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Funded by an IRDiRC member = Member of a ERN =
Research projects

AUSTRIA
WIEN
ADDRESS: NOT PROVIDED - AT
A Quality Improvement Project to Implement Psychosocial Care Standards in Clinical Practice in Pediatric Oncology "My Logbook! - I Know my Way Around!" Development and Evaluation of a Consensus and Evidence Based Psychosocial Therapy Tool in a Preliminary Psychosocial Study on Therapy Optimization - AT
Institution: Information not provided - AT

AUSTRIA
WIEN
WIEN
PanCareSurPass: PanCare studies of the scale-up and implementation of the digital Survivorship Passport to improve people-centred care for childhood cancer survivors - AT
Gesundheit Österreich GmbH

AUSTRIA
WIEN
WIEN
Christian Doppler Laboratory for Next Generation CAR-T Cells
St. Anna Kinderkrebsforschung
Children's Cancer Research Institute

AUSTRIA
WIEN
WIEN
Instand-NGS4P: Integrated and standardized NGS workflows for Personalised therapy - AT
St. Anna Kinderkrebsforschung

BELGIUM
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Follow-up of Fertility in Young Adults Who Did or Did Not Store Testicular Tissue Before Gonadotoxic Treatment for Fertility Preservation
Universitair Ziekenhuis Brussel
Universitair Ziekenhuis Brussel (UZ Brussel)

CANADA
Ontario
TORONTO
Beyond the Genome: Transcriptome Based Diagnostics for Rare Diseases and Cancer
Hospital for Sick Children, Research Institute

GERMANY
Baden-Württemberg
HEIDELBERG
ERA-NET TRANSCAN: BRCAddict - BRCAness as a therapeutic target for solid high-risk childhood tumors
Deutsches Krebsforschungszentrum
KITZ - Hopp-Kindertumorzentrum Heidelberg

ITALY
VENETO
PADOVA
Modulating BMP axis to prevent muscle loss, dismantling of NMJ and denervation in cancer cachexia
Venetian Institute of Molecular Medicine
Fondazione per la ricerca Biomedica avanzata ONLUS

UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Evaluating utility and improving implementation of genomic sequencing for pediatric cancer patients in the diverse population and healthcare settings of Texas: the kidscanseq study
Institution: Information not provided - US

UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Personalized whole body staging for children with cancer: a solution to the conundrum of long-term side effects from ct and pet/ct scans
Institution: Information not provided - US

UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
Project 1: optimization of therapeutic approaches for children with relapsed sarcomas using precision medicine.
Institution: Information not provided - US

CANADA
Colombie-Britannique
VICTORIA
Silent Genomes: Reducing health care disparities and improving diagnostic success for children with genetic diseases from Indigenous populations
University of Victoria
Community Genetics Research Program/Island Medical Program

SPAIN
Madrid
MADRID
Mechanistic models using Machine Learning for therapeutic targets discovery and drug repurposing in Rare Diseases
ISCIII - Instituto de Salud Carlos III
Centro de Investigación Biomédica en Red de Enfermedades Raras

SPAIN
Madrid
MADRID
Identification of new genes causing rare diseases in pediatric patients, searching of genetic pharmacological targets, and drugs discovery, the steps for a personalized medicine
Instituto de Investigación Hospital 12 de Octubre
Grupo de investigación en enfermedades raras, mitocondriales y neuromusculares

UNITED STATES
Washington
ADDRESS: NOT PROVIDED - US
A powerful web-based discovery platform for rare disease genetics
Institution: Information not provided - US
Multicentric Research projects
- Institution: Information not provided - DE
- Institution: Information not provided - IT
- Fondazione IRCCS Istituto Nazionale dei Tumori
- S.S. di Epidemiologia Valutativa
- Fondazione IRCCS Istituto Nazionale dei Tumori
- S.S. di Epidemiologia Valutativa
- Northern Institute for Cancer Research, Medical School, Newcastle University
- Northern Institute for Cancer Research
- Institut Curie
- Macromolécules et Microsystèmes en Biologie et en Medecine

GERMANY
Berlin
ADDRESS: NOT PROVIDED - DE
TORPEDO: Targeting Of Resistance in PEDiatric Oncology

ITALY
EMILIA ROMAGNA
ADDRESS: NOT PROVIDED - IT
TRANSCAN-2: Aligning national/regional translational cancer research programmes and activities

ITALY
LOMBARDIA
MILANO
RARECARE: surveillance of rare cancers in Europe

ITALY
LOMBARDIA
MILANO
RARECARENet: Network informativo sui tumori rari

UNITED KINGDOM
Tyne & Wear
NEWCASTLE UPON TYNE
EPOC: European paediatric oncology off-patent medicines consortium

FRANCE
ILE-DE-FRANCE
ORSAY