anomalies - contributes to the EUROCAT network
Universitätsmedizin Mainz
Geburtenregister Mainzer Modell
ALEMANHA
Sachsen-Anhalt
MAGDEBURG
Centre Saxony-Anhalt registry of congenital anomalies - contributes to the EUROCAT network
Universitätsklinikum Magdeburg A.ö.R
MONZ - Fehlbildungsmonitoring Sachsen-Anhalt
AUSTRALIA
Victoria
MEKBOURNE
Myeloma and Related Diseases Registry (MRDR)
Monash University
Department of Epidemiology & Preventive Medicine
AUSTRIA
STEIERMARK
GRAZ
Styrian registry of congenital anomalies - contributes to the EUROCAT network
Medizinische Universität Graz
Forschungsverein zur Registrierung steirischer Geburtsfehlbildungen
AUSTRIA
TIROL
INNSBRUCK
Austrian chronic myeloid leukemia registry
Medizinische Universität Innsbruck
Universitätsklinik für Innere Medizin V - Hämatologie und Onkologie
AUSTRIA
WIEN
ADDRESS: NOT PROVIDED - AT
Thromboreductin-Registry
Institution: Information not provided - AT
AUSTRIA
WIEN
WIEN
NF-10 - Prospective collection of potentially prognostically relevant data in patients with indolent non-follicular B-cell lymphoma
Allgemeines Krankenhaus der Stadt Wien
Klinische Abteilung für Onkologie
AUSTRIA
WIEN
WIEN
Austrian myeloma registry
OeGHO Geschäftsstelle
Österreichische Gesellschaft für Hämatologie & Medizinische Onkologie
AUSTRIA
WIEN
WIEN
Austrian chronic myeloid leukemia registry
OeGHO Geschäftsstelle
Österreichische Gesellschaft für Hämatologie & Medizinische Onkologie
AUSTRIA
WIEN
WIEN
Registry of the NHL-BFM study group for all subtypes of Non-Hodgkin lymphoma in children and adolescents
St. Anna Kinderspital
Zentrum für Kinder- und Jugendheilkunde
BELGICA
ANTWERPEN
ANTWERPEN
Antwerpen registry of congenital anomalies - contributes to the EUROCAT network
Provinciaal Instituut voor Hygiëne (PIH)- Antwerpen
EUROCAT Belgium_Antwerpen
BELGICA
HAINAUT
GOSSELIES
Hainaut and Namur registry of congenital anomalies - contributes to the EUROCAT network
Institut de Pathologie et de Génétique
Département de Génétique Clinique - Institut de Pathologie et de Génétique (IPG)
BULGARIA
South Central region
PLOVDIV
National registry of adult patients with chronic myeloid leukemia - BG
BAPES - Bulgarian Association for Promotion of Education and Science
Information Centre for Rare Diseases and Orphan Drugs
DINAMARCA
Syddanmark
ODENSE
Funen county registry of congenital anomalies - contributes to the EUROCAT network
University of Southern Denmark
Epidemiology department
ESPANHA
Madrid
MADRID
MOLDIAG-PACA: biobank of pancreatic cancer
Centro Nacional de Investigaciones Oncológicas (CNIO)
Grupo de Carcinogénesis Epitelial
ESPANHA
Madrid
MADRID
MOLDIAG-PACA: biobank of pancreatic cancer
Centro Nacional de Investigaciones Oncológicas (CNIO)
Grupo de Epidemiología Genética y Molecular
ESPANHA
País Vasco
VITORIA-GASTEIZ
RACAV: Registry of congenital anomalies of the Basque Country (Spain) - contributes to the EUROCAT network
Gobierno Vasco. Departamento de Salud
FINLANDIA
Finland
HELSINKI
Register of Congenital Malformations
Terveyden ja hyvinvoinnin laitos (THL)
Finnish Institute for Health and Welfare (THL)
FRANCA
AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Auvergne registry of congenital anomalies - contributes to the EUROCAT network
CHU de Clermont-Ferrand - Hôpital d'Estaing
Service de génétique médicale
FRANCA
AUVERGNE-RHONE-ALPES
LYON
Rhône-Alpes registry of congenital anomalies - contributes to the EUROCAT network
Registre des Malformations en Rhône Alpes
Registre des Malformations en Rhône Alpes REMERA
FRANCA
BOURGOGNE-FRANCHE-COMTE
DIJON
Breast and other gynecological cancers registry of Côte-d'Or
CLCC Georges François Leclerc
Centre de Recherche Clinique (CRC)
FRANCA
BRETAGNE
RENNES
Bretagne registry of congenital anomalies - contributes to the EUROCAT network
CHU de Rennes - Hôpital Pontchaillou
CHU Rennes
FRANCA
ILE-DE-FRANCE
PARIS
Paris registry of congenital anomalies - contributes to the EUROCAT network
APHP - HUPC - Site Cochin
Equipe EPOPé
FRANCA
ILE-DE-FRANCE
PARIS
French register of the SDH-related hereditary paraglioma
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou
Service de génétique
FRANCA
ILE-DE-FRANCE
SAINT-CLOUD
UMD BRCA2 (Breast cancer 2, early onset) mutations database
CLCC Hôpital René Huguenin - Institut Curie
Laboratoire d'oncogénétique
FRANCA
ILE-DE-FRANCE
SAINT-CLOUD
GENEPSO: French BRCA1 and 2 carrier cohort study
CLCC Hôpital René Huguenin - Institut Curie
Service d'Epidémiologie Clinique et d'Information Médicale, Oncogénétique Clinique
FRANCA
OUTRE-MER
FORT DE FRANCE
French West Indies registry of congenital anomalies - contributes to the EUROCAT network
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant
Centre Pluridisciplinaire de Diagnostic Prénatal (CPDP)
FRANCA
OUTRE-MER
SAINT-PIERRE
La Réunion Fench Island registry of congenital anomalies - contributes to the EUROCAT network
CHU de la Réunion - GH Sud Réunion - Saint-Pierre
Service de Génétique Médicale
IRLANDA
County Cork
CORK
South of Ireland registry of congenital anomalies - contributes to the EUROCAT network
St. Finbarr's Hospital
Department of Public Health
IRLANDA
County Dublin
DUBLIN
Dublin registry of congenital anomalies - contributes to the EUROCAT network
Dr. Steeven's Hospital
HSE Registry of Congenital Anomalies (East)
IRLANDA
County Kilkenny
KILKENNY
South East of Ireland registry of congenital anomalies - part of BINOCAR and EUROCAT network
Health Service Executive South SE
South East of Ireland registry of congenital anomalies
ITALIA
CAMPANIA
BENEVENTO
Campania registry of congenital anomalies - contributes to the EUROCAT network
A.O.R.N. "Gaetano Rummo"
U.O.C. di Genetica Medica
ITALIA
LOMBARDIA
PAVIA
RIMM: Italian registry for myelofibrosis with myeloid metaplasia
Fondazione IRCCS Policlinico San Matteo
Laboratorio di Epidemiologia Clinica
ITALIA
PUGLIA
SAN GIOVANNI ROTONDO
Registry of pregnant patients affected by essential thrombocythemia
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II
Laboratorio di Ematologia
ITALIA
SICILIA
CATANIA
ISMAC: Sicilian registry of congenital anomalies - contributes to the EUROCAT network
ASMAC
Associazione per la Prevenzione Sociale e per il Trattamento delle Malformazioni Congenite
ITALIA
TOSCANA
PISA
Tuscan Registry of Congenital Anomalies
Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR
Unità di Ricerca Epidemiologia Ambientale e Registri di Patologia
ITALIA
VENETO
PADOVA
North-East of Italy registry of congenital anomalies - contributes to the EUROCAT network
Azienda Ospedaliera di Padova
U.O.C. Genetica Clinica ed Epidemiologica
MALTA
MALTA
G'MANGIA
MALTA CONGENITAL ANOMALIES REGISTRY (MCAR) - it contributes to EUROCAT
Ministry for Health
Directorate of Health Information and Research
PAISES BAIXOS
Groningen
GRONINGEN
EUROCAT Northern Netherlands - contributes to the international EUROCAT network
UMCG - Universitair Medisch Centrum Groningen
Afdeling Genetica
POLONIA
Poznan
POZNAN
PRCM: Polish registry of congenital malformations - contributes to the EUROCAT network
Uniwersytet Medyczny im. Karola Marcinkowskiego w Poznaniu
Zaklad Genetyki Medycznej
PORTUGAL
NORTE
VILA NOVA DE GAIA
Registo Oncológico de Vila Nova de Gaia (ROG)
Centro Hospitalar de Vila Nova de Gaia
Registo de Cancro (ROG)
PORTUGAL
SUL
LISBOA
RENAC - Portuguese registry of congenital anomalies (contributes to the EUROCAT network)
Instituto Nacional de Saúde Dr. Ricardo Jorge - Lisboa
Departamento de Epidemiologia
REINO UNIDO
Hampshire
SOUTHAMPTON
WANDA - Wessex registry of antenatally detected anomalies - part of BINOCAR and EUROCAT network
Princess Anne Hospital
Paediatric Endocrinology and the Wessex Clinical Genetics Service
REINO UNIDO
Surrey
SUTTON
NSHLG - National Study of Hodgkin's Lymphoma Genetics
The Institute of Cancer Research
Section of Epidemiology
REINO UNIDO
West Midlands
BIRMINGHAM
EBV associated NK/T cell malignancies registry
University of Birmingham
Institute for cancer studies
SUECIA
Region Uppsala
UPPSALA
Swedish Chronic Myeloid Leukemia Registry
Akademiska Sjukhuset
Regionalt Onkologiskt Centrum
SUECIA
Region Västra Götaland
GÖTEBORG
Swedish Multiple Myeloma Registry
Sahlgrenska Universitetssjukhuset
Göteborg onkologiskt centrum
SUICA
Suisse Romande
LAUSANNE
EUROCAT VAUD Switzerland - Registry of congenital malformations of canton Vaud
Centre Hospitalier Universitaire Vaudois CHUV
Département Femme-Mère-Enfant - Maternité
ALEMANHA
Berlin
BERLIN
German gastrointestinal stromal tumor registry
HELIOS Klinikum Berlin-Buch
Onkologisches Zentrum Berlin-Buch
ALEMANHA
Hessen
FRANKFURT AM MAIN
German registry for Langerhans Cell Histiocytosis in childhood (LCH-REG-DE 2013)
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt
Schwerpunkt Onkologie, Hämatologie und Hämostaseologie
ALEMANHA
Nordrhein-Westfalen
KÖLN
German registry for neonates, infants, children, adolescents, and adults with newly diagnosed and/or relapsed neuroblastic tumors (NB Registry 2016) - partner of the INRG Database
Universitätsklinikum Köln
Pädiatrische Onkologie und Hämatologie
AUSTRIA
OBERÖSTERREICH
LINZ
Non-Interventional, web-based Registry for Histiocytic Disorders
Ordensklinikum Linz GmbH Elisabethinen
Interne 1 - Hämatologie mit Stammzelltransplantation, Hämostaseologie und medizinische Onkologie
AUSTRIA
OBERÖSTERREICH
WELS
Austrian GIST registry
Akademie für Gesundheit und Bildung der Kreuzschwestern GesmbH
AUSTRIA
SALZBURG
SALZBURG
AGMT (Arbeitsgemeinschaft medikamentöse Tumortherapie): PTCL registry (T-cell lymphoma in Austria)
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität
Universitätsklinik für Innere Medizin III
AUSTRIA
WIEN
WIEN
Registry for Philadelphia chromosome-positive acute lymphoblastic leukemia in childhood and adolescence
St. Anna Kinderspital
Zentrum für Kinder- und Jugendheilkunde
AUSTRIA
WIEN
WIEN
Registry for relapsing acute lymphoblastic leukemia in childhood and adolescence
St. Anna Kinderspital
Zentrum für Kinder- und Jugendheilkunde
ESPANHA
Cataluña
BARCELONA
Spanish registry of pulmonary Langerhans cell histiocytosis
Hospital de la Santa Creu i Sant Pau
Servicio de Neumología
ESPANHA
Madrid
MADRID
PanGen-FAM: Spanish registry of hereditary pancreatic cancer
IRYCIS - Instituto Ramón y Cajal de Investigación Sanitaria
Grupo de investigación en Epidemiología Molecular y Marcadores Predictivos del Cáncer
FRANCA
ILE-DE-FRANCE
PARIS
POLA: French patient registry of high level oligodendroglioma
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière
Service de Neurologie 2 : Unité d'Onco-Neurologie
FRANCA
ILE-DE-FRANCE
PARIS
French certified patient registry for Langerhans cell histiocytosis
CHU Paris Centre - Hôpital Cochin, Site Cochin
Unité fonctionnelle de Médecine interne et centre de référence maladies rares
FRANCA
ILE-DE-FRANCE
PARIS
French certified patient registry for Langerhans cell histiocytosis
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau
Service d'Hématologie - Oncologie pédiatrique
FRANCA
ILE-DE-FRANCE
PARIS
Biobank of the French certified patient registry for Langerhans cell histiocytosis
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau
Service d'Hématologie - Oncologie pédiatrique
FRANCA
ILE-DE-FRANCE
PARIS
French certified patient registry for Langerhans cell histiocytosis
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis
Service de pneumologie
FRANCA
ILE-DE-FRANCE
PARIS
MUTP53LOAD: Mutant p53 Loss Of Activity Database
CLCC Institut Curie
Laboratoire de Génotoxicologie des Tumeurs
FRANCA
ILE-DE-FRANCE
PARIS
French observatory of gastric linitis plastica
Hôpital Lariboisière
Service de Chirurgie digestive et cancérologique
FRANCA
ILE-DE-FRANCE
VILLEJUIF
French observatory of gastric linitis plastica
CLCC Institut Gustave Roussy
Service de gastroentérologie
ITALIA
LIGURIA
GENOVA
Italian neuroblastoma registry
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
Servizio di Epidemiologia e Biostatistica
ITALIA
TOSCANA
FIRENZE
Italian LCH Registry - Langerhans cell histiocytosis
Azienda Ospedaliera Universitaria Anna Meyer
D.A.I. Oncoematologia
REINO UNIDO
Cambridgeshire
CAMBRIDGE
Familial Ovarian Cancer Register (FOCR)
Strangeways Research Laboratory
Department of Oncology
REINO UNIDO
Merseyside
LIVERPOOL
EUROPAC: the European registry of hereditary pancreatitis and familial pancreatic cancer
Royal Liverpool University Hospital NHS, UCD Building
Division of Surgery & Oncology, 5th Floor
SUECIA
Region Skåne
LUND
Swedish Acute Lymphoblastic Leukemia Registry
Skånes Universitetssjukhus
Lund onkologiskt centrum
SUICA
Suisse Alémanique
ZÜRICH
Perihilar Cholangiocarcinoma International Registry
Universitätspital Zürich
Department of Hepato-Pancreato-Biliary & Transplantation Surgery
ALEMANHA
Hessen
GIEßEN
LBL Registry: Registry for children with lymphoblastic lymphoma
Kinderklinik des UKGM am Standort Gießen
Abteilung für Pädiatrische Hämatologie und Onkologie
ALEMANHA
Nordrhein-Westfalen
DÜSSELDORF
HepNet: German hepatocellular carcinoma (HCC) registry
Universitätsklinikum Düsseldorf
Klinik für Gastroenterologie, Hepatologie und Infektiologie
ALEMANHA
Nordrhein-Westfalen
KÖLN
DCLLSG registry of the German CLL Study Group - Long term observation of patients with CLL, B-PLL, T-PLL, SLL, T/ NK-LGL and Richter transformation
Universitätsklinikum Köln
Klinik I für Innere Medizin
ALEMANHA
Nordrhein-Westfalen
MÜNSTER
LBL Registry: Registry for children with lymphoblastic lymphoma
Universitätsklinikum Münster
Klinik für Kinder- und Jugendmedizin - Pädiatrische Hämatologie und Onkologie
ESPANHA
Cataluña
ESPLUGUES DE LLOBREGAT
SIOPE Diffuse Intrinsic Pontine Glioma (DIPG) Registry (Spanish contact point)
Hospital Sant Joan de Déu Barcelona
Servicio de Oncología y Hematología
ESTADOS UNIDOS
Washington
ADDRESS: NOT PROVIDED - US
The international diffuse intrinsic pontine glioma registry
Institution: Information not provided - US
FRANCA
GRAND-EST
REIMS
French acromegaly registry
CHU de Reims - Hôpital Robert Debré
Service d'endocrinologie-diabétologie-nutrition
REINO UNIDO
Greater Manchester
MANCHESTER
UK national Acromegaly patient register
Christie Hospital
Department of Endocrinology
REINO UNIDO
Surrey
SUTTON
NBT- National Brain Tumour Study
The Institute of Cancer Research
Section of Epidemiology
ALEMANHA
Baden-Württemberg
ULM
German marginal zone lymphoma registry
Universitätsklinikum Ulm
Institut für Experimentelle Tumorforschung
ALEMANHA
Rheinland-Pfalz
MAINZ
EMCL-REGISTRY: European Mantle cell lymphoma registry
Universitätsmedizin Mainz
III. Medizinische Klinik und Poliklinik
Redes de registos e biobancos
ALEMANHA
Schleswig-Holstein
LÜBECK
GEKID: Association of the epidemiologic cancer registries
Institut für Krebsepidemiologie e.V.
Registerstelle Krebsregister Schleswig-Holstein
ESPANHA
Madrid
MADRID
SpainRDR: Spanish Rare Disease Registries Research Network (patient registries)
ISCIII - Instituto de Salud Carlos III
Instituto de Investigación de Enfermedades Raras
SUECIA
Region Skåne
LUND
EUROCRINE: European Surgical Registry for Rare Endocrine Tumours
Lunds Universitet
Institutionen för kliniska vetenskaper
REINO UNIDO
Antrim and Newtownabbey
NEWTOWNABBEY
EUROCAT: European surveillance of congenital anomalies
University of Ulster
Room 12 L09
PAISES BAIXOS
Zuid-Holland
DEN HAAG